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Procedure or Surgery | Surgery
Nipple sparing mastectomy, pre-mastectomy & reconstruction. This was essentially a mastectomy before the "real" mastectomy.
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Radiation | External radiation
It was easy and painless.
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Drug or Chemo Therapy | Chemotherapy
It was definitely a life-altering experience.
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Procedure or Surgery | Lumpectomy
I was still numb and outside myself and not really getting what was happening to me.
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Decision Point | To remove all or part of breast.
I was unsure of whats to come.
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Oh No | Just Diagnosed
I was Numb.
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Leiyomysarcoma
Hello everyone! Anyone here have stage 4b uterine leiyomysarcoma? I'm almost six years in, metastasized to my lungs and most recently my liver, no new treatment available. Just wondering how you are handling everything. In February my oncologist basically sent me home, with no hope, kinda like, "nice knowing you but…
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Fear CAN Be Funny
So, I just had the worst sinking feeling when I left work today. I went to drop the mail in our downstairs mail slot at work and suddenly discovered that Oops, my Foob is NOT THERE. So I did what anyone with a FOOB might do. I thought I was going to throw up. I thought "Where the heck could it be?" I didn't remember not…
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St. John’s Wort
I read that St. John’s Wort has phytoestrogens in it. I am 8 years out from Estrogen positive invasive ducal breast cancer. Is it safe to use?
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September book question: what are you reading?
Hi! It’s the first of the month. What books are you reading? Recommend? Thanks!
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Oh No | Problem with doctor
I have been diagnosed with a very aggressive breast cancer. My tumor is not connected to anything, and will travel at will. Breast cancer is not in either side of my family, but other types of cancer is prevalent. So now they want to also remove my ovaries and fallopian tubes. And then keep checking on my pancreas. I have…
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Other Care | Palliative care
I work for a wonderful company that gave me 26 weeks off with pay. I have ran all my "keep my job" time off that there is available, and have started back to work part time. My new FEAR is making my bills each month, as I am single and have always worked hard to save and look forward to retirement...that's way down the…
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Decision Point | LEGAL SUIT
Please if anyone reads this and would like to help. I think that I must file a lawsuit if only to save others from the pain and suffering that I was/am still subjected to. I have read many others experience with breast cancer, and have not ever read that this is a common practice of doctors. I fear that I now have PTSD. IT…
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Oh No | Triple negative breast cancer
I have been diagnosed with a very aggressive breast cancer. My tumor is not connected to anything, and will travel at will. Breast cancer is not in either side of my family, but other types of cancer is prevalent. So now they want to also remove my ovaries and fallopian tubes. And then keep checking on my pancreas. I have…
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An excellent article
This debunks the “be positive” mantra often still given to people diagnosed with a cancer:…
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THAT is the question!
The question is; Where can we find the questions? I know we have all had our frustrations with this site since Greg left the helm, but I honestly think it is almost back to being the WN we have come depend upon. The notifications are back, the Digest announcements are back, we are not getting spam (that I have seen?) I…
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Procedure or Surgery | Mastectomy
Recovery wasn’t horrible- but I wish someone had told me your nerves wake up about two weeks later and that hurts!
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Clouds and Silver Linings
I got my custom prosthetic last week. I can wear a regular bra again. It definitely fits better against my body. It seems to move around a lot though. I am constantly having to adjust. I don't like being that weird person who seems like they are always adjusting body parts. I feel like I have to adjust my clothes and check…
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Drug or Chemo Therapy | Chemotherapy
haven't started yet
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Celebration | Anniversary
I don't really feel like "celebrating" but it is the one year anniversary since my mastectomy. Today is a cruddy day for me. I woke up early with ridiculous phantom pains on my left side in the breast area. I was having a dream about my surgeon and kept hearing her voice and the voice of her nurse. It wasn't until I popped…
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Oh No | Just Diagnosed
Total shock
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Why did my Dr. stopped treatment
I was asked if I wanted to try an every 6 week double treatment instead of the 3 week single treatment. The double I felt was killing me. She sternly said let’s just stop treatment all together. I don’t understand why she just didn’t allow me the every 3 week treatment as it had shrunk my lung tumor and shrunk the two…
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Outlived Usefulness
It's obvious this site is never going to be what it was before Greg's passing. He was a kind soul who devoted a lot of time to this site to make it work as we all liked. We all miss him very much and I wish we were strong enough to make this site work, but so many left when he passed and now it seems all that happens is…
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TRODELVY
Does anyone have any specific info about the above drug which is targeted for TNBC breast cancer. I am a two time survivor. I have not logged in here for quite some time. My good friend struggled with breast caner almost at the same time I did. Unfortunately hers has come back and her oncologist is recommending Trodelvy.…
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Dropped On Our Heads
So have we been left to languish again? Or is everyone just enjoying summer and the ability to roam the earth freely again?
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Side Effects | neuropathy, neutropenia, digestive system, hair loss, mouth sores, chemo brain
I had many...can't believe I have to do this again after only 18 months.
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Drug or Chemo Therapy | Chemotherapy
Couldn't tolerate Adriamycin/Cytoxin, was hospitalized; went to Taxol, that was okay caused neutropenia and neuropathy; had additional CMF. Now have to have it again due to recurrence...Trodelvy.
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Radiation | External radiation
it was okay; ended up with burns on my skin.
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Procedure or Surgery | Mastectomy
I had mastectomy as first step as I originally started with chemo but could not tolerate it, ended up in hospital, doctor decided to do surgery first and then chemo. I went through surgery fine, was told "the surgeon got all the cancer" Of course I was very happy to hear that! I did follow up with additional chemo which I…
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Oh No | Just Diagnosed
My husband had a cold -- or so he thought. Went to urgent care. Co-worker called me & said he didn't look good. Face coloring very pale, walking funny, almost walked into a wall. Back to urgent care -- they referred us to ER. Vitals & blood drawn. ER nurse practitioner said they would take x-rays & a ultrasound of the…
