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I need Long-Term Hope! Tell me how many years you have been clear please.
I have terrible feelings of going through all of this and then just having to repeat in a year, 3, 5, or whatever. How many years have you been a survivor? I need inspiration!!
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All cancer journeys are important, all cancer stories are inspirational. We want you to share yours
It's simple, easy, no problem, no brainer, uncomplicated, easy peasy, etc. All you have to do is write it out just like you were sitting at your kitchen table talking to an old friend about what you have been through. Don't worry about it being perfect, none of us are, don't worry about misspelling anything, we all do,…
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Just curious about the wait times to get in to have blood drawn or treatments?
15 minutes, 30, an hour?
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Tamoxifen
I’ve been on Tamoxifen for about 5 months now. I’m having pain in my knees and my calves. Does anyone know if this is a side effect from the medication. I walk every day and try not sitting for too long but some days my legs hurt a lot.
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FDA approved treatment method for Covid-19
Did you know that the FDA recently approved a treatment that reduces the chance of community spread of COVID-19 by 5X? Its trade name is called Wearamaskasshole. Side effects include mild inconvenience, possible victim complex, fear of people thinking you are a sheeple, being ostracized by your anti-vax pandemic bros, and…
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How often do you get a little dose of survivor's guilt?
Again this morning I did. A friend of the family, younger than me, probably in his 50's, healthy by most standards, non-smoker, non-drinker, basically the best type of person you would want as a neighbor or a friend, suddenly dead. I don't know at this point why. But for whatever reason it was it's another example of we…
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immunotherapy
wondering if anyone has had experience with the side effects of taking tagrisso? do the side effects become less over time?
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No, I've never smoked, the answer to my most asked question!
Never chewed, don't drink, eat well, exercise, do all the things a person should do to stay healthy. Boom-cancer anyway. Did any of you have no risk factors but were diagnosed anyway?
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Has anyone been treated at the Cancer Center for Healing in California?
I was scrolling around the internet and came across one of their posts that listed the "Top 6 Cancer Tests Every Cancer Patient Must Know". Some of these I've never heard of or read about. A Must-Have Cancer Screening Checklist ● #1 RGCC Test ○ Detects potentially deadly circulating cancer cells and cancer stem cells and…
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Several Universities have announced that they will require students to have a flu shot and a covid 1
Can you imagine the backlash that will come from the conspiracy theorists? We can't even get people to wear a stupid mask to keep from killing each other with a virus with no cure, can you imagine what the outcry will be when they are forced to have a flu shot or a vaccination for covid?
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2020 is trying to tell us something I think.
First the virus, then killer wasps, now it's choking killer saharan dust cloud. It seems like this is some sort of a B class movie thriller. Has anyone seen or had any effects from this "killer dust cloud"?
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As this virus is apparently starting to slow down, where are you on "starting back up"?
I don't think it takes that much common sense. If a place like New York is still having cases by the thousands, everyone needs to stay put. But out in the middle of Montana where there probably isn't 100 cases in the state, they can probably start to move around. But people will need to have some common sense, and that's…
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MD Anderson Hospital in Texas
I am getting frustrated with my current care. I feel like they do not have a sense of urgency on my case. They will decide we need to do a test/procedure/whatever and schedule it, 3 weeks later the procedure/test is done. One week later I get the results. Then, it didn't tell them what they wanted, so another is scheduled,…
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Are there that many people that are afraid of going through cancer treatments/
As I browse around researching my cancer I see post after post where people are always asking if anyone has survived without treatment, or did you have chemo and no radiation or vice/versa, or what "natural Methods" did you use to beat cancer? It seems to me that these people are more afraid of the treatment than the…
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Friendships/Camaraderie
I was thinking last night about how much I enjoy chatting with all of you. It's strange that what we have in common is our "disease," but it's really a very positive place here. Sharing ideas, sharing opinions. It's been interesting for me to see how people process their treatments, their waiting news, and everything else.…
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Have you reached the end of your "first line treatments"? Is your doctor looking for what's next for
Our blog post has helpful information about how they work and how you find one that you will qualify for. Take a look here>> http://bit.ly/2p5ZRyB
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This has probably been asked before but I couldn't find it here. Does CBD oil work for pain?
I mean really work, not just "I think it might", or "I'm not sure if it's working". If it won't cut pain like taking a pain pill I'm not interested. Does anyone have real life experience taking it? How much do you have to take? I know nothing about it other than some facebook claims I read about how good it works, and we…
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A common question we receive is about long term side effects
Several people have asked about the long term side effects of treatment. Usually followed by the statement that they are considering not having treatment at all because of them. So to alleviate these fears, what would you say are "long term" side effects, if you have had any at all? And knowing now what they are and their…
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Who has had the duo of carboplatin and taxol? How was it for you? Side effects?
If I don't have the PD-L1 receptor in my tumor I will have this combo in addition to Keytruda. Just wondering how it was for you. It's been 30 years since I had chemo, things have changed a great deal since then.
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Have you participated in the Covid 19 life effects survey yet? You should have received an email abo
Briefly: We would like to understand this impact and what characteristics help people to be more resilient during these challenging times. We would greatly appreciate if you would participate in this web-based study. We will collect data five times over the two years: at study entry, in two months, in six months, and in 12…
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I may have already asked this question, but couldn't find it in my page, if I did.
How many CT scans and PET scans have you had? In researching what's in store for me with this clinical trial, they list 25 CT scans, 3 PET scans, and other "tests" as needed. The information says that if a person completes the trial and has all of the scans they will receive 10X the amount of radiation that a radiation…
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Do you remember the night before your first chemo session?
I don't remember the night before my first one 32 years ago, but I remember vividly the day of, in fact the seconds that it took for the chemo cocktail to run from the bag down to my veins. I watched that red color come down and was scared to death about what would happen when it hit me. I remember it being cold and…
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Do you ever get tired of hearing people tell you how strong you are and how proud they are of you fo
I mean, what choice do we have? It's either take it, fight it, and try to get through it, or lay down and die. I appreciate the support of my friends and family, but telling me "I'm so strong" doesn't really help. I guess I'm just being too sensitive?
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How are you doing with keeping hope alive throughout your cancer diagnosis?
Our blog post today has some tips about how to keep hope alive and in the front of mind, and why it's so important to have it. Take a look at the article here>> https://bit.ly/3hSCnqr and then, please share!! We ALL need more HOPE!
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I have a doctor who will dance around the bad news and find a way to spill it by sprinkling roses ov
Do you have a doctor like this or does yours lay it all out there good, bad, and ugly? It's annoying that he won't just get to the point, but on the other hand I'm not sure how I would take the blunt truth. What do you think is the best way?
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Faslodex injections side effects
I’m getting faslodex injections as a hormone blocker. Recently I’ve been getting itchy spots all over my body that start with small bumps or nothing at all. It’s driving me crazy. Has anyone experienced this as a side effect and if so what did you do about it.
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My doctor has kind of shyed away from telling me exactly what my stage is
He has asked me to not concentrate on a number and said it really doesn't make any difference what it is anyway, they are going to treat me with the most aggressive, the best combination of drugs and procedures that are available. So, I bought into that thinking, but still, there's this little mouse nibbling on me telling…
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You Can't Put a Price On A Life - This Just In.....Yes You Can
In my case, the costs are approaching 500k since the first of the year, 2020 up to June 2020. And the costs continue to rise. My blog post today is about the continuing rising costs of healthcare. Take a look at the article here>> https://bit.ly/2YC9uG3
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Has your doctor suggested any "non-pharmacological" methods of pain control?
Like acupuncture, meditation, or exercise? Since the opioid crisis hit, some cancer patients are having trouble getting the pain relief they need. Here is an article about one method of pain relief without pain meds. Jun J. Mao, MD, MSCE, on the Need for Non-Pharmacological Pain Management in Cancer Survivors June 19, 2020…
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keytruda
how long before it takes effect? I was given my first dose a week ago and am wondering if I am too far gone. Any info would be helpful
