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Mouth sores from chemotherapy
My sister-in-law's sister has lung cancer. She was diagnosed earlier and had radiation. It has returned and is undergoing chemotherapy. She has mouth sores that are painful. When I had chemotherapy I remember my mouth being tender, but didn't have sores. What are some things that worked for others.
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Radiation enteritis splutions?
Radiation enteritis splutions?
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Cancer has returned
I don't think I can do it again.
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Leaving It In The Past
I wanted to wish my friends here at WhatNext one last good wish for 2020. I plan to stay up to make sure 2020 departs and 2021 arrives safely. This day, though hopeful for a better 2021, has been a hard one to get through for me. On New Year's Eve last year, I was meeting with my radiation and medical oncologists to…
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Not Cancer Related - Happy Holidays
Merry Christmas, Happy Hanukkah, Happy Holidays to everyone! It's a tough year for everyone to one degree or another. I hope everyone has the best holiday possible and can find moments of peace and happiness. Love and hugs to my WhatNext friends.
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Does anyone have ulcerative colitis as a side effect of Keytruda? What are you taking for the UC?
Had to stop Keytruda in July 2018 bec it caused severe ulcerative colitis. The UC is now only in my rectosigmoid area but no better on flex-sig in Nov 2020 than it was in Feb 2020.
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Christmas Music
So to keep things light- or to focus on the season- I was wondering about the favorite songs for certain people. I think we all have favorites and probably lots of different ones. Some of my favorites are O Holy Night (it always brings tears to my eyes when the entire song is done); I'll Be Home for Christmas (mostly one…
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Christmas Miracle
I need one. We are supposed to have our first "Family Christmas" in years with my brother and his family and my parents. Yes, I complain about my family but Thanksgiving went way better than I thought. My mother had to take my father to the hospital today. She thought he was having a stroke, very disoriented and talking…
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SITE ANNOUNCEMENT: New Moderator Introduction
Hello WhatNext community. I wanted to take a moment to introduce myself. My name is Colby and I'm the managing editor at Patient Worthy, a patient-focused news website. In the weeks since Greg's passing, there has been much discussion behind the scenes about the future of WhatNext and how to best ensure that the website…
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Wimped Out
I did something the other day I haven't done in a long time. I was in an exercise class- small group personal training. It was high intensity and I was invited in by a neighbor who goes to my gym. The trainer said it was fine too. So I decided to try it out. I wanted to go all in, full throttle. I just couldn't keep up.…
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Another round of good news
After 9 1/2 years on vemurafenib, I stopped taking it in August 2019. I just had routine follow up scans and blood work and all is still good.
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Chemo drug Abraxane. Who has/ is taking this drug. Side affects
Chemo drug Abraxane. Who has/ is taking this drug. Side affects
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It's been 7 days since I found out I have cancer....No phone call yet from Oncologist Gynecologist..
It's been 7 days since I found out I have cancer....No phone call yet from Oncologist Gynecologist..
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Posted Wrong PIcture
I posted a picture last night about being thankful for the things that don't go well. I didn't mean to post that. I don't really know where it came from, but I deleted it as the status update and will try to delete from the pinboard as well if it showed up there.
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financial assistance for meds and medicare
financial assistance for meds and medicare
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Change of name
How do you change your name?
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Ways of dealing with chemo induced neuropathy
Good morning all, I recently started chemo and one of the hardest side effects I’ve Ben dealing with is severe neuropathy in my feet. I’m going to ask my oncologist about it when I see him today. But I am wondering if you have dealt with this issue what did you find helps. I’ve lost a lot of good nights sleep because of…
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Lynparza
I have had 4 reoccurrence .along with four successful chemo treatments.
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Question on CT Scans for long term Stave IV survivors
Hi everyone, to any the long term survivors on this site, what is the follow up plan for your CT scan schedule post NED? I thought I was having my last one in November but this new Oncologist believes in doing a full 10 years of follow up of scans from the date of my last occurrence. He says this is reasonable given the…
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Coping with Lack of Familial Support
I was wondering if anyone is in the same situation, how have you been able to make it through?
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Greg Pierce
Just thought I would let everyone know, our fearless leader Greg Pierce passed away early this morning surrounded by Family. You don’t need me to tell how remarkable he truly was. He and I became friends back in 2012. I don’t look up to many people but I sure looked up to Greg. Love you buddy!!! Rest Easy...
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Are there any long term survivors here? For 5 10 or 15 years?
Just curious about if any long term survivors were still hanging around here?
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Hackers on whatnext
Anyone else seen this? Last 3 replies to post. https://www.whatnext.com/questions/port-removal--13?utm_campaign=Notify&utm_content=FollowedQuestion&utm_source=sendgrid.com&utm_medium=email&utm_campaign=website
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Thankful Thursday for Thanksgiving
Hi, everyone. It seems like an appropriate time to do a Thankful Thursday. What are you thankful for on this Thanksgiving Day?
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has anyone used marinol for loss of appetite?
has anyone used marinol for loss of appetite?
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Thanksgiving anyone? Everyone?
I will begin by assuming all of us might say "surviving cancer* is at least in the top 10 of our thankfulness list. And even the pandemic cannot take that away. We are thankful!! But, the pandemic is taking away a LOT of our joy for this holiday, isn't it? My family is all out of state, I mean REALLY far away so we never…
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Paclitaxel
Ready to start paclitaxel. Looking for feedback on side affects
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Anyone have an FIN1AX mutation?
I'm trying to find someone knowledgeable with this mutation which was found in my nodules. Also looking to connect with anyone who has/had this mutation. Thanks!
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What to expect when getting taxol/herceptin infusions ?
Hello. I am getting my chemo port installed today and will be starting taxol/herceptin in a week or so. Would like to hear from others who have been through it. Especially side effects-which they had, when they started and how they relieved them (if they could). Thank you.
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Rituxan maintenance
I’m considering stopping the RM treatment. I have prolonged side effects and treatment time is as slow as they can go with added dose of Benadryl. Anyone experiencing same? I’ve had full chemo, am in remission and on maintenance for 2 years, have completed 3 treatments.
