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What were the 3 worst shopping issues you had in COVID? Did it change anything in how you do things
start looking for the replacement. Last night my son said, we need yellow mustard. The 3 things we had the most trouble finding was---flour---bread---laundry soap. At WalMart I found a torn- 10# bag of flour, and 2 women began offering me money for it. They stopped at $15. I had to have that because I couldn't find any…
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Dealing with unsupportive family
My in-laws are making me feel that I am being dramatic in wanting to prevent myself from catching small colds, viruses. Non are vaccinated and think that since I'm not in treatment that it can't "really be all that bad". I have a PET scan on Friday and I don't think they understand the fear that I am going through. They…
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Had My Second Shot- Moderna
I had my second shot today. My arm is super sore, but I keep watching to make sure it's not reddening or swelling. I keep moving it to keep range of motion and not let it get too bad. I don't feel like I am run over by a freight train. Most people I have known have said it usually starts about 3-4 hours after the shot if…
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Fuscia Friday
What’s happening?
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Tuesday's question - am I the only covid slob?
We are vaccinated and my husband's son, who has been working in Ukraine for the past two years is coming to visit with his family. I am very excited to see them because there are three grandchildren coming, ages 10,8, and 7. - which I plan to HUG! So...I am digging out my spare bedroom which became a total mess during the…
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What Feels Scariest?
Scans? Oncologist follow-ups? Other medical doctor follow-ups? Right now, it all feels so nerve-wracking to me. I just want to go back to blissful ignorance when I could convince myself I was just being a hypochondriac and worrying about things that I felt or thought. Around the time of 9/11 (THE 9/11), my husband was…
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Has anyone had a doctor claim your positive pet scan as a false-positive, without doing biopsy?
I have had nearly every symptom of lymphoma since last summer & have been fighting with doctors to find out what’s going on. I finally had a PET scan that lit up my cervical & axillary nodes between 3.5 to 5 SUVmax with a liver suv 3.5. so I thought I was finally getting a biopsy, but nope! Hematologist walks in and says,…
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a little scary...
Today I had a routine check-up with my radio-oncologist. She found a small nodule (word she used, for lack of better word), in my right breast. My cancer was in the left breast, but I had reduction surgery on the right in Nov. My breasts are very dense, but I was able to feel what she felt, and it seemed to be rather…
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Update
Okay, I'm fine. (!!!) It turned out to be exactly what my doctor suspected, a small nodule of fat necrosis that should dissipate on it's own. I had a bad moment when I arrived because I thought it was going to be a simple, quick thing. But the receptionist said it would be about two hours and my husband would have to wait…
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Fain Friday
Fain: happy; inclined; pleased Any plans for this weekend (if you still demarcate the week that way)? Feel free to mention any other topic!
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Thankful Thursday
Hi, everyone. I am especially thankful these days and it encouraged me to start a Thankful Thursday post. About ten days ago my husband suffered a brain bleed. He was in ICU for several days. He has some residual issues but, in general, seems to be doing well. We're taking it one day at a time. So I'm thankful my husband's…
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Anybody else having trouble with Chrome signing you out of WN , citing security?
It pitts me off. I have this problem here and with Country Doctor on Wordpress. I do not have trouble with other sites at all. I am talking about Instagram, bulk food companies-(COVID)- and other commercial enterprises. O My DAWG---these companies associated with Chrome and Google won't let me buy, unless I give them my…
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Couldn't post on the ? of getting WN-so here I am
Now, I get something from WhatNext about every 3 months. I wonder if it is because I'm a head cancer patient, as Greg was also a head cancer patient. Most people have other types of cancers. I guess I'm spoiled, but it would really be nice to get-whatever you call it-like this at least once a month.
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Can you put a price on an extended period of time added to your life?
I didn't think so either, but then we got the hospital bill for my laryngectomy surgery. So, the best I can add it up so far, we are pushing $500K and the number it says I owe is 164,000.00. First things first, I wonder if they take checks? I'll just fire one off to them and take care of that. Second, the "extended period…
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How good are you at playing "bite your tongue" when someone says something about your cancer?
I'm talking about people that are close to you, like an in-law, brother, sister, mom, dad, but one of those that you really don't want to release the flying monkeys on? My MIL is very opinionated and she tends to push her opinions on me about my cancer, which she knows nothing about but pretends to be a world-renowned…
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Decision Point | What I should do.
Not sure if I should have surgery or radiation?
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Thankful Thursday
So, what does everyone feel thankful for today?
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Oh No | Cancer has spread/Metastasized
His cancer has spread to his adrenal glands and he is scheduled for surgery mid May. We cannot get him his surgery until he pays off the 150,000 dollar balance from February through now. We will make it happen but then what comes next?
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Oh No | Health insurance issue
How is this possible!!!!??? $35,000 for a months supply of medication! These new medications are meant to replace chemotherapy. Tagrisso and Tabrecta. He has Tri-Care insurance as he is a retired Marine but it seems that stage 3/4 are not covered? He makes great money but it is still depleting rapidly with all of the…
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Drug or Chemo Therapy | Hormone therapy
Have been taking Anastrozole since 11/2020; so far so good.
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No longer have normal erections since my oper...
No longer have normal erections since my operation.
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Go To Tuesday
A go to song that always makes you think of someone in particular? Or one that brings back a specific memory?
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Off the Rails
Okay, this site has gone completely off the rails. I feel certain it is because of a comment that was read and received in a manner that was not at all what was intended. Nonetheless, we are where we are. I feel that my presence here is more toxic than the most offensive chemotherapy. I am not saying this because I am hurt…
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Something light
Gosh, there is so much going on! I really think we all have CTS (current traumatic stress syndrome!) with all the shut downs and failing business going on around us and it's the holidays, for darn sakes! I am heartbroken to miss seeing my grandchildren, they are growing every minute and we can't get this time back. But it…
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Monday Musing
Let’s see if we can’t get some conversation going here. What three words best describe you? I can start... Caring Stubborn Empath
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Go To Tuesday
I don't think I am the Tuesday floater, but I wanted to try to get some conversation going. You don't have to answer all (or any) of these, but just something to think about. Just something to perk up our minds to think of positive things. I think we have all developed some "go to" activities that we enjoy when we can't…
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Staying Safe- What is it really?
In another thread I mentioned that our county has relaxed their mask mandate. I did say I hope it is a success because it will make it a little less unpleasant to be outside during the hot humid summer that is approaching. Heck, for several days last week, it had already arrived. So if it's been that hot in early April-…
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Long Time Gone
I have been a hermit like so many others for the past year. It's nice to be back. It has been a little over a year since my diagnosis and my surgery. I have an appointment with my surgeon next month to discuss whether to continue with a prosthetic or get reconstruction. I am doing okay without having the real thing, but…
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SITE ANNOUNCEMENT: Content Ideas
Hello WhatNext! I wanted to pop in again and introduce myself for those that may not have been on in a while. My name is Colby and I'm the managing editor of a rare disease news website called Patient Worthy. I have stepped in to help with spam and moderating duties. I wanted to say a special thank you to LegalJen and…
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Wondering Wednesday
I have been wondering about some of the people who used to be quite active on the site. Has anyone heard from @JaneA?@Po18guy?@Lynne-I-Am?@Jayne? I know there used to be so many active members here. I miss the information and the chit chat.
