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Friend Support
Besides active listening, what will my friend need or want from me as I support her through the journey of chemo. and radiation?
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What's planting?
Okay, Michigan is not really in "planting mode" right now...since doggone SNOW is predicted for tomorrow...but I am going to plant some herb seeds in pots today. I need to do it today because I am *one of those* who plant according to the moon (oh yes, I do!) Once a neighbor and I both rototilled spaces in our yards for a…
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Another Anastrozole question - leg cramps?
If I stretch my legs, while sleeping, the muscles will sometimes (often) lock up and I have to jump put of bed to try to get them to relax back into place. If it takes a long time I end up with a pretty severe Charlie Horse kind of leg cramp that can bring me to tears. I don't know if this is caused by medication? I would…
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Friday Fuzzle
Fuzzle: A Scots dialect word for just enough liquor to make someone feel slightly intoxicated. So, how’s everyone at almost the start of the weekend?
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COVID Vaccine- Johnson&Johnson One Shot
I heard a news report this morning that they are pausing use of the Johnson & Johnson 1 shot vaccine for the time being because of reports of blood clots after the shot. From the report I have heard, there are 6 reports in over 6 million shots administered, which sounds pretty miniscule BUT it's still a known potentially…
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Synonym Saturday
I feel pretty sure I am not the only one who uses alternate words when I have doubts about spelling. Obviously some words have no synonym, so we use their definition. Yes, the internet has dictionaries and we can look up words. Yes, spell check will catch most words. Sometimes though, if you use a real word, but use the…
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Rash after Covid-19 vaccination
Has anyone experienced rash/itching after getting their Covid-19 vaccine (first or second dose)? especially those who have undergone chemotherapy/radiation within the past year? I broke out in a rash after my first dose. At first, my oncodermatologist thought it might be due to an autoimmune disorder, but biopsy and blood…
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WhatNext and Rare Patient Voice partnership
We get emails from time to time asking if this company that sent an email about participating in surveys and getting paid is really us or if it's a scammer. Yes, it's really us. We have been partners for over 6 years, in that length of time more than 1 million dollars has been paid out to WhatNext members for participating…
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Hormone therapy hair loss
Anyone find any good solution (shampoo?) to help with hair loss/thinning? 1.5+ years on hormone blocker and my "new" hair is getting visibly thinner.
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Late Wednesday Question
I love music and I love messages. Did any of you have a favorite song that sustained you along your journey? A song that gave you hope? One that made you feel strong? I think I have said before that one of my favorite songs at the beginning of this journey was "Oh My Soul" by Casting Crowns. It was literally one of the…
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Tuesday's question - Cats, anyone?
Some of us have cats. And some of us have dogs, birds, iguanas, turtles...? My question is; Do they play a role in your well-being? I have long thought of cats as being natural empaths. My cat responds to a sniffle. If I weep he is on my lap in three seconds flat. I had a dog who would come from anywhere in the house and…
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Mindful Monday
"Sometimes you just need to talk about something, not to get sympathy or help, but just to kill its power by allowing the truth of things to hit the air." - Karen Salmansohn I think a lot of us come here just to let our troubles hit the air. It's very powerful just to let whatever swirls in your troubles out so you can…
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Hi, WhatNexters, how’s everyone doing?
Hi, all. We want to keep this site active. So, longtime friends or newcomers, please let us know how you’re doing. Anything good or anything you need help with.
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Renal Cell Carcinoma
I've been sitting back, praying, and watching as some of our members have returned at least for a while. It was good to see Carool, Teachertina, Molly72, MarcieB, legaljen1969, Bug, beachbum5817, Dltmoll, Horselady46, KriddleRN, MLT, Serenity Saturday, Lindy, Child of God 4570, and Pauline J. If I've missed anyone I…
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Serenity Saturday
“Peace doesn’t mean that you will not have problems. Peace means that your problems will not have you.”- Tony Evans What a great quote. It is sometimes easier said than done to practice this in our lives. I think it's very important to find moments of peace and serenity in our cancer journey. Sometimes the worry overwhelms…
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Does anyone know of cancer patient supports near Eagles Mere, Pennsylvania?
I'm pretty sure my brother (who has Alzheimers) and my sister-in-law (who's undergoing chemo) could really use some support. I'm up in Boston and work full time so I can't help them until April break. Thank you ❤️
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Asking for Support for a Little One
I don't know if anyone here is on Facebook or knows anything about a little girl in Spartanburg named Riley Faith. She is 4 years old, about to turn 5. She has a rare cancer- adrenocortical carcinoma. She has had the cancer for a little under a year now and has been through so much. Her grandmother, her Mimi, had posted on…
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Sense of Purpose
I appreciate all of you so much. I know I really relied upon your wisdom in the early days of my diagnosis and just after surgery. There were quite a few people who joined around the same time and so many seem to have fallen away. I know I was very fortunate to have had a pretty good prognosis and a relatively short course…
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WhatNext- That's a Great Question
Many people have been on this forum for years. We all reach forks in the road where things change. We get our diagnosis. We go into remission. We have a recurrence. We have special life celebrations or trials. I think we all know that a big fork in the road was the loss of Greg. Some people seem to have decided that since…
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Thoughtful Thursday
Try to be a rainbow in someone else's cloud.- Maya Angelou You know what I really love about this forum? The fact that most of us are rainbows in someone's cloud at any given moment. We are rainbows in and of ourselves, yet we all have specific thoughts, gifts and talents that come together to make the whole rainbow…
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will air get in my system with bronchoscopy?
symptomatic chronic lympocytic leukemia /small lymphocytic lymphoma
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Thin, Fine Hair- Loss and Upkeep
I will first say I know I am very fortunate that I did not lose my hair completely. I know that is a whole other situation, and I am not trying to hurt the feelings of anyone who did. Arimidex is starting to do a number on my hair though- thinning, drier, frizzier. I have a lot more shedding than before. I have always had…
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SITE ANNOUNCEMENT: Moderation Update
Hello WhatNext Community, just wanted to pop in and remind everyone that if you have any technical questions about the site, or would like to send any moderation red flags, please send an email to colby @ patientworthy dot com. (Remove the spaces and add the .com when typing in the email address, the spam filter here…
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Looking for House Cleaning resources in Dripping Springs, Texas
Leukemia survivor and Bone Marrow recipient, Jim Luketich needs weekly house cleaning services for small mobile home.
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Looking for House Cleaning resources near Austin Texas
Leukemia and Bone Marrow survivor being released in about 7 days, and our little mobile home is not ready!
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Radiation
I am terrified about receiving Radiation therapy. I read about all the bad side effects. How was your experience?
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Cant Find Actual Diagnosis
I was diagnosed with Zolinger Ellison Syndrome with MEN1 and I am not able to put my diagnosis in?
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Renal Cell Carcinoma
I learned something yesterday from my Oncologist. We were discussing my newly diagnosed lung cancer and biopsy results. It is now suggested that if you have a mammogram almost due and are hoping to get an appointment soon for your vaccine, the priority should be the mammo. I'll explain. My biopsy was done 6 days after…
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Pap smear
I had bi lat mastectomy and hysterectomy. Dr. Told me to check yearly. I moved and the new gyno said i only need every 2 years. I had bad cells and a growth removed as well as hysterectomy. On tamoxifen 9 years. Any thoughts?
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background activity on PET Scan
what does " examination demonstrates only background activity" on a PET Scan mean?
