-
Clinical Trial | CAR-T November 2018
2019 in remission
-
Anyone out there?
It's pretty quiet these last few days. Just checking in to say hello.
-
Support for survivors with ongoing medical issues
I wasn't prepared for what post-treatment would be like. In the 12 months after I finished my consolidation treatment, I broke both of my ankles at separate times. I had also just split from my wife, so I was living alone and felt that my cancer never really went away, when it did.
-
Side Effects | Fatigue (tiredness)
Post chemotherapy, I struggled with fatigue and overall coordination
-
Drug or Chemo Therapy | Chemotherapy
I'm back on Pomalyst 21 day regimen after one year of undetectable Myeloma. Still on Darzalex immunotherapy infusion once a month. It's getting harder to fight back but I'm fighting. I've been in treatment for 5 years since diagnosis in 2016. Sometimes I think the hardest part of treatment is going at it alone. But then I…
-
my healthy sister started this wild cancer ri...
my healthy sister started this wild cancer ride on May 1 of this year with blood in her urine. The doctor's say it's a high risk cancer and they have begun treating it with high risk chemotherapy. She had her ureter and 1 kidney removed and has had 1 round of chemo. They will need to adjust her chemo cocktail so it's not…
-
Covid vaccine and mammograms?
From what I have been reading, it seems one unexpected side effect of the covid vaccine is swollen lymph nodes in the vaccinated arm. The kind that would prompt your doctor, if seen on a mammogram, to order a biopsy. It is being recommended that we women schedule our mammograms at least six weeks after receiving the second…
-
sidelined
I will be reading frequently but not posting often for the rest of this week or maybe the next few weeks. I fell today at lunch and injured my left wrist (thankfully not my right since I am right handed). I thought it was just sprained (and that may still be the case) so I tried urgent care. Let me tell you, Urgent Care in…
-
Loss | Body part/function
Dealing with long-term side effects: neuropathy, pain, fatigue, hair loss and regrowth, nail damage and pain, cognitive deficits from chemo
-
Celebration | Breakthrough
Finished chemo 3/31/21
-
Drug or Chemo Therapy | Chemotherapy
R-CHOP
-
Bone mets
Has anyone had it spread to the bones significantly and had radium 223 or if not what was the treatment. You received. Anyone know how long you can live with bone nets
-
Earth Angels
I will resume my earth angels when I can type better. There are many of you!!
-
Who’s On First-2021 edition
A friend shared with me. I’m going to put in another answer so it gets the who’s thing.
-
Celebration | Remission
It's been three years since my diagnosis, two years since my last two breast surgeries, and two years since I completed Chemo. I am Cancer Free!
-
Hair Dye?
I just read a blog posted by letlifehappen that deals with all the extra chemicals we are exposed to these days and how they can increase our hormone levels. For those of us with hormone driven cancers, this is a bit scary. The blog said some of the chemicals, which act as aromatase activators are found in personal care…
-
Oh No | Just Diagnosed
I was in shock! I'm not an emotional person, but during the phone call with my PCP, and hearing the words that; "you have Cancer!" I started to cry. Not because I was sad, or why me, or that I was going to die; I was just shocked!
-
Other Care | Other
Since I am young, and at high risk; I currently am taking an injection in my stomach once a month (Zoladex-Goserelin) and a pill once a day. Both for five years, three more to go. I started off having hot flashes. I no longer do. Now, I'm having bone pain.
-
Side Effects | Fatigue (tiredness)
I was tired after my Infusions. I started to lose my hair (so I had my nephew to shave it for me). After a while I got the metallic taste in my mouth (I still ate lol). I also lost muscle mass because I wasn't able to work out after my breast procedures. Also, my periods were stopped during Chemo (Two years now).
-
Procedure or Surgery | Mastectomy
I went from having two breasts to one. I had a tissue expander put into my breast by my plastic surgeon during my four hour surgery.
-
Decision Point | Radiation or Chemo. Or, Mastectomy.
After finding my own lump, being diagnosed five days later; I was meeting with my surgical oncologist. There was so much information, so many decisions. I, chose to have a Mastectomy.
-
Melanoma - metastasied to Lung
Any information on experiences treated with immunotherapy, Keytruda?
-
Micrometastases
Anyone diagnosed with this and had onco test
-
Celebration | Remission
im now two years remission.
-
Procedure or Surgery | Surgery
Replaced jaw bone with leg bone. Took out lymph nodes. Feeding tube and trach.
-
Oh No | Just Diagnosed
April 2017 in right jaw bone.
-
Drug or Chemo Therapy | Chemotherapy
currently doing chemo/immunotherapy
-
Oh No | Cancer is back/Recurred
July 2021 biopsy shows three places in lining of mouth with cancer.
-
Radiation | External radiation
30 treatments of radiation.
-
What We Say
Since I am on this kick to be an encourager right now, I was reading an answer I had posted on a thread to JustGrateful way back in May 2020. I guess I was still in kick butt mode, pull yourself up by your bootstraps. I meant my post to be encouraging and empowering. Now that I look back on what I wrote, it sounds…
