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SITE ANNOUNCEMENT: WhatNext Community Survey
Hello WhatNext! I wanted to share a community survey that we put together with the help of the team over at Patient Worthy. The survey covers aspects such as what you like best about WhatNext, what could be improved, added, fixed and more. We're also seeking advice from some of our cancer support and patient group partners…
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Oh No | Just Diagnosed
April 27, the day our lives changed. We were told , after my husband woke up from his colonoscopy, that they found a mass in his rectom. We would have to wait for the results of the biopsy, but he could almost guarantee that it was cancer. My husband, Nick, is deaf. He reads lips. Still a little groggy from the procedure,…
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Anatropoloze has anyone having severe joint and stiffness in wrist and hands since taking this medi
Anatropoloze has anyone having severe joint and stiffness in wrist and hands since taking this medi
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Now I have a blind eye
Detached retina turned sour..... they changed the positioning protocol and a bubble appeared that pushed the lens out.... requiring more surgery.... oh brother... now I'm blind in one eye.... poop
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Cat scan lesions
I have a question. On the last cat scan on 12/5 ther were small lesions, with the largest being 10mm. The oncologist says she will do next cat scan on 2/22 on the same day as round 12 of chemo. So, my question. Is, dont they usually keepcdoong chemo until all spots/lesions/nodules are gone? Had 40% reduction on both…
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Am I invisible?
Okay - this is a rant - WHY are my questions never listed on the What Next Digest page? I am serious, they are never there and it is making me feel bad (...of course if this were the worst thing to ever happen to me I will be pretty lucky, lol!) Since Greg's passing I have posted several questions/comments and they have…
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Taxotere
I was given Taxotere, I am now permanently bald. I was not allowed to join the law suit that was advertised on TV. The lawsuit stated that Onocolgist’s were not told that this type of chemo would cause baldness. Someone who was handling the lawsuit came to my home took pictures of my head, help me fill out a 30 or more…
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Dry mouth, lack of taste & Neuropathy...
Dry mouth, lack of taste & Neuropathy
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Decision Point | Am deciding which drugs to take including alternative ones
Started a clinical trial but was not put in arm that used new drug. Am assessing whether to continue standard treatment or drop study and add another drug
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Freaky Friday!...or Friendly Friday?
Wait...no one posted a Thankful Thursday site for us to get together? Well, lets remedy that and try Freaky Friday (what has been freaking you out lately?) or Friendly Friday if you just want to check in and say "Hi." (we love that).
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Something to think about.
Yesterday I posted a question. Well, to be more accurate, I wrote out a question which I thought would be posted here. I got the pop-up that said - Your question has been posted. but it wasn't posted here (where I wrote it out). Instead it appeared on my wall. On my homepage. And, of course, there was no notice, so no one…
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Surgeon comments during needle biopsy?
Did your surgeon/radiologist make any comments about the specimen sample they received during a core biopsy? What did they say? Mine said: -normally, lymph nodes roll around like a marble when trying to insert a needle, but mine was staying put, seemed to be attached to the surface underneath. -something about “I thought…
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Ostomy Bleeding between stoma and abdominal wall
Has anyone experienced bleeding where the stoma attaches to the abdominal wall? Colostomy is almost 8 months out and have never had this issue. Chemo and Avastin have dropped platelets to 50's and nose bleeds as well as bleeding around stoma. Surgeon has cauterized the area 3 times thus far and now another spot has started…
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Thankful Thursday Again. Hope this makes it to the right place. I've never posted before.
Thankful Thursday Again. Hope this makes it to the right place. I've never posted before.
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Thank you LetLifeHappen for the blog posts
In my WhatNext digest email there was notification that LetLifeHappen posted some blogs that were of interest to me. When I chose the Blog menu item on the WhatNext site it did not show me her blogs. I had to search in the people section and go to her page to see them. It was well worth the effort. Is it possible that the…
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Have any of you had the covid test?
I knew they put a swab up your nose, but I didn't think it would go that far back and I didn't expect any pain at all from it. The girl told me it would hurt for about 10 seconds, she was NOT wrong. Anyway, all in all, I've had lots worse done to me so far. With this test out of the way, I can have my surgery on Thursday.
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Ileostomy site
Hi, colorectal cancer friends - I've been having discomfort at my former ileostomy site for a few years now. Colonoscopy and CT scans don't reveal any problem but I still feel like something isn't "right" there. Could this be phantom pains or something? My reversal was 14 years ago so surely if there was something wrong,…
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Exactly what can we say here?
I am not a fan of vulgarities. I don't use that word that rhymes with duck, although it has become so commonplace it doesn't really shock me to hear it anymore. And I know people who pepper it in their everyday speech the way some people used *darn* so that has kind of defused it's power. If this site does not want us to…
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Rested and Restored (The Site)
So, it looks like WhatNext is back up and running. I am so glad to see familiar faces and posters here. I am sorry to see so many people have been going through such hard times when the site was not operating correctly. We were still thinking about you all. This journey seems never ending. I think that's pretty accurate.…
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Celebration | Finished treatment
I rang the bell at MD Anderson!! Then had dinner with my family.
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Side Effects | Fatigue (tiredness)
I have been off Keytruda 4 months and was wondering if anyone knows how long it stays in your system?
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Broken and Sad
Folks, there are a number of people who have been with WhatNext for quite awhile- most have been here far longer than I have. I don't specifically recall how I came to know about the site, but I was so glad to find it in the early days of my diagnosis. I see new folks coming here with new diagnoses, and the lack of support…
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Procedure or Surgery | Lumpectomy
Now 10 days post-op
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Oh No | Just Diagnosed
BC instead of Covid?
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Shall we do Thankful Thursday again??
wow, last Thursday's post drew a lot of old friends (and some new ones) and it was great to hear from everyone! Am I *pushing it* to keep it going? Today, I am thankful for the recent little vacation my husband and I had in Mackinaw Island. The weather was chilly, but the Island is a magical place (no cars allowed) -…
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Drug or Chemo Therapy | Chemotherapy and radiation combined
While the treatments only lasted 6 weeks, recovery from radiation effects is still ongoing.
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Procedure or Surgery | Lumpectomy
Worst part--finding post surg sports bra
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feeding tube issue
My email is now Dkatsmeow@outlook.com. Got my 2nd tube replacement 2 days ago. A balloon. It leaks at base horribly. Go thru a surgical pad every hour. Am permanently on feeding tube. Doc says stoma needs to "heal". Any suggestions. New shirt every 2 hrs. Getting annoying.
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Drug or Chemo Therapy | Keytruda Immunotherapy
Just started immunotherapy with first dose of Ketruda
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How can I help my husband
My Husbands cancer is getting worse. He is really depressed from those who have been there should I just leave him alone to grieve this new chapter or try to force him to go so Somewhere. We are waiting to get a scan to see if it has spread. We are running out of options it seems
