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I don't know how to describe what I've heard more than once or twice from some people.
I've had a strange response from a few when I told them about my cancer diagnosis. It is "oh my God, are you going to die"? Or, "how much time did they give you"? Why do people automatically assume that we're all going to die? As one of the popular songs says, "Everybody wants to go to heaven, but nobody wants to go now".
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Happy Mother's Day to all of the Moms here at WhatNext
Thank you for all you do for your families, all of us wouldn't be here without you and we appreciate everything you do for us, take the day off and relax!!
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Frequently Asked Questions
There is always a list of F.A.Q.'s on most websites. I am putting one together for the basic questions we often hear/see. What question would you put on that list, and what's the answer?
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I'm having trouble staying focused on the positive things in my life
and off of the negative. How do you keep from dwelling on death, or what your family's life would be like without you?
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We have a guest blog post on the blog page today from Ms Norma
She is a stage IIIA breast cancer survivor, take a look at her story here>> https://bit.ly/2L7yvTb then let me know if you would like to share your own story.
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Today, May 6th, 2020, is National Nurses Day. The first day of National Nurses Week. Thank a nurse t
HISTORY OF NATIONAL NURSES DAY National Nurses Day is the first day of National Nursing Week, which concludes on May 12, Florence Nightingale’s birthday. Yet the week was first observed in the US in October 1954 to mark the 100th anniversary of Nightingale’s pioneering work in Crimea. In 1953, Dorothy Sutherland of the…
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I'm waiting for a scan report and call from the doctor.
I feel like I'm sitting on the railroad tracks watching a train coming towards me and I know I'm going to just sit here. Anybody else get that feeling?
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Medical needs and back up generators
This round of storms we had on Saturday afternoon stirred some thoughts about "what if". I have a suction machine for the mucus that I build up, in case my airway gets plugged it could be life saving. Other people need oxygen machines running, some have IV pumps, etc. There are a lot that depend on electricity. Do any of…
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Is your area, City, Town, County, State opening back up now?
There is a lot of controversy about this. Our area is slowly trying to wake up. I hope it doesn't explode again!
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Have you started wearing a mask everywhere?
Now that I think about it, as we are immunocompromised it's probably a good idea for all of us. Are you wearing one?
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Looks like immunotherapy might be in my future. Who has had Opdivo or Keytruda?
Opdivo is used a lot for H & N as well as lung. I now @LiveWithCancer was or is still on it. Anyone else? Side effects? It's been a long time since I took any type of treatment. (chemo wise)
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Since you were diagnosed, do you find yourself looking at other people envious?
I will see people, anywhere, doing anything, and sometimes my mind snaps to thinking that I will never be able to do that. Or, why do they get to have a long and happy life and I won't. I'm not terminal that I know of, haven't been told that I am, but still, that's where my mind goes.
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Life just keeps throwing curve balls at us, and the occasional knuckle ball
We have to deal with cancer, then the stupid virus, and now last night a line of storms came through our area taking down trees all along the way. Our lights were out from 4 yesterday afternoon until 130 this morning. We were fortunate to not have any storm damage though. All around us people had damage. Trees down…
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Food
Food
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Has anyone had genetic testing done on their tumors to see if they were a fit for immunotherapy?
I have been told that we might do immunotherapy, and testing would be done. No further instructions or descriptions were given at the time. It was just a possible lane at the time but now it might be where we go. I'm just curious about what's involved, how they test, etc. Is it a biopsy on the tumor again?
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So we had 4 members of the family over today to check on me and drop off some supplies
Since I've been sick we haven't been out of the house much so our family has been very helpful. One of them looked at me and says, so.....when this is all over, what's going to happen to all of your tools? (I have an extensive workshop) I'm still trying to decide what to respond with. I just stared at him in disgust and…
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Since your diagnosis, do you find that you have a new affinity for others with health problems now?
I never used to give it a second thought when I would see someone on oxygen, in a wheelchair, using a walker, or some other obvious health issue. Now I find I look and instantly think if there's any way I can help them right now. Get in their car, get something off the grocery shelf for them, etc. Just me or is this…
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Ya know, it's sad...
I'm working from home. I've been chit-chatting via email w/someone on my team. She mentioned that her nephew at just passed away. After expressing appropriate condolences, that first thing I said was that I hoped it wasn't the stupid virus. My ghod, has society changed! Oh, and he had been fighting cancer for awhile -- not…
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Quarantine ended
What will you do when the quarantine is ended? Personally, I'm staying inside for another 6 months after. I'll be 74 next month, had cancer, had a heart attack (chemo induced), have asthma. Boy howdy! I fit the profile for 24% of the deaths (the other 86% are male).
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I have lost my job due to my inability to keep up. Now I will be attempting to file for disability.
I know I read on here a while back someone posted about going through this. Can anyone here tell me factual information about if we can get it, and what is required? Are there any people here that are in the legal field in their day job? I was going to go to the SS office and just start the process, I called and they told…
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How do you feel about the statement that "Oh, you are so strong, I couldn't do it"?
I appreciate their sentiment, but seriously, what else are we supposed to do? I guess we could take the information from the doctor and decide nope, I'm done, see you. But realistically the human spirit and instinct is to fight to survive. So, I do what I have to, strong? I don't know. I guess it takes strength, some of us…
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I have a surgery coming up in a couple weeks. The scheduling nurse just called to ask If I have been
She said I would have to have the test results with me when I come to check in for the surgery, or I won't be able to have the surgery. Has anyone else had to do this?
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For anyone who is an esophageal cancer patient or survivor from one of our members @Chiefomni
He is the President of the Esophageal Cancer Education Foundation and has a message and support opportunity for any EC patients or survivors. He said: I am an esophageal cancer stage III survivor of 20 years. I have been through chemo, radiation and surgery. We created the Esophageal Cancer Education Foundation (ECEF)…
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Radiation pain
My last radiation was in early February but I still have pain. Just had follow-up CT-scan and pain seems worse. Is that putting burn on burn?
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Low Hemoglobin
Hi, Anyone had any experience with taking iron supplements and/or getting iron infusions? I was tested and it came out a little low so a choice was offered to me. Reading about it mentioned that PPI or antacids can prevent your system from absorbing iron and I've been on Omezaprole about a year for acid reflux. another…
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Have you noticed that "TeleHealth" services used to be a new thing but now everyone is doing it?
Before this coronavirus thing telehealth was just being explored to see if it would work and if patients would come on board with it. Now during this lockdown, I see ads on TV every day from medical facilities offering it. Have any of you done this?
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Cancer is very scary, we get lots of questions everyday about how to deal with fear over different c
What would you say is the biggest or scariest issue about cancer for you, and how do you cope with it? Is it the fear of treatment? Fear of losing your hair? Disfigurement? Possibly dying? Losing your job? The fear of the unknown?
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A friend of mine's father had cancer, stage IV, on hospice, and was going downhill fast
He kept telling everyone he wanted some peace and quiet and for everyone to leave and leave him alone. The family had been trading shifts staying with him and nobody wanted to leave him alone. Somehow, he convinced them to give him some time. When they returned from their time away he had killed himself. A few years ago…
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Just in case any of you have been swept up by the inept suggestion that you should all start taking
Study finds no benefit, higher death rate in patients taking hydroxychloroquine for Covid-19 https://www.cnn.com/2020/04/21/health/hydroxychloroquine-veterans-study/index.html?fbclid=IwAR1dh9YGdleehWm43vO0Ne7WUHjG8E8DtBFrFVekfsse3CwfzMxc-kga1mw
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Has anyone had experience with Keytruda
I was diagnosed with esophageal cancer on December 13, 2018 through an endoscopy/biopsy. From December through February 2019, I received 28 radiation treatments concurrent with 6 chemo treatments. I declined surgery due to age (85). On May 31, 2019, an endoscopy/biopsy showed that the cancer was gone and on September 23,…
