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Will side effects from chemo start the first day after treatment?
Or is it delayed? I've talked to a couple of people that said they were getting sick even on the way home from the first treatment. Then others have said they didn't feel anything for a few days. Is it always this much all over the place with side effects?
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Ms. @JaneA has a good article today with some information about brain cancer. It is one of the most
You can see it on the blog page by clicking the word "Blog" in the purple bar at the top of any page, or just click this link>> https://bit.ly/2zCDxEy
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Thinking about cancer all the time can really get to me. My mind starts racing focusing on the wrong
So I try to do a few things that I dearly love. I love gardening, when I can get outside, I love knitting, so I do that when I can't go outside, and I love to cook new things for the family when I have the energy to do it. Experimenting with new recipes keeps my mind occupied. Do any of you do things like this? What do you…
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How do you feel about the whole being a burden thing?
I can't help feeling like I am a burden on family and friends. I apologize for things like needing someone to pick up things for me, or helping me do something around the house that I used to be able to do by myself. I just can't help it. I've never been the type to ask for anything.
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Anyone else have a family member residing in any kind of healthcare or other type of communal living
As I've mentioned before my mom (94) now resides at a senior skilled nursing facility because of a crippling stroke suffered about a year and a half ago. In these times of encouraged self isolation these folks are literally trapped in a communal living situation with staff moving in and out daily. I just found out tonight…
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I have been on radiation for about 3 weeks and it's getting hard.
This is my third week of radiation and it has already gotten bad. It is so painful to swallow, a few sips of water is all I can do now. The only pain releaver I have, Oxycodone 5 mg, seems useless. I'm doing the magic mouthwash but I gag on it. What can help get through this?
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Side Affects
Well hope some one can help me. I went through Ileostomy in Jan. started taking Chemo pills in March for 4 months to finish cancer treatment. My problem is the side affects I am having now taking these pills then when I was taking them for radiation. I get really dizzy and can't walk far without it over coming me and I…
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How has your week been and what do you have coming up this week?
Scans, tests, surgery, covid tests, a new treatment plan? Do we have anyone that is finishing treatment and ready to get on with life? Let's hear what's happening.
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I don't know how to describe what I've heard more than once or twice from some people.
I've had a strange response from a few when I told them about my cancer diagnosis. It is "oh my God, are you going to die"? Or, "how much time did they give you"? Why do people automatically assume that we're all going to die? As one of the popular songs says, "Everybody wants to go to heaven, but nobody wants to go now".
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Happy Mother's Day to all of the Moms here at WhatNext
Thank you for all you do for your families, all of us wouldn't be here without you and we appreciate everything you do for us, take the day off and relax!!
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Frequently Asked Questions
There is always a list of F.A.Q.'s on most websites. I am putting one together for the basic questions we often hear/see. What question would you put on that list, and what's the answer?
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I'm having trouble staying focused on the positive things in my life
and off of the negative. How do you keep from dwelling on death, or what your family's life would be like without you?
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We have a guest blog post on the blog page today from Ms Norma
She is a stage IIIA breast cancer survivor, take a look at her story here>> https://bit.ly/2L7yvTb then let me know if you would like to share your own story.
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Today, May 6th, 2020, is National Nurses Day. The first day of National Nurses Week. Thank a nurse t
HISTORY OF NATIONAL NURSES DAY National Nurses Day is the first day of National Nursing Week, which concludes on May 12, Florence Nightingale’s birthday. Yet the week was first observed in the US in October 1954 to mark the 100th anniversary of Nightingale’s pioneering work in Crimea. In 1953, Dorothy Sutherland of the…
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I'm waiting for a scan report and call from the doctor.
I feel like I'm sitting on the railroad tracks watching a train coming towards me and I know I'm going to just sit here. Anybody else get that feeling?
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Medical needs and back up generators
This round of storms we had on Saturday afternoon stirred some thoughts about "what if". I have a suction machine for the mucus that I build up, in case my airway gets plugged it could be life saving. Other people need oxygen machines running, some have IV pumps, etc. There are a lot that depend on electricity. Do any of…
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Is your area, City, Town, County, State opening back up now?
There is a lot of controversy about this. Our area is slowly trying to wake up. I hope it doesn't explode again!
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Have you started wearing a mask everywhere?
Now that I think about it, as we are immunocompromised it's probably a good idea for all of us. Are you wearing one?
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Looks like immunotherapy might be in my future. Who has had Opdivo or Keytruda?
Opdivo is used a lot for H & N as well as lung. I now @LiveWithCancer was or is still on it. Anyone else? Side effects? It's been a long time since I took any type of treatment. (chemo wise)
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Since you were diagnosed, do you find yourself looking at other people envious?
I will see people, anywhere, doing anything, and sometimes my mind snaps to thinking that I will never be able to do that. Or, why do they get to have a long and happy life and I won't. I'm not terminal that I know of, haven't been told that I am, but still, that's where my mind goes.
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Life just keeps throwing curve balls at us, and the occasional knuckle ball
We have to deal with cancer, then the stupid virus, and now last night a line of storms came through our area taking down trees all along the way. Our lights were out from 4 yesterday afternoon until 130 this morning. We were fortunate to not have any storm damage though. All around us people had damage. Trees down…
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Food
Food
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Has anyone had genetic testing done on their tumors to see if they were a fit for immunotherapy?
I have been told that we might do immunotherapy, and testing would be done. No further instructions or descriptions were given at the time. It was just a possible lane at the time but now it might be where we go. I'm just curious about what's involved, how they test, etc. Is it a biopsy on the tumor again?
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So we had 4 members of the family over today to check on me and drop off some supplies
Since I've been sick we haven't been out of the house much so our family has been very helpful. One of them looked at me and says, so.....when this is all over, what's going to happen to all of your tools? (I have an extensive workshop) I'm still trying to decide what to respond with. I just stared at him in disgust and…
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Since your diagnosis, do you find that you have a new affinity for others with health problems now?
I never used to give it a second thought when I would see someone on oxygen, in a wheelchair, using a walker, or some other obvious health issue. Now I find I look and instantly think if there's any way I can help them right now. Get in their car, get something off the grocery shelf for them, etc. Just me or is this…
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Ya know, it's sad...
I'm working from home. I've been chit-chatting via email w/someone on my team. She mentioned that her nephew at just passed away. After expressing appropriate condolences, that first thing I said was that I hoped it wasn't the stupid virus. My ghod, has society changed! Oh, and he had been fighting cancer for awhile -- not…
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Quarantine ended
What will you do when the quarantine is ended? Personally, I'm staying inside for another 6 months after. I'll be 74 next month, had cancer, had a heart attack (chemo induced), have asthma. Boy howdy! I fit the profile for 24% of the deaths (the other 86% are male).
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I have lost my job due to my inability to keep up. Now I will be attempting to file for disability.
I know I read on here a while back someone posted about going through this. Can anyone here tell me factual information about if we can get it, and what is required? Are there any people here that are in the legal field in their day job? I was going to go to the SS office and just start the process, I called and they told…
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How do you feel about the statement that "Oh, you are so strong, I couldn't do it"?
I appreciate their sentiment, but seriously, what else are we supposed to do? I guess we could take the information from the doctor and decide nope, I'm done, see you. But realistically the human spirit and instinct is to fight to survive. So, I do what I have to, strong? I don't know. I guess it takes strength, some of us…
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I have a surgery coming up in a couple weeks. The scheduling nurse just called to ask If I have been
She said I would have to have the test results with me when I come to check in for the surgery, or I won't be able to have the surgery. Has anyone else had to do this?
