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Lynparza
I have had 4 reoccurrence .along with four successful chemo treatments.
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Question on CT Scans for long term Stave IV survivors
Hi everyone, to any the long term survivors on this site, what is the follow up plan for your CT scan schedule post NED? I thought I was having my last one in November but this new Oncologist believes in doing a full 10 years of follow up of scans from the date of my last occurrence. He says this is reasonable given the…
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Coping with Lack of Familial Support
I was wondering if anyone is in the same situation, how have you been able to make it through?
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Greg Pierce
Just thought I would let everyone know, our fearless leader Greg Pierce passed away early this morning surrounded by Family. You don’t need me to tell how remarkable he truly was. He and I became friends back in 2012. I don’t look up to many people but I sure looked up to Greg. Love you buddy!!! Rest Easy...
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Are there any long term survivors here? For 5 10 or 15 years?
Just curious about if any long term survivors were still hanging around here?
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Hackers on whatnext
Anyone else seen this? Last 3 replies to post. https://www.whatnext.com/questions/port-removal--13?utm_campaign=Notify&utm_content=FollowedQuestion&utm_source=sendgrid.com&utm_medium=email&utm_campaign=website
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Thankful Thursday for Thanksgiving
Hi, everyone. It seems like an appropriate time to do a Thankful Thursday. What are you thankful for on this Thanksgiving Day?
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has anyone used marinol for loss of appetite?
has anyone used marinol for loss of appetite?
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Thanksgiving anyone? Everyone?
I will begin by assuming all of us might say "surviving cancer* is at least in the top 10 of our thankfulness list. And even the pandemic cannot take that away. We are thankful!! But, the pandemic is taking away a LOT of our joy for this holiday, isn't it? My family is all out of state, I mean REALLY far away so we never…
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Paclitaxel
Ready to start paclitaxel. Looking for feedback on side affects
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Anyone have an FIN1AX mutation?
I'm trying to find someone knowledgeable with this mutation which was found in my nodules. Also looking to connect with anyone who has/had this mutation. Thanks!
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What to expect when getting taxol/herceptin infusions ?
Hello. I am getting my chemo port installed today and will be starting taxol/herceptin in a week or so. Would like to hear from others who have been through it. Especially side effects-which they had, when they started and how they relieved them (if they could). Thank you.
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Rituxan maintenance
I’m considering stopping the RM treatment. I have prolonged side effects and treatment time is as slow as they can go with added dose of Benadryl. Anyone experiencing same? I’ve had full chemo, am in remission and on maintenance for 2 years, have completed 3 treatments.
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The Best of Times/The Worst of Times
This past year has been a strange one for all of us. As we end this year with two holidays known for togetherness, thankfulness and hope- I wanted to focus on the random things that have made this year work. I want to focus on the people and the actions that have drawn us back to sanity in the days when we all seem to be…
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The Only Thing Certain is Change
I have been in a job situation where I feel like I am swimming against the tide. It has been that way for about four years. My supervising attorney is 82 and just does not want to retire or admit he is ready to do so. I think the reality of time is setting in on him. He has been so accommodating during my cancer journey.…
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Things have been quiet lately
How is everyone? Since we lost Greg, there hasn't been much activity on the board. Everyone doing OK?
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how do you delete a post you made in a hurry and NOT delete your account and have to start over?
I went to WhatNext Home page and came up with no answer on how to delete. Maybe there is no deleting? I guess you have to be sure you won't regret sharing. They were overly long and I did 2 Updates. It was then that right after my updates I saw the picture of Greg P and learned he had passed away. I had recently started…
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Rheumatoid Arthritis
Has anyone gotten RA? I know Tamoxifen may have caused my arthritis. Still on it for 2.5 years of 10. What did they suggest?
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Greg ?
Last I heard he was in hospital. How's his recovery?
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piqray side effects
piqray side effects
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I am no longer homebound!
The wound care specialist has officially released me from care. I'll be wearing a dry dressing for awhile yet. She said probably I should be healed enough to do without it by Thanksgiving. Thought I'd share my good news. I've come a long way since the end of June and that stupid wound vac!
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Closing In On Year 1 of Diagnosis
Today, I finally had my actual fitting for my post-surgical bra and prosthesis. I found out that my insurance will pay for me to have a custom prosthetic made, so I got scanned and measured for that today. I felt like things are finally moving forward. Next Tuesday is my mammogram and the following Monday a meeting with my…
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Thankful Thursday in Honor of Greg
Hi, everyone. I ran across an old Thankful Thursday post of Greg's. In it he said there is always, always something to be thankful for. Well, I'm still grieving the loss of our dear friend. But, I thought in his honor, how about if we do a Thankful Thursday post? I'm thankful for Greg and all of you. It was a beautiful day…
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Have any of you had side effects that your doctor couldn't get a handle on?
iv had a list of simple to severe that some just haven't been figured out yet. All of us at Whatnext.com are wishing all of you the best!
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Covid
Has anyone had Covid? We have it as Nd I’m Worried as my husband has prostate cancer and is on xtandi. Just wondering if anyone been here and has any insight
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head wear
where is the best place to shop for head wear
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Have you had your flu shot yet?
Experts believe that mid-September through late October is the ideal time to get your flu shots. My hubby and I will be getting ours next week. What about all of you?
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Lyymphadema of the face.
Apparently. What I have is lymphadema making my face swell up. I haven't had a chance to see the doctor yet and won't for 2 more weeks. I'll ask more questions then. In the meantime, has anyone here had it. How do you go about massaging it to help it drain?
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Afinitor
Anyone with MBC experienced Afinitor with Exemestane? I am looking for “what to expect” and “how to manage” side effects.
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Greg's progress
I don't come on very often but for some reason thought of Greg today. It's good to see everyone being so supportive. Of course, why wouldn't he get all this support. I'm sure he's feeling all the love. Hope his hospital stay is short and is able to get home soon.
