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Are there any Folks here with current diagnosis of CMML (Chronic Mylemonocytic Leukemia)? Is diffe
Are there any Folks here with current diagnosis of CMML (Chronic Mylemonocytic Leukemia)? Is diffe
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Other Care | Herceptin
Continued receiving for a full year along with Chemo and radiation and after other procedures were completed.
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Other Care | “Watch and Wait” is monitoring blood ever 3 mos. or Bone Marrow Biopsy when needed
Chronic Mylemonocytic Leukemia (CMML) is also Known as “Smoldering Leukemia”. In early diagnosis like mine Stage CMML-0 the recommended treatment is to “Watch and Wait” by monitoring blood levels (monocytes and counts) ever 3 mos. signs of change guide biopsies and treatment be it BMB, transfusion, chemo or Transplant.…
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Drug or Chemo Therapy | Chemotherapy
Lost hair, felt sick
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Other Care | Palliative care
After short chemo, had very successful hormone therapy for at least six years, then Ibrance for growing lung tumors
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Radiation | External radiation
Wasn’t bad
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Want to Cry (Happy)
I just called the place that fitted me from my breast prosthesis/form to find out who I pay for my cost share of what remained after insurance paid. I found out they just wrote off my patient cost share and the order has been put in. I had been waiting to get my EOB to find out my cost share and with terrible mail here, I…
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SITE ANNOUNCEMENT: Ongoing Moderation
Hello everyone, wanted to reach out again to re-introduce myself. I am helping out with moderation here on WhatNext. I have been working when I can to help with the spam issues and other maintenance in the background of the site. I am sorry if people feel like I haven't been as attentive as I should be on the front end and…
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Hey breast cancer fighters and survivors! Help me with Lymphodema
My 33 year old daughter was diagnosed with stage 0 last fall and subsequently had a double mastectomy. She is BRCA positive with a strong family history of breast cancer. She now suffers from debilitating lymphodema and has actually been hospitalized a number of times due to this. Anybody out there suffering the same fate…
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Can cancer come back if you are in remission almost 3 yrs
I had triple neg stage 3 masstated in to 4 lymph nodes i had 5 removed and I choose to have a reconstruction of the breast they took my plastic surgery is hult due to he is concerned that it might be back in my lymph nodes? Does anyone have any suggestions thoughts or been threw ot then my oncologist is worried I may have…
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Checking in on WhatNexters in and Near the East Coast
I hope all of our WhatNexters in and near the east coast are safe and sound. What a storm! The scenes on tonight's national news were quite something. Please take care.
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Moderator
I've made a concerted effort to log in everyday to read the latest. I comment when I feel it is appropriate to do so. But I was wondering if we still had Colby as a Moderator. I don't remember seeing anything since his introduction but perhaps I overlooked a post(s). For those of you that pray, I'd appreciate a few for my…
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Moderator
Has anyone heard anything from our new moderator Colby? Maybe I missed something. I haven’t seen any more posts since his introduction.
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To lighten your mood on a cold winter day!
Need a chuckle? Every now and then I look for things to lighten my mood. Here are a few Life’s Truths for Mature Adults. • I totally take back all those times I didn’t want to take a nap when I was younger! • Was learning cursive really necessary? • Google Maps really needs to start their directions on #5. I’m pretty sure…
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Metastasis to bladder?
Has anyone had their uterine cancer spread to their bladder? If so, what were your symptoms?
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UPDATE #4 (?)
I've lost count. @Carool You have a good memory. I did go to my own Pulmonologist as scheduled. She said she recommends a minimally invasive procedure called an EBUS. It's a new procedure, first done about 10 years. She said that at that time she had an established practice and didn't want to lose the time from the…
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Right now we are still trying to grips with t...
Right now we are still trying to grips with this new struggles in our lives. We are definitely scare and worry about the future
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pet scan, slight glow
i had a pet scan for a spot on my right lung, i had part of it removed 3 years ago, and 3 months ago in a ct scan showed a small spot in the suture area of my lung. I had a pet scan last week and it glowed and their was a slight glow on my right breast same side as my lung surgery. my nipple is sore and both my breast are…
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Procedure or Surgery | Mohs surgery
I also had Basil cell carcinoma, so I’m going in every 3 months for full body rechecks , on both melanoma and Basil cell carcinoma
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I HAVE versus I AM
We all live with our diagnoses day in and day out. I can see how that diagnosis becomes part of the every day speech in our life. For some, the reminders are more ever present than for others. I have been noticing the tendency, over the past few days, to state "I am TNBC" or "I am ...." rather than "My diagnosis is TNBC"…
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Procedure or Surgery | Implant chemotherapy port
Anesthesia made me nauseous one full day.
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Procedure or Surgery | CT scan
CT scan after office sample taken and results given.
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Oh No | Cancer is back/Recurred
Diagnosed two weeks shy of 5 year cancer free milestone.
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in hospice for 1month now but still no pain relief about to go crazy i just need some kind of pain c
in hospice for 1month now but still no pain relief about to go crazy i just need some kind of pain c
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3rd UPDATE
When I last left off, my lung biopsy was xcld the day before because of the collapse risk. But my Oncologist when called by the Interventional Radiologist that was scheduled to do it, arranged for a Consult with a Dr. of Thoracic Surgery about an hour from me. It was only a week's notice which can be a problem when the…
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Lymphedema?
I am curious about lymphedema? Here are things I would like to know: 1 - If you have it, what were your early symptoms? 2 - Can it be prevented? Are there exercises that can help? 3 - Does a compression sleeve help? If so, where do you get one? I have had lymph nodes removed and am therefore curious about this possible…
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Being THAT person
After a rough time with new building tenants (new owner), I have been asking for key to the equipment room to be returned for almost a week. I am asst. to the building manager. My supervisor was on my tail to get it back so I was being very persistent. Yesterday, the person who had the key emailed me and asked if I could…
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Orig. diagnosed '13: AA gr. 3, stable for 5 years, returned in 2020 as GBM - new treatments? Age 29
Hi, I'm a 29 y/o female. I'm resuming my 2nd cycle of oral chemo (CCNU/Gleostine) this week. I started in Sept. but my counts dropped to an unsafe level. I want to do more besides chemo, but don't know what. I'm getting a functional MRI tomorrow to see if the new mass is able to be safely removed. In 2013/14 (when I was…
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Trials for triple positive breast cancer metastasized to bone
Trials for triple positive breast cancer metastasized to bone
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Has anyone taken erleada for prostate cancer
Has anyone taken erleada for prostate cancer
