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Synonym Saturday
I feel pretty sure I am not the only one who uses alternate words when I have doubts about spelling. Obviously some words have no synonym, so we use their definition. Yes, the internet has dictionaries and we can look up words. Yes, spell check will catch most words. Sometimes though, if you use a real word, but use the…
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Oh No | Just Diagnosed
Starting treatment in 2 weeks. Not sure what to expect.
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Rash after Covid-19 vaccination
Has anyone experienced rash/itching after getting their Covid-19 vaccine (first or second dose)? especially those who have undergone chemotherapy/radiation within the past year? I broke out in a rash after my first dose. At first, my oncodermatologist thought it might be due to an autoimmune disorder, but biopsy and blood…
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Bilateral Mastectomy?
Got results IDC ER/PR + HER2 - has returned on same breast 2 years later after chemo and radiation. I made the decision to stop taking Tomoxofin because of side effects and my oncologist thinks this is why it has returned. I am deciding on whether to have a bilateral mastectomy or only have it on affected breast. Looking…
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WhatNext and Rare Patient Voice partnership
We get emails from time to time asking if this company that sent an email about participating in surveys and getting paid is really us or if it's a scammer. Yes, it's really us. We have been partners for over 6 years, in that length of time more than 1 million dollars has been paid out to WhatNext members for participating…
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Hormone therapy hair loss
Anyone find any good solution (shampoo?) to help with hair loss/thinning? 1.5+ years on hormone blocker and my "new" hair is getting visibly thinner.
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Late Wednesday Question
I love music and I love messages. Did any of you have a favorite song that sustained you along your journey? A song that gave you hope? One that made you feel strong? I think I have said before that one of my favorite songs at the beginning of this journey was "Oh My Soul" by Casting Crowns. It was literally one of the…
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Welcoming Wednesday
I always welcome Wednesday. It’s half way through the work week but that’s not what I want to have for the focus here. Tell us about your providers who are welcoming. Is it their demeanor? Their office space? Their staff? What makes it/them welcoming? We focus so much on the hard parts our journey sometimes, that we let go…
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Tuesday's question - Cats, anyone?
Some of us have cats. And some of us have dogs, birds, iguanas, turtles...? My question is; Do they play a role in your well-being? I have long thought of cats as being natural empaths. My cat responds to a sniffle. If I weep he is on my lap in three seconds flat. I had a dog who would come from anywhere in the house and…
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Drug or Chemo Therapy | Targeted therapy
Targeted therapy to Keytruda to Carboplatin, Alimta, remission back to targeted therapy, and now Chemo Carboplatin, Alimta again
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Mindful Monday
"Sometimes you just need to talk about something, not to get sympathy or help, but just to kill its power by allowing the truth of things to hit the air." - Karen Salmansohn I think a lot of us come here just to let our troubles hit the air. It's very powerful just to let whatever swirls in your troubles out so you can…
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Hi, WhatNexters, how’s everyone doing?
Hi, all. We want to keep this site active. So, longtime friends or newcomers, please let us know how you’re doing. Anything good or anything you need help with.
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Renal Cell Carcinoma
I've been sitting back, praying, and watching as some of our members have returned at least for a while. It was good to see Carool, Teachertina, Molly72, MarcieB, legaljen1969, Bug, beachbum5817, Dltmoll, Horselady46, KriddleRN, MLT, Serenity Saturday, Lindy, Child of God 4570, and Pauline J. If I've missed anyone I…
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Drug or Chemo Therapy | Chemotherapy
I’m one week past my second treatment. I feel very fortunate that i have tolerated it quite well thus far. Very tired
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Oh No | Just Diagnosed
I had a very strong feeling that I had cancer. The tumors were easy to feel but similar to other breast issues I'd had before that were nothing. Not this time.
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Decision Point | I do not want chemo, rad, or hormone therapy. I need to find others who have chosen
Anyone doing more natural methods? Not interested in chemo, rad, or AIs at all.
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Serenity Saturday
“Peace doesn’t mean that you will not have problems. Peace means that your problems will not have you.”- Tony Evans What a great quote. It is sometimes easier said than done to practice this in our lives. I think it's very important to find moments of peace and serenity in our cancer journey. Sometimes the worry overwhelms…
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Does anyone know of cancer patient supports near Eagles Mere, Pennsylvania?
I'm pretty sure my brother (who has Alzheimers) and my sister-in-law (who's undergoing chemo) could really use some support. I'm up in Boston and work full time so I can't help them until April break. Thank you ❤️
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Decision Point | Drs told me that the medications were not helping me and they didn't have anything
I was devastated! I ended up contacting Hospice.
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Asking for Support for a Little One
I don't know if anyone here is on Facebook or knows anything about a little girl in Spartanburg named Riley Faith. She is 4 years old, about to turn 5. She has a rare cancer- adrenocortical carcinoma. She has had the cancer for a little under a year now and has been through so much. Her grandmother, her Mimi, had posted on…
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Sense of Purpose
I appreciate all of you so much. I know I really relied upon your wisdom in the early days of my diagnosis and just after surgery. There were quite a few people who joined around the same time and so many seem to have fallen away. I know I was very fortunate to have had a pretty good prognosis and a relatively short course…
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Oh No | Problem with doctor
Has determined my positive PET scan to be a false positive without doing a biopsy
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Oh No | Just Diagnosed
As I was getting sonogram, the hotshot radiologist so arrogantly announced, “Well, I have good news and bad news. Good news is you got your mammogram, the bad news is you have cancer.” Just like that. Heartless. I was so shocked I couldn’t respond. Left the appointment and cried all the way home.
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WhatNext- That's a Great Question
Many people have been on this forum for years. We all reach forks in the road where things change. We get our diagnosis. We go into remission. We have a recurrence. We have special life celebrations or trials. I think we all know that a big fork in the road was the loss of Greg. Some people seem to have decided that since…
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Thoughtful Thursday
Try to be a rainbow in someone else's cloud.- Maya Angelou You know what I really love about this forum? The fact that most of us are rainbows in someone's cloud at any given moment. We are rainbows in and of ourselves, yet we all have specific thoughts, gifts and talents that come together to make the whole rainbow…
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Outpatient surgery. Sentinel lymph nodes (2) ...
Outpatient surgery. Sentinel lymph nodes (2) were negative.
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Procedure or Surgery | Lumpectomy
2 sentinel lymph nodes negative.
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I just received my CT Scan results...no progr...
I just received my CT Scan results...no progression!!
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living longer than 6 months with terrminal lung cancer
Has any one been told they have less than 6 months to live going into a Home Hospice program and then living more than 10 months past entering Hospice?
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will air get in my system with bronchoscopy?
symptomatic chronic lympocytic leukemia /small lymphocytic lymphoma
