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If you successfully reach the end of treatments...
How often do you go back to your doctor for checkups to monitor if you are having a recurrence? I am not liking the idea of not seeing my doctor every month.
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Do you have to do any of the "leg work" in filing your claims, or does your facility/doctor's office
We have heard from some people that they are being given some what of a run-around in getting their claims filed and are being asked for itemized bills and other documents. How is your claims experience?
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In case you arent aware, do not let your life or health insurance lapse while you are in treatments
You will not be able to get new insurance for several years after treatment ends and then the options are few. I recently had a conversation with a fellow cancer patient who thought she could drop an expensive life policy and pick up a new one with another company. NO.....That would be sort of like waiting to buy…
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Some good words to remember on days that you doubt:
Whenever you find yourself doubting how far you can go, just remember how far you have come. Remember everything you have faced, all the battles you have won, and all the fears you have overcome. Then raise your head up high, and forge ahead. Because these difficult roads, will lead to beautiful destinations. ~ Unknown
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Ruth Ginsburg Health Update - Good News
Did you just hear or read that Supreme Court Justice Ruth Ginsburg has gotten good news after treatment for a tumor on her pancreas? No Evidence of Disease - NED. Greg, I immediately thought of you. In 1999, she had colon cancer. In 2009, she was diagnosed with early stage pancreatic cancer. After a fall in November 2018…
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Changing taste and smells. Not lost, but changed.
Things that are supposed to smell a certain way don't. Things that are supposed to taste a certain way don't. Is this a normal thing? Maybe before I lose it all the way? Anybody got this?
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Have any of you experienced crying with the feeling you cannot stop?
Expanding on Coleman's question about depression and anger; have any of you experienced bouts of just uncontrollable weeping? Not because of pain or anxiety, fear or depression but just a feeling of utter despair that takes over your whole body and mind. This has happened to me. I have to just let it runs it's course and…
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How long can you keep a catheter in before it needs replacement?
They didn't tell me when to come back
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How many of you have drifted off into what you might call depression?
There are days that I feel fine, not to beaten down by treatments and I have a good outlook on life. Followed by a few days of being mad at the world, snapping at everyone, feeling like my life is over and all I'm doing is waiting to die. *Repeat* Does anyone else have this going on? I really don't like the idea of seeing…
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Does the cold weather of Winter time give you problems while dealing with cancer?
The treatments can make our joints stiff and hard to get around and walking on slick surfaces can be dangerous. Our blog post today has some reminders about some of these things that we might not think about when we are dealing with everything else. Take a look at it here >> http://bit.ly/2MZtuNU
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It's national bean day! It almost slipped by me! I happened to see this online, I know some of us ar
Beans are a great source of protein, fiber, carbohydrates, folate, and iron. For #NationalBeanDay, try this 3-ingredient recipe from HNCA's online cookbook! Learn the Recipe >> https://bit.ly/2sQh4AU
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Nauseous reactions to Ninlaro common?
I've been taking Ninlaro for a couple years and recently find I have a reaction 3-5 hours after taking it .. get really nauseous and then ... yuck.
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I have developed shingles due to nerve damage from treatments, they say.
It's painful as anything I've been through so far. Have anyone else had this happen? How long did it last?
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Another 4 weeks of waiting
We finally have a date for surgery, Jan 28th. Another 4 weeks away, this waiting isn't working well with me. I can feel the changes in this thing in my throat and can't stand the thought of it getting bigger before it gets gone. My oncologist assures me that a couple more weeks isn't going to make any difference. The 28th…
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"Hey, that's good to know, do you do kid's birthday partys too"?
What I asked the radiation oncologist today after he got done telling me about the possible carotid artery getting too thin and possibly blowing in two from radiation on my neck for the third time in a lifetime causing me to bleed out. Also, he said the other side effects might be loss of all swallowing and possible…
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some side effects are starting to pile up on me.
The sores in my mouth and some burning on my chest from radiation, and the constant heartburn I guess is from the radiation too. What would you say has been the worst of the side effects from treatments?
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In case you haven't seen a post like this one below, and hopefully haven't fell for it, please don't
This was posted on a Facebook Group by a troll: "I Am Graham lost my wife to cancer two years back Am here to offer emotional or maybe financial support to cancer victims And maybe also make new friends" It's hard to believe, but there are several people answering this troll and offering to talk and "be his friend". Those…
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Does the new year inspire you to get a better attitude about fighting your cancer?
It's easy to let this crap beat you down to the point that you want to give in, but the new year came just in time. I find I have a new resolve to dig in and get my attitude pumped up to ride this thing out to the end of treatments. I hope all of you get a boost too. It's a good time to make a pact with yourself that you…
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breathing stoma
I have stage 3 laryngeal cancer left vocal cord and left false cord; I have had 10 radiation out of 35 and 2 chemo out of 7My Dr scoped me today and is worried about swelling around my wind pipe and is thinking about a possible temp stoma has anyone needed this
