Ways of dealing with chemo induced neuropathy

ezmonday
ezmonday Member Posts: 5
edited December 2020 in General Cancer
Good morning all, I recently started chemo and one of the hardest side effects I’ve Ben dealing with is severe neuropathy in my feet. I’m going to ask my oncologist about it when I see him today. But I am wondering if you have dealt with this issue what did you find helps. I’ve lost a lot of good nights sleep because of the pain. Would especially be interested if there are any non drug solutions. Thanks in advance. Wishing you all a great day.

Comments

  • kaki54
    kaki54 Member Posts: 5
    edited December 2020
    My doctor had me take B complex vitamins. I did acupuncture and OT/PT for 3 1/2 years.
  • alivenwell
    alivenwell Member Posts: 84
    edited December 2020
    I also took 100mg of vitamin B6 and 800 IU of vitamin D3. Additionally, my multivitamin has 1000 IU. I was told to eat dark greens and eat almonds for magnesium. Before you take Vitamin D3 you want to know your body's level. B vitamins go right through your system.
  • alivenwell
    alivenwell Member Posts: 84
    edited December 2020
    Get a safety grab bar for showers. Also, get a cabinet handle and install it at your stairs. We step up to get in the house and it is useful to grab. Especially if your feet have no sensation.
    Make sure you have adequate calf compression. I never heard of an abdominal binder until a health coach outside of the hospital told me about them.
  • TerriL
    TerriL Member Posts: 60
    edited December 2020
    I developed foot neuropathy from the chemo also. Taking gabapentin helps
  • T-Birdie
    T-Birdie Member Posts: 3
    edited December 2020
    I was given gabapentin for the first 2 years. I took myself off and I use essential oil on my feet and I don't fall or trip as much as before. It has been 7 years. Please get all the safety handles as someone mentioned before and a cane you will need that as you continue with your treatment. Praying for you. #Survivor
  • po18guy
    po18guy Member Posts: 329
    edited December 2020
    I would ask for a referral to a neurologist. Secondly, I found that using my hands as much as possible doing manual things helped. The feet are slower to respond, it seems. The suggestion of Gabapentin is worth looking into. Comfy shoes and insoles are another help. Mostly I just walked as much as I coiuld, biked and used my hands for hobbies and puttering around in the garage.
  • MarcieB
    MarcieB Member Posts: 528
    edited December 2020
    T-Birdie, I would be interested to know what essential oil you have used on your feet? I am almost two years out of treatment, but I also had neuropathy linger in my feet. Mostly, I experience the numbness, like socks bunched up under my toes, but my feet would hurt at night when I went to bed. About 6 or 8 months ago I began using lavender oil on the bottoms of my feet to help me sleep better (it does) and lately I have noticed my foot pain is completely gone and my numbness is much better. It could be a coincidence because maybe the condition eases up with time? But, since you mentioned essential oil I thought I would ask.
  • lauraM
    lauraM Member Posts: 4
    edited December 2020
    Memorial Sloan Kettering has been icing my feet and hands during treatment. This has really helped with preventing neuropathy in my hands and feet. I have taken gabapentin in the past but I do not like the way it makes me feel tired.
  • Kp2018
    Kp2018 Member Posts: 105
    edited December 2020
    lauraM, I am glad to hear that MSK is providing cryotherapy to prevent neuropathy. I had to provide it for myself when I was on Taxol. While researching the side effects of my chemo regimens, I ran across the following study: Effects of Cryotherapy on Objective and Subjective Symptoms of Paclitaxel-Induced Neuropathy: Prospective Self-Controlled Trial. https://academic.oup.com/jnci/article/110/2/141/4443215

    I used the protocol with mitts and booties purchased from Amazon, and did not develop any peripheral neuropathy.

    I wish this information were more widespread. It really pains me to read of patients who suffer from neuropathy from chemotherapy, when I realize that for many patients it can be prevented.