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Have you considered that your outlook on your entire cancer situation will affect how you view each
Your port: Do you consider it a piece of a foreign object inside of your body, or do you consider it a tool that is a great piece of modern technology that is helping to save you? Chemo: do you consider it a poison that's trying to kill you, or do you look at it as the wonderful juice that's killing your cancer and setting…
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The overall public ignorance about everything to do with this coronavirus is just amazing to me
I continue to read post after post online from people that I used to think were average, intelligent people. But when I read things like, this is all a hoax that was brought on by the democrats and it will magically disappear after the election. Or one person said that "they heard" that an unused box of 10 testing swabs…
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I can already see that I am going to have a body covered with scars after this is all over.
What have you done to minimize the scarring? Are there any creams that will help?
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Has your doctor, ENT, Oncologist, radiology oncologist ever called you out of the blue and asked if
Today, my clinical trial doctor, (I have one for the trial, oncologist, ENT surgical oncologist, now) called today to ask if I could "come on down to the clinic". Like it was around the block. He apparently doesn't know that I am 3 hours away. I will have to have a talk with him about that. Anyway, my office mgr. asked…
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Has anyone had a liquid biopsy?
Biopsies are one of the first tests that tell us what type of cancer we have, or if it's cancer at all. Liquid biopsies are one of the newest types today. Our blog post today has more about what they are, how they are done, and what they can tell us. Click here for the article>> https://bit.ly/2Odfwbu
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Have any of you taken the drug Zarxio to keep your WBC up?
My blood counts have been consistently running low and my doctor said that if they are low again the next time he will start me on Zarxio. I've never heard of it, of course, I've never heard of a lot of medical things until this started. Just wondering if anyone here has taken it and if there were side effects from it.
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When you were diagnosed with cancer did you think it was a death sentence?
I have been told to 'relax, it's only skin cancer". But I've also read so many cases of people who died from melanoma, (skin cancer). So when I was diagnosed I was convinced that this was it. I've slowed up on that line of thought now, but I'm still filled with fear.
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OK people, I'm scared, don't know what to do. I need surgery but because of covid nobody can come
I will be alone going in, when I wake up, and even for 14 days in the hospital. I won't be able to see my kids, any family, or anyone period. I am about to cancel it. I don't know what to do.
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Ms. Jane, our prolific writer/researcher, has a great post to fuel the flames about the "wearing a m
Take a look at it here. This is written with the cancer patient in mind. Take a look at the article at this link>> https://bit.ly/2NUbULk
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anybody else going to spend the 4th in the hospital?
This sucks! Even though there's not much going on out in the world because of the covid virus, and we had canceled our plans to have family and friends over to our house, it still would be better than this! A late night bout with uncontrollable pain took me to the ER, I've been here all night and was admitted but still no…
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Pain killer effectiveness - I am on some what I think are mild dose hydrocodone pain killers 300 mg.
When I take one they don't seem to do much. I do get a little deadening of the pain, but nothing, like I thought, would happen. I thought the pain would stop. I get just as good of a result from two 500 mg Tylenol. Does anyone else get these results from prescription pain meds?
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Taxol Nail Side Effects
I am just about to finish up taxol treatment, but since the start my finger tips have been swollen and my nail beds have been effected. Currently most of my nails seem to be detaching from the nail bed and leaking fluids all the time (due to swelling?). I was wondering if anyone else has had this side effect (my doc said…
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Needed to share these 2 videos
I soooo agree with this and more.Can't even go to the markets to buy food without a mask.No delivery is available.Shelfs are empty,etc.I net a brother in Christ inside the market with no mask.They just didn't catch him ,i guess.When we started talking I found we were in the same Spirit. He also tells them that the…
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With Covid cranking up and going crazy again we are canceling our family annual July4th cook out.
This will be the first time in 10 years that we don't all get together. We will have 40 to 50 people at our house for this annual party. It's disappointing to not be able to do it, but we feel it's mandatory with my diagnosis this year. Is anyone else canceling their plans?
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Do any of you get abandoned by friends and family after you're done with treatments?
I am done, I'm not back to "normal" and never will be. I can't do what I used to be able to do. I don't have the strength or stamina to work like I used to but everyone expects me to go right back to doing things for myself like I always have done. Now I can't, I need help doing a few things every now and then and I get…
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Since your diagnosis, do you think it's easier for you to find something appropriate to someone who
We have been on both sides of this subject, we have had people say things to us that were both good and bad, and we have probably all had to say something to a person just diagnosed. Sometimes it's just hard to find the right thing.
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What are you planning to eat on the Fourth
I am planning on ordering out Or I might have a big Taco Salad, Hey it works for the Cinco de Mayo
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What are planning for 4th of July?
We're staying home, and I'm going to grill us a flat iron steak. We live in Georgia, and the COVID-19 cases are surging all over the state. What are your plans?
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Cancer in the time of Covid
I have just started chemo for peritoneal carcinoma. I was in remission for from Fallopian tube cancer for 16 months, which is apparently longer than expected. My problem is that my best friend is angry and not speaking to me because she doesn’t understand why I won’t come over and hang out with her. She went to see her…
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An interesting question was sent to me this morning. Workplace related cancer.
Was your diagnosis related to your workplace? If so, what type of cancer, what was your job, and what was the suspected cause?
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Facing a recurrence, lots of different feelings swirling around
I have been going through life since my original diagnosis, treatment, and declarations of "cured" with one eye watching behind me. I guess what I've been looking for and running from finally caught up with me. For anyone facing a recurrence, do you find that you have a totally defeated feeling? I went through all of this…
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I saw this quote today and although it's talking about the virus thing, I thought about us cancer fi
I think this fits us too, don't you? A shout out to everyone who is trying right now. Trying to do the right thing. Trying to keep going. Trying to hold on. Trying to discover their flow. Trying to stay afloat. Trying to meet each new day. Trying to love themselves. Trying new things and new ways. Trying to find their…
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Weird suggestions to gain immunity to Covid
People, please use some common sense and don't jump into some of these crazy suggestions. I just read where one of the things going around now is getting a polio vaccination because it's supposed to keep you from getting Covid. I'm not doctor, but if this were a real thing it would probably be suggested by read doctors.…
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What experience have you had applying for unemployment?
The left side of my throat is paralyzed & I can barely talk & cannot swallow at all. I am permanently on a feeding tube. Also have issues with my leg from where they ripped a hunk of meat for my radical dissection & a broken hip.
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I need Long-Term Hope! Tell me how many years you have been clear please.
I have terrible feelings of going through all of this and then just having to repeat in a year, 3, 5, or whatever. How many years have you been a survivor? I need inspiration!!
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All cancer journeys are important, all cancer stories are inspirational. We want you to share yours
It's simple, easy, no problem, no brainer, uncomplicated, easy peasy, etc. All you have to do is write it out just like you were sitting at your kitchen table talking to an old friend about what you have been through. Don't worry about it being perfect, none of us are, don't worry about misspelling anything, we all do,…
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Just curious about the wait times to get in to have blood drawn or treatments?
15 minutes, 30, an hour?
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Tamoxifen
I’ve been on Tamoxifen for about 5 months now. I’m having pain in my knees and my calves. Does anyone know if this is a side effect from the medication. I walk every day and try not sitting for too long but some days my legs hurt a lot.
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FDA approved treatment method for Covid-19
Did you know that the FDA recently approved a treatment that reduces the chance of community spread of COVID-19 by 5X? Its trade name is called Wearamaskasshole. Side effects include mild inconvenience, possible victim complex, fear of people thinking you are a sheeple, being ostracized by your anti-vax pandemic bros, and…
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How often do you get a little dose of survivor's guilt?
Again this morning I did. A friend of the family, younger than me, probably in his 50's, healthy by most standards, non-smoker, non-drinker, basically the best type of person you would want as a neighbor or a friend, suddenly dead. I don't know at this point why. But for whatever reason it was it's another example of we…
