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WhatNexters in the New York Metro, Tri-state area.
Would love to hear from any of our friends in the new epicenter. Hope you're doing OK. I'm a New Yorker but at night I can see the light in the sky over Montreal so about as far away from the city as I can be and still be in the same state. Nevertheless, thinking of you all and really concerned for your welfare..
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Boost your immune system? This doctor says we can.
Doctor's Note: Can you boost your immune system? A doctor explains how our immune systems work and what we can do to help them function normally. In the current climate, health is on everyone's minds and we are all thinking "How can I avoid catching the coronavirus?" We are washing our hands incessantly, standing two…
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How is the general public reacting to this pandemic in your area?
What we are seeing is so many of the younger people are not paying attention to this and don't think it's a big deal. They are infecting others and making this worse I'm afraid.
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Drug or Chemo Therapy | Chemotherapy
I went for my second chemo last Tuesday, 3/24. As the medical center is only allowing patients in the treatment room, the entire place was quiet with few people around. So far, I am managing my side effects (nausea, constipation/diarrhea) without medication, but using ginger, prune juice, and the BRAT diet.
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Do you feel like music helps you get through this? The cancer, not the other thing going on right no
I've always been a musical person, I play guitar and listen deeply and inquisitively to all types of music. Sometimes the lyrics lift me up, other times I can disappear into the song listening to how the different instruments are being played. It's sort of an escape for me while I'm sitting in the chair. What about you?
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Oh No | Just Diagnosed
Being CLL and the generally good prognosis, I'm calm, but now I feel like I am cursed with a cloud over my head for the rest of my life.
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What does your treatment facility look like during all of this?
I went in for treatment yesterday and was shocked at how the place reminded me of one of those movies where the whole world is dying off due to some disease. I guess life is imitating art in this case. A checkpoint to get inside the facility at the front door, followed by a trip down a hallway. Everyone is wearing full…
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What type of procedure or surgery/treatment have you had canceled because of this virus?
I am back in treatment for a relapse and need a biopsy and possibly a portion of my lung taken out. I am being treated at a large facility that is almost closed. There are arguments going on about what is considered "elective".
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Procedure or Surgery | Ultrasound, CT, PET scan, interventional radiology needle biopsy
Ultrasounds and CT were as expected- quick and easy. The second needle biopsy had to be CT guided with an interventional radiologist due to the lymph node being located right behind his carotid, and the procedure lasted about an hour. He reported minimal discomfort after the procedure. The PET scan took about 2 hours, and…
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Is all of the coronavirus overload of information making you freak out? Have you run out to see if y
Our blog post today is meant to steer your mind away from it and hopefully calm that last frazzled nerve. Ms. Jane has put together a good one for us, take a look at it here>> http://bit.ly/2QqrP5A
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I have just been diagnosed, I am trying to make long range plans for our family, assuming this runs
My doctors have said that this doesn't appear to be anything they can't control. That is assuming nothing goes wrong during this process. My question is how long has it taken most of you from the time of diagnosis to the point of having your last treatment? I am taking a giant leap of faith in assuming that there won't be…
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Why are we "social distancing"? This article explains one woman's view of it, but it could be any of
'I’m An Immunocompromised Terminal Cancer Patient. You Are Social Distancing For Me' Rachel Bradbury is a mother of three who was diagnosed with ovarian cancer at age 41. My name is Rachel Bradbury and I’m a wife, mother of three, and volunteer worker living in Houston, Texas. Four years ago, at the age of 41, I went in…
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My doctor started me on thyroid medicine a couple years ago.
Lately, it has been increased twice. After the last time, I seem to not be sleeping well. Does anyone have issues sleeping while on thyroid meds?
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Do you need a project while you're isolated? Our blog post today has some ideas.
Destress your life by decluttering. Read our blog post here>> https://bit.ly/33Nra3N
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My treatment facility has just informed me that someone that works there tested positive.
Has this happened at any of your clinics?
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We have had a few questions emailed to us concerning treatment facilities, wanting to know if they a
The best place to get information about your facility, is from your facility. But, just as a survey, please tell us what is your facility doing during this issue? Still having treatments? What practices are being adopted?
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Home made Toilet paper- recipe makes sense
part 2 Soak the paper in a bucket or a tub of water. This will help remove the ink from the paper. Remove the paper after the ink appears to be 75 percent gone. Step 2 Place the paper in a large pot with a couple of handfuls of leaves and grass. This will help the paper fibers remain together. Fill the pot with water so…
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Renal Cell Carcinoma
It is now Monday, 3/23 at 11:20 p.m. I'm in the "questions" area and the latest, most recent post says "2 days ago". Does this mean the site is down? I've tried to refresh and it comes back the same. Please advise when you can.
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Home made Toilet paper- recipe makes sense
eHowCraftsPapercraftsOther PapercraftsHow to Make Toilet Paper How to Make Toilet Paper CAROLINE BALDWIN UPDATED ON AUGUST 30, 2017 Toilet paper (Image: cristinairanzo/Moment/GettyImages) VIDEO OF THE DAY Things You'll Need 8 large sheets newspaper, 1/2-pound copy paper or non-glossy magazine pages Bucket or tub Water…
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My doctor wants me to do a 'teleconference" checkup tomorrow instead of coming to the office
I'm good with that, just wondering if it's going to be productive. I can do a phone call, or a video call if he wants, but they can't do blood tests over the phone line. I'm also wondering about the costs. Are they going to try to charge me for a full on office call for this? Has anyone done this?
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Has anyone been put on Kisqali?
It's a new drug for breast cancer. Just curious if there are any results yet?
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No visitors, nobody can go with me to the hospital for surgery!
My hospital just told me that when I have surgery in 10 days that nobody can go with me. They can drop me off at the front door and pick me up. Only those who are in the hospital already can stay. I believe I'm canceling my surgery I was getting a port put in but it can wait. I'm not going without any of my family there to…
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I get quite nervous during times of stress like this.
How do you stay calm and take your mind off of it?
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Do you look at the blog page regularly? We post new articles weekly, sometimes 2 or 3 times a week.
We usually post articles that are current and relative to cancer patients, caregivers, and survivors. If you ever have a topic in mind that you would like to see an article about, drop me an email and we will put it together. information on what we are dealing with is our fuel, we cancer patients have questions and need…
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Celebration | Drugs Reduce
It has been 7/1/2 years now but I winning my battle I have went down to just one drug when I use to have to take 4 different type.God is Good, I know that I will have to be on a drug for the rest of my life to keep things under control but right now I feel good and my hair has started to come back. I am blessed
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Scared
So it has been awhile since I posted about my husband. Well last year he was in clinical trial and had no blood transfusions for over a year. Just recently in the last 4 weeks he has had 8 pints of blood. He had abdominal aortic aneurysm, double pneumonia and two not one grandmall seizures. He has had it very rough. His…
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Return
Carm - I just wanted to say how great it is to see you again on the site. I trust that you are well. It's always been good to have someone so well versed in our quest against Cancer.
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Today's lesson I learned about being a laryngectomee.
I've noticed that liquid, whatever I drank last, tends to run out of my nose a lot. Especially if I bend over. I learned today that the sphincter muscle that used to keep things down in was removed so gravity takes over and whatever I drank last just flows back out.
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Lymph nodes showing up on a CT scan and the doctor says they are "nothing"?
I have been doing well for a couple of years now and recently had a checkup with a scan. My doctor said there were some lymph nodes that are showing up but they are nothing. I don't like that description, especially since nodes haven't shown up before, or if they did they weren't mentioned. So now I'm questioning if I…
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I'm still here
Yeah, I've MIA for a few days. Dragged my work computer home on Friday. Problem is, no internet until today. My cable company came and installed internet this afternoon, so I'm back. I'll catch up on stuff tomorrow... Ohio officially has a stay inside order. You can go out for essentials like groceries, pharmacy, food (our…