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Have you gotten a 2nd opinion? Have you ever heard of a "virtual" 2nd opinion?
One thing that the Coronavirus outbreak has expedited is the whole world of "telehealth". Doctor's visits by computer. Some are even just doing a phone call. We have talked about these new types of doctor's visits here at WhatNext before, but haven't gotten into the 2nd opinion by computer or phone. Our blog post today…
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Who has used Keytruda? I know Live With Cancer has been on Opdivo, I know I remember some of you pos
Is it an injection, a pill, a drip like chemo that takes hours? Side effects? Harsh, not much, not at all? I will be getting this in Nashville, it's a 3 hour trip back, Sweetie might have to drive home.
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Cravings
Who has had comfort food cravings during the pandemic? I remember cravings for chocolate chip mint ice cream when I was pregnant and I had an absolute obsession for potato salad throughout my chemo treatments. During this time of social distancing and stay at home my husband and I , have demolished five tubs of red…
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I am being treated for bone cancer with Doxorubicin (Adriamycin®) Cisplatin. Etoposide
It seems to stir up the pain in my bones. I can tell that it's the chemo making it worse because the pain gets worse for a few days after treatment then it slowly goes away. Do any of you have this bone pain from chemo?
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Did you get our Newletter this morning in your email inbox?
We have just published our May Newsletter, you should get it in your email inbox that you used when you signed up on the WhatNext site. If you haven't been getting notifications and emails from the site please let us know and we will see if your email has been blocked. Our Newsletter can be seen here>>…
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Anyone having difficulty isolating from family?
I'm struggling trying to be the caretaker for my 89 yo mother and 96 yo step-dad. I've been arranging for grocery deliveries and even managed to get some plants delivered since I know how much my mom loves to garden. Yet, all she does is complain that she would not have selected that tomato, or that plant, etc. She got…
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Does anyone here have any experience with agent orange that may be responsible for your cancer?
I was exposed during my days in Vietnam, but I haven't looked into it.
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Getting ready for chemo for the first time? Our blog post today has things you need to know.
New patients will often say that the thought of going through chemo is the scariest part of their diagnosis. Most of the time a lot of the stories about chemo are blown out of proportion. It's tough, don't misunderstand, but it's not as bad as a lot of people make it out to be, and, it beats the alternative to not having…
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Email Digest
Not getting the digest email for a few weeks now.
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After you are finished with treatments, how long are you considered immunocomprimised?
I have at least 6 months to a year more of treatments but I am worried about all of this virus going around and thinking about will I always have to be on guard about everything, flu, colds, etc.? Will I have to walk around with a mask, stay away from people for good?
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When you were diagnosed with cancer, was it the first health condition you have had?
I hear about people with a laundry list of health problems and cancer just seems to be the destination, but when you've never even been to a doctor for a serious problem, cancer seems like a jump over the line.
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I read a quote in an article today that is quite catchy and makes you think.
"We’ll never know if we’ve survived cancer until we die of something else. The trick is to make the time between now and then count." If you think about it, we can be cancer free for years, then here it comes again. I was 18 years out from my second diagnosis when #3 came to visit. So we could be 75 and cancer free for 40…
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Getting your mind off of cancer over the weekend, how?
After dealing with cancer for months and months it has become what seems like a full time job. When the weekend comes I try to act just like I would normally and do things we enjoy. But I can't seem to get cancer out of my mind. How do you do it? Or can you?
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I am having to start treatment again, have anyone had this combination of drugs in chemo?
5 FU Carboplatin Cetuximab Any feedback on results, side effects, ups, downs, etc. would be appreciated.
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Email Digest
I'm now missing my digest for at least a couple of weeks.Updates do all kinds of screw ups to my browser,etc.
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So something strange is happening with some of my friends.
At first, all of my girlfriends were around almost every day. They would call, text, stop by, bring supper for the family, and do lots of great things for the whole family. But now, it's like the new has worn off of the new toy and they don't want to play anymore. I haven't heard a peep out of a couple, no yet, no calls,…
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Always cold
Are many of you like me? It seems that I am always cold. I have been in remission for over a year now, but I am cold all day. I always have a quilt wrapped around me and even then I am often still very cold. If I say it is cold my daughter says it’s just me. Are any of you experiencing this as well?
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Happy Mother's Day to all the mothers here! We've just had some of our kids visiting.
I'm curious if this is just me or if anyone else feels this way too. And is it from the cancer or what? I love my kids, love to see the grandkids, but after they (or anyone) is here for an hour or two I'm ready for them to go. I don't have the patience I did and I'm wanting to go sit in my chair again. I can't help but…
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Unnecessary chemo?
My friend had lumpectomy 3 weeks ago. NED in lymph nodes, declared stage 1. Doctor recommended chemo 1 X weekly for 1 year! Any explanation, anyone?
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Has anyone here been tested positive for covid?
I have been extra careful to stay home, stay away, limited visitors, wear a mask when a select few have stopped by, and one slip!! My sister stopped by, without a mask, grabs me and hugs me. And she's the type that will run rampant through the fire thinking she won't get burned. Now I'm paranoid.
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You ever notice that the night before surgery sleep is nowhere to be found?
Between the snoring in the room and noise in the city coupled with my mind racing, I should have just stayed up all night. So here we are, cover me I'm going in!
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Anyone want to join me?
I am an early riser. I do some meditation, contemplation, prayer, reflection, or study, upon arising - which is usually around 6:00/6:30 am. I think I mentioned before I am a woman of faith, and so tomorrow morning I am planning to pray for a good outcome for our friend, Greg. I know not everyone shares my beliefs, but I…
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Will side effects from chemo start the first day after treatment?
Or is it delayed? I've talked to a couple of people that said they were getting sick even on the way home from the first treatment. Then others have said they didn't feel anything for a few days. Is it always this much all over the place with side effects?
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Ms. @JaneA has a good article today with some information about brain cancer. It is one of the most
You can see it on the blog page by clicking the word "Blog" in the purple bar at the top of any page, or just click this link>> https://bit.ly/2zCDxEy
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Thinking about cancer all the time can really get to me. My mind starts racing focusing on the wrong
So I try to do a few things that I dearly love. I love gardening, when I can get outside, I love knitting, so I do that when I can't go outside, and I love to cook new things for the family when I have the energy to do it. Experimenting with new recipes keeps my mind occupied. Do any of you do things like this? What do you…
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How do you feel about the whole being a burden thing?
I can't help feeling like I am a burden on family and friends. I apologize for things like needing someone to pick up things for me, or helping me do something around the house that I used to be able to do by myself. I just can't help it. I've never been the type to ask for anything.
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Anyone else have a family member residing in any kind of healthcare or other type of communal living
As I've mentioned before my mom (94) now resides at a senior skilled nursing facility because of a crippling stroke suffered about a year and a half ago. In these times of encouraged self isolation these folks are literally trapped in a communal living situation with staff moving in and out daily. I just found out tonight…
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I have been on radiation for about 3 weeks and it's getting hard.
This is my third week of radiation and it has already gotten bad. It is so painful to swallow, a few sips of water is all I can do now. The only pain releaver I have, Oxycodone 5 mg, seems useless. I'm doing the magic mouthwash but I gag on it. What can help get through this?
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Side Affects
Well hope some one can help me. I went through Ileostomy in Jan. started taking Chemo pills in March for 4 months to finish cancer treatment. My problem is the side affects I am having now taking these pills then when I was taking them for radiation. I get really dizzy and can't walk far without it over coming me and I…
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How has your week been and what do you have coming up this week?
Scans, tests, surgery, covid tests, a new treatment plan? Do we have anyone that is finishing treatment and ready to get on with life? Let's hear what's happening.
