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If you have been a member of WhatNext for very long, you have probably received an invitation to par
These are sent to you from our partner Rare Patient Voices. We have been partnering in offering our members opportunities to get paid for answering questions about your cancer experiences for over 5 years and our members have earned over 1 million dollars for doing so! Please be sure you have filled in your diagnosis type…
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Loss | Body part/function
Kidney removal 12/2018.
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Procedure or Surgery | Surgery
Had kidney removed in December 2018. Spent a week in the hospital and 2 weeks in rehab. Had to have 2 blood transfusions due to excessive bleeding.
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Drug or Chemo Therapy | BCG
After 6 BCG treatments, scans revealed that patient had bladder cancer with metastasis to the lung. BCG treatment was stopped in November 2019. BCG caused moderate pain and fatigue.
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Side Effects | Eye Inflammation
Patient suffers from inflammation in both eyes.
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Side Effects | Taste change/loss
Patient says foods don’t taste good.
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Side Effects | Fatigue (tiredness)
Patient takes frequent naps and sleeps about 12 hours per night.
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Drug or Chemo Therapy | Other
Treatment has caused overactive thyroid, eye inflammation, back and body pain, and fatigue.
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Who has experience with lymphadema in the neck?
I have a new issue that started over the weekend. My bottom lip was swollen and numb one morning, the next my neck was swollen and it was hard to swallow, my lip was a little swollen but not like the morning before. Yesterday my neck was swollen and this morning. I contacted my oncologist and asked what's up, they told me…
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Decision Point | Treatment Options
Doctor gave me the options of: abiteratone/prednisone, enzalutamide, or docetaxel (chemo) in addition to Lupron for my initial treatment. He favored docetaxel due to widespread Mets. Second opinion also favored same, with second option of abiteratone.
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Oh No | Just Diagnosed
Diagnosed with stage 4 prostate cancer with mets through hips, lower back, shoulders, sternum. Previously had no health issues, but went to the doctor for hip and shoulder pain. I originally thought it might be arthritis setting in at 46.
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Next Sunday June 7th is National CAncer Survivor's Day
A reminder for all of my fellow cancer survivors, next Sunday, June 7th is National Cancer Survivor's Day. It's sort of a big deal for us. It's a day that we can sit back and relax and look at what has tried to kill us and say, not this time. Our blog post today has some details and history about the day of cancer survivor…
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Port put in- cough with blood
My father had a port put in yesterday because he begins chemo tomorrow. He coughs frequently, but today when he was coughing, blood is coming up. He put a call to his doctor and nurse said the oxygen from his procedure yesterday could dry things out and therefore blood. Anyone else have this happen? Thanks!
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Procedure or Surgery | Bone Marrow Transplant
I am surprised at how much this procedure (and the 25 day hospitalization) knocked me on my butt! I am normally quite active and stayed as active as possible in the hospital, but am still just completely exhausted.
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Active chemo every 6 weeks. Do I have to worry about sun during treatment?
Active chemo every 6 weeks. Do I have to worry about sun during treatment?
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I am now almost a year out from radiation. B...
I am now almost a year out from radiation. But, the pain in my arm and side will not lessen. Are there any recommendations on what might help in relieving this pain? I have tried occupational therapy, heat , nothing seems to work.
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June is Men's Health Month
It's a time for men to pay attention to what's ailing us. A time to try to practice better health habits, get screened and stop standing on the top of the ladder. Some things probably aren't going to change though. Our blog post today has some information about Men's Health Month, take a look here>> https://bit.ly/2Bv7nMr…
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Interesting video - 9 parts. Part 1 was tonight
https://proven.thesacredscience.com/episode1ghr - series is called Proven. Tonight's episode looked at the scientific research that supports the following 5 activities (and tells a bit about each): Yoga Herbs, Fungi, and supplements Mindfulness Qigong and Tai Chi EFT (Emotional Freedom Technique) At least for this first…
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Who is participating in clinical trials here? What did it take to get accepted?
I am having mixed results so far with treatments, my doctor won't say anything other than "he is concerned". I want to plan ahead and not wait until they say this isn't working, I want to have a plan in place. I will be bringing this up with him the next session to see what else is next.
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squamous cell carcinoma orbital with metasis to liver
started treatment over 1 year ago did great for a while and chemo stoped working they switched hime to auto immune therapy with keytruda pembrolizumab injection has only had 2 treatments and has sores all over left leg and lower back has anyone out there had this type of treatment ? and reaction looking for some type of…
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Drug or Chemo Therapy | Chemotherapy
I started with Gemzar and abraxane and. About 17 months. Took a break and did 5Fu and iriatacin for 2 months (it didn’t work and the side effects were horrible. Now I’m on carboplatin (3 months now, every week)It seems to be slowing down the monster, but it’s still growing and spreading. The side effects are vomiting,…
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Oh No | Just Diagnosed
June 2018. I’ll never forget it. My doctor said inoperable and I have two years to live. Oh no! I have made many changes in my life to improve the quality of living around here. I’m here at two tears now and still going “strong”.
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Side Effects | Fatigue (tiredness)
After two years of chemo and radiation I feel like side effects are an every day occurrence. It varies vomiting, nausea, fatigue, pain. I can’t complain. I’m still here...
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What sort of side effects from cancer have you, do you/did you have BEFORE treatment started?
I can feel fatigue starting to sneak in a little bit, the pain in both sides of my neck is progressing, swallowing is becoming more difficult, and now this morning I woke up with a swollen bottom lip. That's a new thing, I haven't hit my face with anything so I have no idea what might be causing that. We talk about side…
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Has your doctor's office called you prior to a scheduled appointment to ask if you'd rather do a "te
I asked if there would be a charge and they said yes but not as much as the regular office visit. I'm all for not having to get out and go to the doctor but this just seems like trying to squeeze in as many people as they can without actually seeing them. How are they coming to take blood, check blood pressure, squeeze…
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I found a meme on FB that describes to a T where I am in life after this diagnosis, I posted it on t
It says: In the blink of an eye, your life can change due to disease. Your dreams, goals, life change. You no longer have time for drama, you worry less about the big things and are grateful for the little things. You leave the history of yesterday behind and concentrate on how you will use today's energy and have no time…
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Are any of you finding as this crisis goes on you are staying up later and later at night ?
I 've heard from several people who are experiencing this trend and heard a psychologists explanation. When you go to bed the hope is you will quickly go to sleep so what is the next thing that happens? You wake up and it's another day. Subconsciously, we do not want to face that coming day because of all the stress and…
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Do you find that your mornings are the worst part of your day since you started chemo?
I used to jump out of bed in the mornings, but now when the alarm goes off I just don't want to get up. I'm sore all over, I don't feel good, and it takes me an hour or more to start feeling like something. After that is over I seem to feel OK for the rest of the day. It doesn't matter if it's a treatment day or not this…
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Life insurance form
I had chemo completed in December 2013. I was finished with Herceptin July 2014. I was put on Leterzole, used until December 2018. So forms ask when I finished Cancer treatment. Is it at end of Chemo, Herceptin or Letrozole? Really confused on this. Thanks.
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Since when?
I went for a six month checkups and a Prolia Shot at the oncologist. They took my temperature before I walked in and they have me a paper saying I was ok. Had a blood test. They weighed me, did blood pressure and then the Nurse practitioner came in. She talked to me, listened to my heart with stethoscope, and then told me…
