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Thankful Thursday
Hi, everyone! Its been a long time. How about a Thankful Thursday post?
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Oh No | Had to stop the trial.
My wife had a 3mm tumor show up in her bladder-----probably coming in thru the bladder wall from the peritoneum. (she has peritoneal cancer technically but is same as ovarian). This new tumor meant we had to stop the trial, but we are staying on the 2 same drugs, just not On-Trial. Our doc has another trial in mind,…
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Bone meds?
I am curious about how many of you are currently taking medication to improve your bone density? And how is that working for you?
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Other Care | radiation and chemo surgery chemo now immunotherapy
on immunotherapy after 2 years of treatment
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Symptom Management | Physical therapy
Very helpful. Gave me techniques to manage my severe fatigue.
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Drug or Chemo Therapy | Chemotherapy
This was my second round of TC chemo, after a recurrence 13 years post initial diagnosis. I actually think it was easier this time, and attribute that to exercise and knowing what to expect
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Procedure or Surgery | Breast Reconstruction (Implant)
It took the full six weeks recovery and longer to feel truly comfortable.
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Procedure or Surgery | Surgery
Nipple sparing mastectomy, pre-mastectomy & reconstruction. This was essentially a mastectomy before the "real" mastectomy.
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Radiation | External radiation
It was easy and painless.
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Drug or Chemo Therapy | Chemotherapy
It was definitely a life-altering experience.
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Procedure or Surgery | Lumpectomy
I was still numb and outside myself and not really getting what was happening to me.
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Decision Point | To remove all or part of breast.
I was unsure of whats to come.
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Oh No | Just Diagnosed
I was Numb.
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Leiyomysarcoma
Hello everyone! Anyone here have stage 4b uterine leiyomysarcoma? I'm almost six years in, metastasized to my lungs and most recently my liver, no new treatment available. Just wondering how you are handling everything. In February my oncologist basically sent me home, with no hope, kinda like, "nice knowing you but…
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Fear CAN Be Funny
So, I just had the worst sinking feeling when I left work today. I went to drop the mail in our downstairs mail slot at work and suddenly discovered that Oops, my Foob is NOT THERE. So I did what anyone with a FOOB might do. I thought I was going to throw up. I thought "Where the heck could it be?" I didn't remember not…
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St. John’s Wort
I read that St. John’s Wort has phytoestrogens in it. I am 8 years out from Estrogen positive invasive ducal breast cancer. Is it safe to use?
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September book question: what are you reading?
Hi! It’s the first of the month. What books are you reading? Recommend? Thanks!
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Oh No | Problem with doctor
I have been diagnosed with a very aggressive breast cancer. My tumor is not connected to anything, and will travel at will. Breast cancer is not in either side of my family, but other types of cancer is prevalent. So now they want to also remove my ovaries and fallopian tubes. And then keep checking on my pancreas. I have…
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Other Care | Palliative care
I work for a wonderful company that gave me 26 weeks off with pay. I have ran all my "keep my job" time off that there is available, and have started back to work part time. My new FEAR is making my bills each month, as I am single and have always worked hard to save and look forward to retirement...that's way down the…
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Decision Point | LEGAL SUIT
Please if anyone reads this and would like to help. I think that I must file a lawsuit if only to save others from the pain and suffering that I was/am still subjected to. I have read many others experience with breast cancer, and have not ever read that this is a common practice of doctors. I fear that I now have PTSD. IT…
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Oh No | Triple negative breast cancer
I have been diagnosed with a very aggressive breast cancer. My tumor is not connected to anything, and will travel at will. Breast cancer is not in either side of my family, but other types of cancer is prevalent. So now they want to also remove my ovaries and fallopian tubes. And then keep checking on my pancreas. I have…
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An excellent article
This debunks the “be positive” mantra often still given to people diagnosed with a cancer:…
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THAT is the question!
The question is; Where can we find the questions? I know we have all had our frustrations with this site since Greg left the helm, but I honestly think it is almost back to being the WN we have come depend upon. The notifications are back, the Digest announcements are back, we are not getting spam (that I have seen?) I…
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Procedure or Surgery | Mastectomy
Recovery wasn’t horrible- but I wish someone had told me your nerves wake up about two weeks later and that hurts!
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Clouds and Silver Linings
I got my custom prosthetic last week. I can wear a regular bra again. It definitely fits better against my body. It seems to move around a lot though. I am constantly having to adjust. I don't like being that weird person who seems like they are always adjusting body parts. I feel like I have to adjust my clothes and check…
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Drug or Chemo Therapy | Chemotherapy
haven't started yet
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Celebration | Anniversary
I don't really feel like "celebrating" but it is the one year anniversary since my mastectomy. Today is a cruddy day for me. I woke up early with ridiculous phantom pains on my left side in the breast area. I was having a dream about my surgeon and kept hearing her voice and the voice of her nurse. It wasn't until I popped…
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Oh No | Just Diagnosed
Total shock
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Why did my Dr. stopped treatment
I was asked if I wanted to try an every 6 week double treatment instead of the 3 week single treatment. The double I felt was killing me. She sternly said let’s just stop treatment all together. I don’t understand why she just didn’t allow me the every 3 week treatment as it had shrunk my lung tumor and shrunk the two…
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Outlived Usefulness
It's obvious this site is never going to be what it was before Greg's passing. He was a kind soul who devoted a lot of time to this site to make it work as we all liked. We all miss him very much and I wish we were strong enough to make this site work, but so many left when he passed and now it seems all that happens is…
