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Covid saved my life. Maybe?
I went to have a covid test and had a fever. They immediately said I probably had it. I was sent to my doctor to have further tests. I had an infection that was giving me a fever. That was followed by a chest Xray which showed something abnormal in my right lung. The end of this episode was a biopsy which was positive. I…
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Being outside in the sun after being diagnosed? Do you avoid the sun at all costs? Or not take any p
My doctor has said that we need to be careful and use a little sunscreen, and then in another appointment he said that I needed to avoid it all together. What do you do?
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Hot Flash Help
Okay folks. Besides running a fan full blast, turning my air down to the point that the rest of my friends and family feel like they are in a meat locker, or wearing virtually no clothes (not particularly attractive or socially acceptable for work)- what have you found effective? Please know I am not going to consider…
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We are lifting quarantine How to you feel ?
As the quarantine is lifted do you feel (A) Like you have been released from prison or (B) Like your fortress is crumbling For me it is B. People have said to me if you want to stay quarantined then just stay quarantined. Well that is possible for some but not for others. My son will have to go out and work. We discussed…
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"We're all in this together" seems to be the corona catch phrase adopted by everyone advertising on
I've heard that so much I'm sick of hearing it. They all keep saying it but I haven't seen any of them knocking on our door to deliver groceries or offering free legal advice, or dropping off a new car. I get the feeling that too many people are trying to play on the feelings of fear and anxiety of the public. Have you…
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If you're due for a colonoscopy this year, would you do it in light of COVID-19?
Initially a friend nagged me to get a test which was a rude awakening that I had colon cancer. I am past 5 years NED (no evidence of disease) now but am due for a test again. Should I?
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Swelling in places where your cancer isn't at. Anyone have this happen?
I have swelling around my neck that has started this past week. It's making it slightly hard to breathe. Not extreme swelling, but enough to notice my neck is fatter than it really is. Doctor's appointment is Friday, they say "probably" nothing to worry with. Anyone have this happen, my cancer is colon cancer, not in my…
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Life Planning
I know it's a subject that people don't like to think about. I know some people feel that planning for end of life might hasten the process, or invite trouble. I was always hesitant to plan for eventualities, but after seeing friends and family have to fight legal battles over how to best help their loved ones, I felt it…
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Has anyone had excess gas, bloating, belly pains after/during treatments?
I know it wasn't just something I ate. I had treatment last week and almost immediately, I started having an embarrassing case of gas. Belching, farting, the whole gas issue thing. I don't think I've ever had a case like this before. Is this a chemo induced thing?
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I see these adds on TV for new drugs for cancer
It makes me feel like my chances are not good for survival unless I am on one of them. Do you ever have that feeling?
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May trigger. How to know when enough it's enough?
I'm giving keytruda and lenvatinib (sp?) a try. I really can't do chemo anymore because my platelets just aren't recovering at all. There are a lot of other considerations, but how do you know when it's time to quit fighting. It's a question I never had the courage to ask my friends who went through it already. Should…
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Do you have the same kinds of side effects with all your rounds of chemo?
I seem to have something different on each one. Sometimes they are opposite from the last time. One time its constipation, the next time its diarrhea. Dizziness one time and air-headed the next.
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Have you gotten a 2nd opinion? Have you ever heard of a "virtual" 2nd opinion?
One thing that the Coronavirus outbreak has expedited is the whole world of "telehealth". Doctor's visits by computer. Some are even just doing a phone call. We have talked about these new types of doctor's visits here at WhatNext before, but haven't gotten into the 2nd opinion by computer or phone. Our blog post today…
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Who has used Keytruda? I know Live With Cancer has been on Opdivo, I know I remember some of you pos
Is it an injection, a pill, a drip like chemo that takes hours? Side effects? Harsh, not much, not at all? I will be getting this in Nashville, it's a 3 hour trip back, Sweetie might have to drive home.
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Cravings
Who has had comfort food cravings during the pandemic? I remember cravings for chocolate chip mint ice cream when I was pregnant and I had an absolute obsession for potato salad throughout my chemo treatments. During this time of social distancing and stay at home my husband and I , have demolished five tubs of red…
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I am being treated for bone cancer with Doxorubicin (Adriamycin®) Cisplatin. Etoposide
It seems to stir up the pain in my bones. I can tell that it's the chemo making it worse because the pain gets worse for a few days after treatment then it slowly goes away. Do any of you have this bone pain from chemo?
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Did you get our Newletter this morning in your email inbox?
We have just published our May Newsletter, you should get it in your email inbox that you used when you signed up on the WhatNext site. If you haven't been getting notifications and emails from the site please let us know and we will see if your email has been blocked. Our Newsletter can be seen here>>…
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Anyone having difficulty isolating from family?
I'm struggling trying to be the caretaker for my 89 yo mother and 96 yo step-dad. I've been arranging for grocery deliveries and even managed to get some plants delivered since I know how much my mom loves to garden. Yet, all she does is complain that she would not have selected that tomato, or that plant, etc. She got…
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Does anyone here have any experience with agent orange that may be responsible for your cancer?
I was exposed during my days in Vietnam, but I haven't looked into it.
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Getting ready for chemo for the first time? Our blog post today has things you need to know.
New patients will often say that the thought of going through chemo is the scariest part of their diagnosis. Most of the time a lot of the stories about chemo are blown out of proportion. It's tough, don't misunderstand, but it's not as bad as a lot of people make it out to be, and, it beats the alternative to not having…
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Email Digest
Not getting the digest email for a few weeks now.
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After you are finished with treatments, how long are you considered immunocomprimised?
I have at least 6 months to a year more of treatments but I am worried about all of this virus going around and thinking about will I always have to be on guard about everything, flu, colds, etc.? Will I have to walk around with a mask, stay away from people for good?
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When you were diagnosed with cancer, was it the first health condition you have had?
I hear about people with a laundry list of health problems and cancer just seems to be the destination, but when you've never even been to a doctor for a serious problem, cancer seems like a jump over the line.
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I read a quote in an article today that is quite catchy and makes you think.
"We’ll never know if we’ve survived cancer until we die of something else. The trick is to make the time between now and then count." If you think about it, we can be cancer free for years, then here it comes again. I was 18 years out from my second diagnosis when #3 came to visit. So we could be 75 and cancer free for 40…
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Getting your mind off of cancer over the weekend, how?
After dealing with cancer for months and months it has become what seems like a full time job. When the weekend comes I try to act just like I would normally and do things we enjoy. But I can't seem to get cancer out of my mind. How do you do it? Or can you?
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I am having to start treatment again, have anyone had this combination of drugs in chemo?
5 FU Carboplatin Cetuximab Any feedback on results, side effects, ups, downs, etc. would be appreciated.
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Email Digest
I'm now missing my digest for at least a couple of weeks.Updates do all kinds of screw ups to my browser,etc.
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So something strange is happening with some of my friends.
At first, all of my girlfriends were around almost every day. They would call, text, stop by, bring supper for the family, and do lots of great things for the whole family. But now, it's like the new has worn off of the new toy and they don't want to play anymore. I haven't heard a peep out of a couple, no yet, no calls,…
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Always cold
Are many of you like me? It seems that I am always cold. I have been in remission for over a year now, but I am cold all day. I always have a quilt wrapped around me and even then I am often still very cold. If I say it is cold my daughter says it’s just me. Are any of you experiencing this as well?
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Happy Mother's Day to all the mothers here! We've just had some of our kids visiting.
I'm curious if this is just me or if anyone else feels this way too. And is it from the cancer or what? I love my kids, love to see the grandkids, but after they (or anyone) is here for an hour or two I'm ready for them to go. I don't have the patience I did and I'm wanting to go sit in my chair again. I can't help but…
