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Trach or stoma suction. Have any of you had to do this on a regular basis?
I am having to run a suction tube a few inches down into my stoma, however far it takes to reach a chunk of mucus that is giving me a problem, and suck it out. It was a little unnerving to start with, but I'm getting used to doing it. I am hoping that whatever is causing this overload of mucus will stop with a little time.
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oncotype dx score
I had stage 2, grade 3 breast cancer at age 63. My oncotype dx score was at 99%. Does that mean I am likely to have a reoccurance?
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Strange smells and tastes after surgery.
Each surgery that I've had since Dec. I've noticed a strange smell and different tastes that seem to emanate from within me. It's a strange thing, I can imagine it like a piece of plastic "something" has been placed inside of me and when I breathe, swallow, or move air in/out/around, I can smell it. Have any of you ever…
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Did you get sensitive to smells during treatment?
I just remember that cooking smells would get to me. He could be at the other end of the house making a hamburger and I would be gagging way in the bedroom. So what bothered you during treatment?
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Has anyone heard from Shelby?
I know she has a relapse and was preparing to get started again.
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An immunotherapy question for anyone that has been on it.
Yesterday I started feeling the first of what I am thinking are my side effects. I have started feeling a lot of pain around the two tumors in my neck. I asked my doctor about this today and they say it's the immunotherapy causing irritation to the tumors because it's starting to work. Did anyone else get this feeling or…
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How many days have you stayed in the hospital before getting the problem fixed?
We got here Sunday night, I've had a few tests done so far. They have figured out what the problem is, I cant swallow because of the swelling in my throat has caused occlusion of esophagus. Now they will do a swallow study to determine if they can safely stretch me. If not, I will go to surgery for a feeding tube.…
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Have any of you tried Zoom for exercise?
I have been exercising religiously for 4 years to help prevent a recurrence. For the last year, I've been going to a gym that offers Silver Sneakers. But with the pandemic, I'm unwilling to go back in person with COVID-19 running rampant in Georgia. The gym is Zooming the Silver Sneakers class Monday - Friday. I tried it,…
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Sorry I've been mia for a few days.
Had a few bad days. This afternoon was better. Hope it continues to improve. I still have a few issues to resolve. Hopefully things will continue to improve. Looks like we'll have a few more days here. I've just today felt well enough to sit up and text.
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August is HPV Awareness Month - Several types of cancer that are associated with the HPV virus can b
This puts this groups of cancer along side other diseases that have previously been prevented and in some cases wiped out. Our blog post today has more information about who needs to be vaccinated and the protection offered against which cancer types. Take a look here>> https://bit.ly/316cpbd
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Stage IV cancer survivor Herman Cain has been hospitalized for Covid 19. Your thoughts
Herman Cain was hospitalized about 10 Days ago. He is reported to be improving. He has stage IV colon cancer with mets to the liver. I first noticed Mr. Cain after I was diagnosed with Stage IV esophageal cancer. I had been given 4-9 months to live. I saw him on one of those morning programs like Good Morning America. At…
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Greg - We're all pulling for you!!
It makes me nervous when we don't hear from our fearless leader for a day or two, especially when we know you are in the hospital and having trouble eating and swallowing. I just want you to know that everyone at WhatNext is pulling for you, praying for you, sending positive thoughts, and hoping we'll see you here again…
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What gives you joy right now?
Between cancer and the pandemic, the future can look pretty bleak. What gives you joy during this rough season of unknowns? Mine is knitting and having Face Time with the grandkids. What's yours?
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Do you have a hematologist?
A friend who went through cancer treatments before me asked what my hematologist has said. I don't have one and haven't heard anyone of my doctors suggest it. Is this a common thing?
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Immune system & COVID-19
Apologies. I don’t know how to delete my previous post. My question is how long is your immune system considered compromised after BC treatment - lumpectomy, chemo and radiation in my case. I am a good 6 years post-diagnosis and treatment. So am I at higher risk for this Coronavirus or is my immune system back to normal?
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Do you have a design on your facemask?
Post a picture of yourself wearing your mask on the pinboard., no matter what kind it is.
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I was just browsing through my billing at Vanderbilt and found my bill for my surgery on Jan 28.
My bill was 174,000.00 and my wonderful insurance appears to have paid 22K leaving us 152,000.00 to pay. No problem! Excuse me while I run out to the garden and dig up our coffee can. That's where we keep the "big" money.
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PAIN TREATMENT
you know if doctors had to experience the side effects that we feel. had all of our bad side effects they would be better in treating us.
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Neuropathy in tongue
Has anyone experienced neuropathy in their tongue. I don’t remember this from my first round of chemo, but it seems like I have some now as well as my hands and feet.
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Face Masks - Since it appears that they will be a part of our lives, have you found a good source?
There are all sorts of places popping up online that are selling different looking facemasks, I've also seen that a good number of them are scams. Several friends have ordered some with certain graphics on them that are of interest to my friends to never get them. These places advertise on Facebook a lot. You can sometimes…
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Our guest blog post today is from our own @Omalayce, she shares her experiences with 4 types of canc
including her most recent with breast cancer. Take a look at her post here>> https://www.whatnext.com/blog/posts/tips-learned-during-a-3-year-journey-with-breast-cancer
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Characteristics of Cancer Patients/Survivors
Do you know that we all have characteristics and that when you survey thousands of cancer patients they come to the top? Our blog post today highlights 13 Characteristics Worth Developing When Dealing With Cancer. Take a look and see how many of these characteristics you have, and list some that you might have that aren't…
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Since the corona virus is ramping up again, have you missed any doctor's appointments?
I am considering canceling anything that is not mandatory, treatment, or follow up, etc. I'm not going just for "check-ups" anymore.
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I'm losing weight and started drinking these nutrition shakes, they're not to tasty, are they?
Which variety/brand/etc have you found to be actually good tasting? It's a shame that something that we need can't be actually good to drink. I think I'll try blending one with some ice cream and see if that helps.
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Need to Chill
A few months ago I had an echogram which showed some heart issues. Been through several tests and my aortic valve needs to be replaced. I've been told it's possible that radiation caused it. The surgeon should be calling tomorrow to tell me whether I need to have open heart surgery or a less invasive procedure called TAVR…
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Being Positive
My last question/post had to do with testing my positivity. As I expressed in that post, it just seemed like the day was testing me a lot. I am over it. I just needed to vent a bit. Sometimes things get the best of us. I am happy that some of you remain positive all the time, or constantly seek the positive. We all do what…
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Do any of you get dizzy when they draw several viles of blood?
This is the 3rd time I've nearly passed out.
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anyone have endocrine therapy (Letrozole/Femara) for maintenance for ER positive OC
anyone have endocrine therapy (Letrozole/Femara) for maintenance for ER positive OC
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anyone have endocrine therapy (Letrozole/Femara) for maintenance for ER positive OC
anyone have endocrine therapy (Letrozole/Femara) for maintenance for ER positive OC
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Testing my Positivity
Over the past couple of days, lots of posts about maintaining a positive frame of mind. I have been trying to do so, but today is testing my patience. When we bought our house in 2004, it was a couple of years old. All of the appliances (builder grade stuff) are reaching the end of their life. In the past week we have had…
