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My hands are becoming raw from hand sanitizers and washing, Are there any remedies ?
My hands are becoming raw from frequent hand washing, sanitizers and wiping down surfaces with clorox. I heard somewhere that hand lotion attracts germs ? I cannot get out to get an aloe vera plant? Any other suggestions
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My doctors appointments have been cancelled, deemed, "not needed"
I am doing better now, and would agree that I'm not where I was a few months ago. But still, for someone that needs to be at their doctors offices, I'm not sure how that is working. Are you able to see them when you need to?
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This tingling that has started mainly in my fingers and toes/feet is what I have been told is neurop
How long can I expect this to last? Is it short or long term? Revlimid.
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Immunotheraphy and Covid19
Interested to hear from those in Immunotheraphy treatment, what you may have been told about Covid infection while being in this treatment?, My belief is we are neither suppressed or compromised, but perhaps another layer of being protected by having a ramped up immune system?, Again no data to confirm.
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I am developing white stripes across the ends of my fingernails
Is this a normal reaction to chemo?
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In remission and working
What are your thoughts on working and this virus? I am in remission from AML and stem cell transplant. I returned to work as a Registered Nurse a few years ago. I had 4 years of photophoresis and am really nervous. What would you do? Take off work? Stay and work?
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Several hospitals in our area are cancelling surgery except for emergency. .
Has this happened to any of you yet? I have a surgery scheduled for the 31st to put in a TEP device in my throat that is supposed to help me speak. I haven't heard from the hospital that anything has changed, but I'm sort of expecting it.
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Our glitch on the site has been fixed, sorry for the inconvenience and delay in getting it fixed.
The questions that were asked during this time were not populating on the questions page, they were just going to the home page feed of whoever asked them. The Pinboard had a similar problem. Both are fixed and are working fine now. Please repost any questions you may have posted in the last two days so they will show on…
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Oh No | Just Diagnosed
denial, mad, hopeful
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Procedure or Surgery | Surgery
radical hysterectomy through robotic surgery
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Another part of my new reality of living life as a laryngectomee
I have this little tube that goes in my stoma, it's called a "larytube". Its purpose is to hold my stoma open so it doesn't heal shut, or at least shrink. But its main purpose is to hold a little filter device called a Heat and Moisture Exchanger (HME) The idea is that with your nasal cavity your air comes in and out of it…
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I noticed the Red Cross is asking for blood donations on the news.
Apparently the virus is causing a drop in blood drives and it's hurting those who needs it. I have donated before I had cancer, I was wondering if we can donate being cancer patients? I haven't called them yet. Thought someone here would know.
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Not Cancer Related - A Place for Good News
Hi, everyone. I've been looking for some good news lately and remembered a site called Good News Network. It has very short stories about people doing kind things for others. You might want to check it out if you could use some good news. The web site address is: goodnewsnetwork.org
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Side Effects | Nerve damage (peripheral neuropathy)
Someday’s it is so hard to walk!!
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Drug or Chemo Therapy | Daratumumab+Pomalyst+Dex
Treatment new since myeloma has returned. In middle of treatment so still feeling side affects.
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Our March Newsletter is out!
Click below for some of our most popular blog posts and topics over the last month. https://conta.cc/2vHtE7d
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I just saw that today is "Common Courtesy Day". We have to have a recognized day for that?
Shouldn't that be every day?
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While you are in the middle of treatments have you felt like you have lost control of your life?
Does it seem like you are just along for the ride? And for those that are done with treatment and trying to move on, do you think that you have tried to overcompensate for not having control while in treatment, now you're trying to do every little thing that needs to be done? I think my mind is playing tricks on me.
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Drug or Chemo Therapy | Hormone therapy
After getting back my sentinel node biopsy results, pathology and Oncotype DX test, all of the results were encouraging and led to the decision to proceed with hormone therapy, Anastrazole. I have had some hot flashes and a few joint pains. I somewhat wonder if I should have waited a bit longer to start taking the…
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Procedure or Surgery | Mastectomy
Had mastectomy on 2/26/2020.- left breast. The worst part of all of it was the surgical drain. Once that was out I have felt much better.
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How has Covid-19 afftected your treatment facility?
Are treatments still being given? Are you having to sit in your car until called in to have your treatment? Only 10 people at a time allowed inside? I've seen a lot of this happening around us. I made some calls yesterday and was told a variety of these. My facility will only let you come in when it's your time. Until then…
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Are there any cancer types that are more susceptible to the virus than any other?
I've heard it said that anyone with compromised immune systems, on chemo, or radiation. I'm guessing any of us with a cancer diagnosis are in that category.
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In times of sinking sands, turn to your pets
In times of sinking sands, turn to your pets
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In times of sinking sands, turn to your pets
Here is a is one of the newsletters I get from Dr. Marty Becker : In times of sinking sands , turn to your pets Unless you went through the Spanish Flu of 1918 and the Great Depression of 1929, you wouldn’t really know what we’re going through now as a community, county, country, continent, and world facing the COVID-19…
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Procedure or Surgery | Right Temporal Lobectomy
Although the surgery has caused my to have a little bit of cognitive impairment I learned to deal with it because I know Jehova God Will Provide. So I have no regrets about my surgery
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I completed therapy in September. My hair is growing back so slowly. I'm wondering if any of the h
I've seen several products like special lights, etc. Any one have any positive experiences.
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It's a new month! March is here, supposedly the best time of the year. Spring has sprung!
What do you hope to get out of March? For me, I want this feeding tube out of me, hopefully Tuesday that will happen, but I have doubts no that my oncologist said that she doubted it would happen because it takes longer than this for it to heal. While I'm not sure what is going to heal when it is sticking through me.…
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Drug or Chemo Therapy | Chemotherapy
Started kadcyla feb 24 2020
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Procedure or Surgery | Implant chemotherapy port
Feb 18 2020
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Procedure or Surgery | Surgery
Final reconstruction and port removal June 2015
