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Lingering side effects at 8yrs post treatment
Good morning, I still have bad Neuropathy on the right side of my head from my scalp to mt neck and throat. I have numbness and tingling that at times is quite distressing. Spasms in my throat and upper esophagus that causes me to vomit.. I sometimes think my doctors have dismissed me because my complains are made light of…
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enduring radiation therapy
Had head/neck surgery for squamous cell cancer in neck lymph nodes. Now 15 days into radiation therapy. Really awful, not sure I can make the full 30 days. Nausea, sores in mouth and throat. I've endured radiation for breast cancer and 2 chemo plus Car-t for lymphoma but this is really rough. Any advice greatly appreciated!
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Oh No | Cancer is back/Recurred
Ugh....11 months after remission, scan shows nodes in my neck and back look active.
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Procedure or Surgery | Surgery
Had a radical right neck dissection, laryngectomy and tonsillectomy
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Oh No | Just Diagnosed
Was diagnosed with Squamous Cell Cancer on January 3. Started on the right tonsil and metastasized to the lymph nodes
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Drug or Chemo Therapy | Chemotherapy
7 rounds of chemo along with 35 rounds of radiation.
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When will it stop?
I finished all my treatments both chemotherapy and radiation 6 weeks ago and my burns have healed but I still feel burning on my neck. How long does the radiation stay in my neck and when will it stop burning?
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Radiation | External radiation
I finished radiation 6 weeks ago and still feel the burning on my neck where my burns were.
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Procedure or Surgery | Surgery
Replaced jaw bone with leg bone. Took out lymph nodes. Feeding tube and trach.
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Oh No | Just Diagnosed
April 2017 in right jaw bone.
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Oh No | Cancer is back/Recurred
July 2021 biopsy shows three places in lining of mouth with cancer.
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Oh No | Not knowing that a bum in the head was the beginning on cancer
When my husband found the 1st site on the top of his head, he had thought that he had hit it and not remembered, not knowing that it was the beginning of cancer. So until it had started growing, he didn’t see a Dr to have it checked out.
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Knowing what you do now after having been through it all (or some of it) with cancer...
What would you have liked to have known about it all when you started? I have found a couple of things that I sure thought I would have been told about right up front.
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Daiichi Sankyo Phase 1 Study of DS-1062a
My wife is about to start treatments in this study for her Stage 4 Adenocarcinoma lung cancer. Anyone else in the study who can contribute experiences / comments?
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Naturopathic Medicine
Curious on people’s thoughts/experiences with naturopathic and integrative oncology. I’m wondering what has worked for people and what has not so much. Herbs vs. acupuncture, hyperbaric oxygen, or any others. I have not decided to do chemo yet, but I know based on my diagnosis I will at some point. Looking for input with…
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Have you had weight gain or loss issues during your cancer treatments?
Some of us lose weight while others gain. Our blog post today has some information about how to maintain a healthy weight. Read the article here>> http://bit.ly/2SVYTmm
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This week is Oral, Head, and Neck Cancer Awareness Week
As you might guess, this one is on top of my totem pole. Oral, head and neck cancer refers to cancers that arise in the mouth, voice box, throat, sinuses, nasal cavity or salivary glands. Worldwide in 2020, there will be more than 650,000 new cases of oral, head and neck cancer diagnosed and approximately 330,000 deaths…
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April cancer awareness diagnoses are: Head and Neck Cancer, Esophageal Cancer, and Testicular Cancer
Our blog post today has some information about each with some resources you can check out. Take a look at the article here>> https://bit.ly/2UWE7FC and please use the social media share buttons at the bottom of the article to share! Thank you for your support!! The WhatNext Team
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Is it just me or does this happen to everyone when talking to a friend about your cancer diagnosis?
Everyone seems to insist on telling me about all of their relatives that have died from cancer. What kind of cancer it was, how long they fought it and all the grueling details about how it wasn't the cancer that killed them it was the chemo or radiation. Does everyone get this? I really don't understand how people think…
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When you first got your diagnosis, could you feel or see your cancer getting worse while you waited?
My latest diagnosis started almost a year ago. I knew there was something going on in my neck and I asked for it to be scoped several times. Each time there was nothing there, but the symptoms have progressively gotten worse. Just in the last week, the pain that I have has doubled or even tripled. I had no pain in the…
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I have had some hyperbaric oxygen treatments and now I've developed this condition.
Has anyone had hyperopia?
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For the Head and Neck Cancer patients on the site:
Join us for North American HPV Awareness Week, January 27-31, 2020! The week is dedicated to raising awareness of #HPV related #cancer and promoting the prevention potential of the HPV vaccine. Register for free daily webinars or learn more! #USvsHPV http://bit.ly/2SEDH3e
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For those of us that have a hard time swallowing and might choke
Any of us can choke so this is good to know, but those of us with damage to our throat, esophagus, etc from radiation know this problem all too well. I learned this today: "The international symbol for choking is putting your hands around your neck as if you are choking yourself." In all my years I've never heard this, but…
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Loss | Body part/function
I’ve struggled, like many, with swallowing issues, tongue changes, taste changes and extreme dry mouth. I developed ORN of radiated jaw and had replacement surgery in July 2017 and spent most of 2019 in expensive dental procedures. Loss of my unguarded self and depression has been great with me.
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Procedure or Surgery | Removal of the Squamous Cell Sarcinoma on top of head
He started getting migraines after the squamous surgery. He had to takeoff an additional two days of work due to the pain and biopsy