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THAT is the question!
The question is; Where can we find the questions? I know we have all had our frustrations with this site since Greg left the helm, but I honestly think it is almost back to being the WN we have come depend upon. The notifications are back, the Digest announcements are back, we are not getting spam (that I have seen?) I…
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Procedure or Surgery | Mastectomy
Recovery wasn’t horrible- but I wish someone had told me your nerves wake up about two weeks later and that hurts!
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Clouds and Silver Linings
I got my custom prosthetic last week. I can wear a regular bra again. It definitely fits better against my body. It seems to move around a lot though. I am constantly having to adjust. I don't like being that weird person who seems like they are always adjusting body parts. I feel like I have to adjust my clothes and check…
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Drug or Chemo Therapy | Chemotherapy
haven't started yet
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Celebration | Anniversary
I don't really feel like "celebrating" but it is the one year anniversary since my mastectomy. Today is a cruddy day for me. I woke up early with ridiculous phantom pains on my left side in the breast area. I was having a dream about my surgeon and kept hearing her voice and the voice of her nurse. It wasn't until I popped…
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Oh No | Just Diagnosed
Total shock
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Why did my Dr. stopped treatment
I was asked if I wanted to try an every 6 week double treatment instead of the 3 week single treatment. The double I felt was killing me. She sternly said let’s just stop treatment all together. I don’t understand why she just didn’t allow me the every 3 week treatment as it had shrunk my lung tumor and shrunk the two…
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Outlived Usefulness
It's obvious this site is never going to be what it was before Greg's passing. He was a kind soul who devoted a lot of time to this site to make it work as we all liked. We all miss him very much and I wish we were strong enough to make this site work, but so many left when he passed and now it seems all that happens is…
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TRODELVY
Does anyone have any specific info about the above drug which is targeted for TNBC breast cancer. I am a two time survivor. I have not logged in here for quite some time. My good friend struggled with breast caner almost at the same time I did. Unfortunately hers has come back and her oncologist is recommending Trodelvy.…
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Dropped On Our Heads
So have we been left to languish again? Or is everyone just enjoying summer and the ability to roam the earth freely again?
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Side Effects | neuropathy, neutropenia, digestive system, hair loss, mouth sores, chemo brain
I had many...can't believe I have to do this again after only 18 months.
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Drug or Chemo Therapy | Chemotherapy
Couldn't tolerate Adriamycin/Cytoxin, was hospitalized; went to Taxol, that was okay caused neutropenia and neuropathy; had additional CMF. Now have to have it again due to recurrence...Trodelvy.
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Radiation | External radiation
it was okay; ended up with burns on my skin.
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Procedure or Surgery | Mastectomy
I had mastectomy as first step as I originally started with chemo but could not tolerate it, ended up in hospital, doctor decided to do surgery first and then chemo. I went through surgery fine, was told "the surgeon got all the cancer" Of course I was very happy to hear that! I did follow up with additional chemo which I…
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Oh No | Just Diagnosed
My husband had a cold -- or so he thought. Went to urgent care. Co-worker called me & said he didn't look good. Face coloring very pale, walking funny, almost walked into a wall. Back to urgent care -- they referred us to ER. Vitals & blood drawn. ER nurse practitioner said they would take x-rays & a ultrasound of the…
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Clinical Trial | CAR-T November 2018
2019 in remission
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Anyone out there?
It's pretty quiet these last few days. Just checking in to say hello.
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Support for survivors with ongoing medical issues
I wasn't prepared for what post-treatment would be like. In the 12 months after I finished my consolidation treatment, I broke both of my ankles at separate times. I had also just split from my wife, so I was living alone and felt that my cancer never really went away, when it did.
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Side Effects | Fatigue (tiredness)
Post chemotherapy, I struggled with fatigue and overall coordination
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Drug or Chemo Therapy | Chemotherapy
I'm back on Pomalyst 21 day regimen after one year of undetectable Myeloma. Still on Darzalex immunotherapy infusion once a month. It's getting harder to fight back but I'm fighting. I've been in treatment for 5 years since diagnosis in 2016. Sometimes I think the hardest part of treatment is going at it alone. But then I…
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my healthy sister started this wild cancer ri...
my healthy sister started this wild cancer ride on May 1 of this year with blood in her urine. The doctor's say it's a high risk cancer and they have begun treating it with high risk chemotherapy. She had her ureter and 1 kidney removed and has had 1 round of chemo. They will need to adjust her chemo cocktail so it's not…
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Covid vaccine and mammograms?
From what I have been reading, it seems one unexpected side effect of the covid vaccine is swollen lymph nodes in the vaccinated arm. The kind that would prompt your doctor, if seen on a mammogram, to order a biopsy. It is being recommended that we women schedule our mammograms at least six weeks after receiving the second…
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sidelined
I will be reading frequently but not posting often for the rest of this week or maybe the next few weeks. I fell today at lunch and injured my left wrist (thankfully not my right since I am right handed). I thought it was just sprained (and that may still be the case) so I tried urgent care. Let me tell you, Urgent Care in…
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Loss | Body part/function
Dealing with long-term side effects: neuropathy, pain, fatigue, hair loss and regrowth, nail damage and pain, cognitive deficits from chemo
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Celebration | Breakthrough
Finished chemo 3/31/21
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Drug or Chemo Therapy | Chemotherapy
R-CHOP
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Bone mets
Has anyone had it spread to the bones significantly and had radium 223 or if not what was the treatment. You received. Anyone know how long you can live with bone nets
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Earth Angels
I will resume my earth angels when I can type better. There are many of you!!
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Who’s On First-2021 edition
A friend shared with me. I’m going to put in another answer so it gets the who’s thing.
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Celebration | Remission
It's been three years since my diagnosis, two years since my last two breast surgeries, and two years since I completed Chemo. I am Cancer Free!
