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Do you look at the blog page regularly? We post new articles weekly, sometimes 2 or 3 times a week.
We usually post articles that are current and relative to cancer patients, caregivers, and survivors. If you ever have a topic in mind that you would like to see an article about, drop me an email and we will put it together. information on what we are dealing with is our fuel, we cancer patients have questions and need…
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Celebration | Drugs Reduce
It has been 7/1/2 years now but I winning my battle I have went down to just one drug when I use to have to take 4 different type.God is Good, I know that I will have to be on a drug for the rest of my life to keep things under control but right now I feel good and my hair has started to come back. I am blessed
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Scared
So it has been awhile since I posted about my husband. Well last year he was in clinical trial and had no blood transfusions for over a year. Just recently in the last 4 weeks he has had 8 pints of blood. He had abdominal aortic aneurysm, double pneumonia and two not one grandmall seizures. He has had it very rough. His…
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Return
Carm - I just wanted to say how great it is to see you again on the site. I trust that you are well. It's always been good to have someone so well versed in our quest against Cancer.
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Today's lesson I learned about being a laryngectomee.
I've noticed that liquid, whatever I drank last, tends to run out of my nose a lot. Especially if I bend over. I learned today that the sphincter muscle that used to keep things down in was removed so gravity takes over and whatever I drank last just flows back out.
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Lymph nodes showing up on a CT scan and the doctor says they are "nothing"?
I have been doing well for a couple of years now and recently had a checkup with a scan. My doctor said there were some lymph nodes that are showing up but they are nothing. I don't like that description, especially since nodes haven't shown up before, or if they did they weren't mentioned. So now I'm questioning if I…
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I'm still here
Yeah, I've MIA for a few days. Dragged my work computer home on Friday. Problem is, no internet until today. My cable company came and installed internet this afternoon, so I'm back. I'll catch up on stuff tomorrow... Ohio officially has a stay inside order. You can go out for essentials like groceries, pharmacy, food (our…
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My hands are becoming raw from hand sanitizers and washing, Are there any remedies ?
My hands are becoming raw from frequent hand washing, sanitizers and wiping down surfaces with clorox. I heard somewhere that hand lotion attracts germs ? I cannot get out to get an aloe vera plant? Any other suggestions
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My doctors appointments have been cancelled, deemed, "not needed"
I am doing better now, and would agree that I'm not where I was a few months ago. But still, for someone that needs to be at their doctors offices, I'm not sure how that is working. Are you able to see them when you need to?
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This tingling that has started mainly in my fingers and toes/feet is what I have been told is neurop
How long can I expect this to last? Is it short or long term? Revlimid.
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Immunotheraphy and Covid19
Interested to hear from those in Immunotheraphy treatment, what you may have been told about Covid infection while being in this treatment?, My belief is we are neither suppressed or compromised, but perhaps another layer of being protected by having a ramped up immune system?, Again no data to confirm.
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I am developing white stripes across the ends of my fingernails
Is this a normal reaction to chemo?
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In remission and working
What are your thoughts on working and this virus? I am in remission from AML and stem cell transplant. I returned to work as a Registered Nurse a few years ago. I had 4 years of photophoresis and am really nervous. What would you do? Take off work? Stay and work?
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Several hospitals in our area are cancelling surgery except for emergency. .
Has this happened to any of you yet? I have a surgery scheduled for the 31st to put in a TEP device in my throat that is supposed to help me speak. I haven't heard from the hospital that anything has changed, but I'm sort of expecting it.
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Our glitch on the site has been fixed, sorry for the inconvenience and delay in getting it fixed.
The questions that were asked during this time were not populating on the questions page, they were just going to the home page feed of whoever asked them. The Pinboard had a similar problem. Both are fixed and are working fine now. Please repost any questions you may have posted in the last two days so they will show on…
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Oh No | Just Diagnosed
denial, mad, hopeful
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Procedure or Surgery | Surgery
radical hysterectomy through robotic surgery
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Another part of my new reality of living life as a laryngectomee
I have this little tube that goes in my stoma, it's called a "larytube". Its purpose is to hold my stoma open so it doesn't heal shut, or at least shrink. But its main purpose is to hold a little filter device called a Heat and Moisture Exchanger (HME) The idea is that with your nasal cavity your air comes in and out of it…
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I noticed the Red Cross is asking for blood donations on the news.
Apparently the virus is causing a drop in blood drives and it's hurting those who needs it. I have donated before I had cancer, I was wondering if we can donate being cancer patients? I haven't called them yet. Thought someone here would know.
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Not Cancer Related - A Place for Good News
Hi, everyone. I've been looking for some good news lately and remembered a site called Good News Network. It has very short stories about people doing kind things for others. You might want to check it out if you could use some good news. The web site address is: goodnewsnetwork.org
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Side Effects | Nerve damage (peripheral neuropathy)
Someday’s it is so hard to walk!!
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Drug or Chemo Therapy | Daratumumab+Pomalyst+Dex
Treatment new since myeloma has returned. In middle of treatment so still feeling side affects.
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Our March Newsletter is out!
Click below for some of our most popular blog posts and topics over the last month. https://conta.cc/2vHtE7d
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I just saw that today is "Common Courtesy Day". We have to have a recognized day for that?
Shouldn't that be every day?
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While you are in the middle of treatments have you felt like you have lost control of your life?
Does it seem like you are just along for the ride? And for those that are done with treatment and trying to move on, do you think that you have tried to overcompensate for not having control while in treatment, now you're trying to do every little thing that needs to be done? I think my mind is playing tricks on me.
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Drug or Chemo Therapy | Hormone therapy
After getting back my sentinel node biopsy results, pathology and Oncotype DX test, all of the results were encouraging and led to the decision to proceed with hormone therapy, Anastrazole. I have had some hot flashes and a few joint pains. I somewhat wonder if I should have waited a bit longer to start taking the…
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Procedure or Surgery | Mastectomy
Had mastectomy on 2/26/2020.- left breast. The worst part of all of it was the surgical drain. Once that was out I have felt much better.
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How has Covid-19 afftected your treatment facility?
Are treatments still being given? Are you having to sit in your car until called in to have your treatment? Only 10 people at a time allowed inside? I've seen a lot of this happening around us. I made some calls yesterday and was told a variety of these. My facility will only let you come in when it's your time. Until then…
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Are there any cancer types that are more susceptible to the virus than any other?
I've heard it said that anyone with compromised immune systems, on chemo, or radiation. I'm guessing any of us with a cancer diagnosis are in that category.
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In times of sinking sands, turn to your pets
In times of sinking sands, turn to your pets
