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Oh No | Just Diagnosed
Diagnosed Feb 16, 2021, with invasive ductal carcinoma. I have a mass and cancer found in a lymph node. I am HER2 positive, ER, and PR positive.
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Come As You Are
Good news and bad news? Let's hear it/see it. It seems our "leadership" doesn't care so let's be the strong people I know we are and lay it out there for congratulations and/or support. Good news is I have finally found some tops that I really like that don't seem to require constant adjustments to make those parts of me…
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Many still have. ...
Many still have.
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Radiation | External radiation
Had Esophagitis from the radiation. Took 3 to 4 months to recover.
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Calling All WhatNext'ers.
This site has come loose from its moorings again and seems to be floating away into oblivion. It is sad to me that we are always bound to enter a specific diagnosis to ask a question. I think there are a great many questions we all have and maybe they are about cancer in general. Maybe they are about COVID, or life, or…
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when to stop
how and when do u decide to stop treatments
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Hair Loss
11-1/2 yrs ago I went thru chemo for Ovarian Cancer. Carboplatin and Taxol were administered for 9 sessions. I knew that all my hair would fall out and that 2 months after treatment it would grow back. It did, thin and limp. My hair has always been coarse and full, no baldness on either side of my family. For the past two…
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Treatment and prognosis
Treatment and prognosis
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Any Treatment for Advanced Chemically Induced Neuropathy
I sure wish someone would have shared information about chemically induced neuropathy with me way back when I had my first rounds of chemo. I have had ovarian cancer for over 20 years and have been on many types if chemo therapy....I'm now on Avastin. My feet are so painful that I have trouble walking and as such, my…
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Family effects
Has anyone else found that terminal cancer seems to tear the rest of the family apart. Mine was very close, but as soon as I got the final terminal diagnosis, everyone is arguing about different things to the point some family members can't be in the room with each other. I've also discovered dying seems a lot less about…
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Post Vaccine Problems?
Hi, everyone! I am assuming most of us are fully vaccinated by now? I am experiencing weird, off & on, pain in my right arm. I got the shot in my right arm because of lymph node removal on my left. I was fine at first, then I began to feel sharp pains in my right elbow, shoulder and wrist. Sometimes in my right torso area…
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Why aren’t questions going to Questions?
I hope this question goes to where everyone can see it: Where in the brain does consciousness come from? Just a test question.
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I am currently doing maintenance therapy with...
I am currently doing maintenance therapy with Avastin.
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Side Effects | Pain
Severe back and joint pain, which comes and goes.
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Drug or Chemo Therapy | Immunotherapy
I haven't ever done chemo, and hear that this is so much better... and I believe that. But at 48, this is the only time I have ever felt fatigue, chronic pain and mental fog. So, while it could be worse, it is still difficult to navigate.
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SITE ANNOUNCEMENT: WhatNext Community Survey
Hello WhatNext! I wanted to share a community survey that we put together with the help of the team over at Patient Worthy. The survey covers aspects such as what you like best about WhatNext, what could be improved, added, fixed and more. We're also seeking advice from some of our cancer support and patient group partners…
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Oh No | Just Diagnosed
April 27, the day our lives changed. We were told , after my husband woke up from his colonoscopy, that they found a mass in his rectom. We would have to wait for the results of the biopsy, but he could almost guarantee that it was cancer. My husband, Nick, is deaf. He reads lips. Still a little groggy from the procedure,…
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Anatropoloze has anyone having severe joint and stiffness in wrist and hands since taking this medi
Anatropoloze has anyone having severe joint and stiffness in wrist and hands since taking this medi
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Now I have a blind eye
Detached retina turned sour..... they changed the positioning protocol and a bubble appeared that pushed the lens out.... requiring more surgery.... oh brother... now I'm blind in one eye.... poop
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Cat scan lesions
I have a question. On the last cat scan on 12/5 ther were small lesions, with the largest being 10mm. The oncologist says she will do next cat scan on 2/22 on the same day as round 12 of chemo. So, my question. Is, dont they usually keepcdoong chemo until all spots/lesions/nodules are gone? Had 40% reduction on both…
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Am I invisible?
Okay - this is a rant - WHY are my questions never listed on the What Next Digest page? I am serious, they are never there and it is making me feel bad (...of course if this were the worst thing to ever happen to me I will be pretty lucky, lol!) Since Greg's passing I have posted several questions/comments and they have…
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Taxotere
I was given Taxotere, I am now permanently bald. I was not allowed to join the law suit that was advertised on TV. The lawsuit stated that Onocolgist’s were not told that this type of chemo would cause baldness. Someone who was handling the lawsuit came to my home took pictures of my head, help me fill out a 30 or more…
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Dry mouth, lack of taste & Neuropathy...
Dry mouth, lack of taste & Neuropathy
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Decision Point | Am deciding which drugs to take including alternative ones
Started a clinical trial but was not put in arm that used new drug. Am assessing whether to continue standard treatment or drop study and add another drug
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Freaky Friday!...or Friendly Friday?
Wait...no one posted a Thankful Thursday site for us to get together? Well, lets remedy that and try Freaky Friday (what has been freaking you out lately?) or Friendly Friday if you just want to check in and say "Hi." (we love that).
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Something to think about.
Yesterday I posted a question. Well, to be more accurate, I wrote out a question which I thought would be posted here. I got the pop-up that said - Your question has been posted. but it wasn't posted here (where I wrote it out). Instead it appeared on my wall. On my homepage. And, of course, there was no notice, so no one…
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Surgeon comments during needle biopsy?
Did your surgeon/radiologist make any comments about the specimen sample they received during a core biopsy? What did they say? Mine said: -normally, lymph nodes roll around like a marble when trying to insert a needle, but mine was staying put, seemed to be attached to the surface underneath. -something about “I thought…
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Ostomy Bleeding between stoma and abdominal wall
Has anyone experienced bleeding where the stoma attaches to the abdominal wall? Colostomy is almost 8 months out and have never had this issue. Chemo and Avastin have dropped platelets to 50's and nose bleeds as well as bleeding around stoma. Surgeon has cauterized the area 3 times thus far and now another spot has started…
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Thankful Thursday Again. Hope this makes it to the right place. I've never posted before.
Thankful Thursday Again. Hope this makes it to the right place. I've never posted before.
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Thank you LetLifeHappen for the blog posts
In my WhatNext digest email there was notification that LetLifeHappen posted some blogs that were of interest to me. When I chose the Blog menu item on the WhatNext site it did not show me her blogs. I had to search in the people section and go to her page to see them. It was well worth the effort. Is it possible that the…
