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Procedure or Surgery | pelvic exenteration
This is a total removal of pelvic organs. I was lucky enough to keep.my bladder. But since have had a tumor removed from my bladder. And a matasis to a nodule in my lower love of my left lung.
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Celebration | Anniversary
Blessings to everyone here! 5 years ago today I was diagnosed with Ovarian Cancer after battling, misdiagnosed, for 14 very long painful years. Back then I was given a very very bad prognosis BUT... Against all odds, I'm now done with ALL that, and doing GREAT... so I'm here to celebrate with all of you!!! Hopefully my…
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Loss | Job
Lost job while undergoing treatment
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Side Effects | Rash
Terrible rash with erbitux resulting in blisters
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Radiation | External radiation
So much rectal burns
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Drug or Chemo Therapy | Chemotherapy
I'm currently on my forth type of chemo. I started with a pill form of xeloda with radiation five days a week for a little over 3 months to shrink tumor for surgical removal of my colorectal tumor. Then I was forced to go back to work or lose my job as my FMLA benefits were exhausted. I did cryofreeze treatments to keep my…
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Are you living through a scavenger hunt? Do you want to share, laugh, vent, worry. I heard some peo
think the delivery is germ free. . Anyway, after spending almost 2 weeks trying to find salt-and Levi- the master scavenger did finally find salt- I've been ordering online--things like tapioca, 50# all purpose flour, dry milk,
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This week is Oral, Head, and Neck Cancer Awareness Week
As you might guess, this one is on top of my totem pole. Oral, head and neck cancer refers to cancers that arise in the mouth, voice box, throat, sinuses, nasal cavity or salivary glands. Worldwide in 2020, there will be more than 650,000 new cases of oral, head and neck cancer diagnosed and approximately 330,000 deaths…
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Was anyone following the Eddie Money show last year up to the point when he died?
The album he was working on is now being released: Release Announced: Album from Rocker Eddie Money, lost to Esophageal Cancer last September. First New Songs from Money since 1999, originally planned for release last summer. https://ultimateclassicrock.com/eddie-money-brand-new-day/
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Did anyone have to repeatedly tell your doctor that something was wrong?
I was told several times that nothing was wrong. Physical exam, chest Xray, cat scan, and was told each time nothing is wrong, nothing looks out of place. I had another doctor look at CT scan and they wanted a biopsy of something that was seen on the scan. That confirmed it. If I had not been persistent the cancer would…
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Another one:
When tough times come your way, you really only have two options. You can either fight the waves or you can ride them. You can spend all of your energy wishing situations would change. You can spend your precious time fighting against reality and all that is - or you can let go and ride the waves with faith. You can ride…
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What are you doing to keep occupied since almost everyone is on isolation?
If I cook much more I'm going to gain 20 pounds by the time this is over. I guess I could take up exercise......nah, who am I kidding?
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Can you be approved for disability after going through cancer?
I know that not all cancers are the same and each person would be different, but I am just wondering if anyone has been successful. I know I won't be able to do my job that I am still at because every week that goes by I am not able to do as much as the last week. I just feel it coming that I will be let go.
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There are laws that are supposed to keep an employer from forcing someone out of their job due to a
but we know it happens quite often. How many of you feel like this happened to you? The reason for letting you go will run from missing too much time, unable to perform your duties, to not being able to travel for your job. An employer will find lots of ways to let you go if you're not able to do your job. Being a business…
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How long was it before you started treatments after you were diagnosed?
Things are crawling along sooooo slowly. With all of this going on even the healthcare system is crippled. I'm afraid that if I don't get started soon I will progress to another stage
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Anyone with recurrence of anal cancer.
Experience second time around.
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Here is a story about another cancer patient having her surgery canceled because of the Covid19
It's going to take months before we can get re-scheduled to have procedures done. This is going to be a mess and people are going to die waiting. 70-year-old thyroid cancer patient and retired nurse, Carol Ann Horn, had her surgery postponed due to state order to reduce the spread of COVID-19. Watch Now >>…
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Do you reveal your cancer diagnosis during the application process for a loan?
I am refinancing our home and my bank doesn't know about my diagnosis. I am afraid to reveal anything about it for fear that they will consider it a liability for me and not approve my loan. Have any of you been through the loan process while having cancer? Are there any laws that protect us?
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Procedure or Surgery | Chemo/radiation
Reacted in top 5% to radiation high level pain
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Do youy ever have people look at you and just say HUH? when you tell them what type of cancer?
I have osteosarcoma. It's a rare bone cancer and when I tell people (when they ask) what I have I usually get a blank stair. People just aren't familiar with it. Because of this I usually try to stay away from even talking about it. Anybody have that problem?
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ARe you familiar with Tomotherapy and Halcyon therapy? These are two types of radiation.
Our blog post today has information about these two types of radiation. Take a look by clicking this link https://bit.ly/2RqW78P
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Anyone had regular flu, or some type of infection that affected you so bad you had to stop treatment
I know the chemo will knock my immune system down and we are more apt to get various problems. I'm worried I might get something that causes me to stop treatment. Does this ever happen?
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April cancer awareness diagnoses are: Head and Neck Cancer, Esophageal Cancer, and Testicular Cancer
Our blog post today has some information about each with some resources you can check out. Take a look at the article here>> https://bit.ly/2UWE7FC and please use the social media share buttons at the bottom of the article to share! Thank you for your support!! The WhatNext Team
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I was supposed to have surgery on April 1st, that was canceled. I am also supposed to have a checkup
I am more anxious about that than the surgery to install this TEP device. I want to be looked at to make sure everything is healing like it should and nothing is seeking up on me. No appointments are being scheduled now, and with all of the surgery, office visits, procedures, etc that are being canceled I can imagine that…
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Does treatment make your joints hurt sort of like having arthritis?
I feel stiff joints when I get up from a chair. After I have been sitting for a while it hurts pretty bad to get up and walk. Is this normal?
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Bilateral
I may have asked this before but I'm still curious as to anyone out there who has Bilateral RCC Renal Cell Carcinoma?
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Care Oncology Clinic
Has anyone out there used this cancer center for metabolic treatment of an advanced cancer?
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Other Care | Home care
I had a home health nurse (actually several different ones because the COVID-19 crisis started to ramp up just as I had completed surgery). They came to take vitals and help me with checking the incision site and surgical drain. I could have done okay without them, but it was more a backup for me. Years ago I got…
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Procedure or Surgery | PET SCAN and MRI
I underwent PET scan and MRI to determine if there was any evidence of disease in the right breast. Thankfully no.
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Coronavirus creeping closer. Do you feel it's closing in?
It seems we've been a little off subject lately with all the talk of the virus, toilet paper, etc..., But then I realized this is of real concern to many of us. Many of us are in the "at risk" groups of compromised immunity, elderly, with additional health concerns. This morning I heard there was a confirmed case 2…
