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Looks like I may be following in Greg's footsteps
3:30 Wed morning, I got up to go to the bathroom. Glanced down, noticed iodine called fluid gushing from my navel. My PCP told me to go to the ER. I have a hernia (what is with me and hernias!) but there is also a blob. Partially solid, partially liquid. In the hospital Wed to Friday as they fight over whose problem I am.…
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How have you been doing coping with the isolation that the Corona Virus has brought?
But cancer patients have been somewhat in isolation for years, due to a compromised immune system. Have you noticed a difference? Has it caused you any issues? How have you dealt with the additional isolation? Our blog post today has some information and tips on coping with that isolation, take a look here>>…
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Genetic testing
Has anyone with prostate cancer knowledgeable about genetic testing? Where is the best place to read about this. My husband has been tested and we are waiting for the results.
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Scared of going in for check-ups during the pandemic !!!
I have many overdue check-ups and I am freaking out. Luckily I found this article I am going to follow every check point https://www.mayoclinic.org/diseases-conditions/coronavirus/in-depth/how-to-safely-go-to-your-doctor-during-coronavirus/art-20486713?utm_source=newsletter&utm_medium=email&utm_campaign=living-with-cancer
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Second re occurance
Psa today .7. It had been .01. This is my 2nd re occurance. Had surgery and 39 radiation treatments. Gleason 9. No lympnode involvement at the time of surgery. I am so scared. Can anyone give me some encouragement
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Second reoccurance
My PSA is .7 today have had procectomy 3 years radiation 2 years ago. Gleason score 9I am so scared. I feel great . Has anyone experienced this.? What will my options be
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Drug or Chemo Therapy | Radiation therapy megesterol and tamoxifen alternating every three weeks
I haven’t had any new regrowth in 2 years it the cancer still exists in my lungs.
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What kind of side effects have you had from treatments or directly from cancer?
Were any of them embarrassing? Strange? Funny? Our blog post today talks about the importance of relaying on to your doctor any side effects you may be dealing with, embarrassing, or not. They could be serious, or just an odd thing. Take a look at our article here, https://bit.ly/3cHUA6d, and comment below on what type of…
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Side Effects | Cough
Since the cancer was in both lungs I was treated aggressively. After 4 months of weekly chemo there was no more that could be done and my cough was so much worse (chemo cough) they stopped it.
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Oh No | Cancer has spread/Metastasized
Spread to both lungs, which is why I had the chemo. Wish I had a port placed cause my veins will never be the same again.
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Drug or Chemo Therapy | Chemotherapy
I had carboplatin and taxol every week for 4 months toward the end the fatigue was unbearable
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Radiation | Internal radiation
Slightly uncomfortable
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Today is National Cancer Survivor's Day!! Congratulations to you all, we've made it this far!!!
Who is a survivor? Anyone who has been diagnosed with cancer is considered a survivor from the point of diagnosis until the end of life. Some of you have just started your time as a survivor while others, along with me, have been beating it back for lots of years. This year is 32 for me, how many years have you been a…
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Oh No | Just Diagnosed
I was diagnosed with uterine cancer from a d and c biopsy procedure. I will be seeing an oncologist for the first time next week and am scared.
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Has anyone been demoted, had hours cut back, been fired, or "layed off", after getting your diagnosi
I was told when I was diagnosed that there were "no worries", your job will be here if you have to take off work, we will accommodate. Turns out words are cheap. Now I'm starting to feel some heat for missing work. I'm not out running up and down the bar streets, but at treatments, surgery, procedures, or basically just…
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Drug or Chemo Therapy | Chemotherapy
That was my first chemo now I am on Ibrance which a lot easier
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Do you look forward to the weekend when you've been in treatments all week?
After enduring 5 days of radiation and chemo to boot through the week I so look forward to not having to go to treatment on Saturday and Sunday. It's almost like a holiday to me. I love to wake up early and get some coffee going and sit in my chair and watch the morning news while browsing the internet. The only drawback…
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Xpovio
Is anyone on Xpovio?
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How long does it usually take to get your results back from a CAT scan?
I had one done early last week, my doctor said at best by Friday but should have the results this week. I checked today and his office says nothing yet. Is it normal to take that long, should I be worried? I can only think that it might be bad news.
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Treatment decision
Hi All, I’m faced with a treatment decision in the next couple weeks and wanted to see if anyone had insights or similar experiences. I have stage 4 prostate cancer with Mets to hips, shoulders, spine, and my doctor recommended docetaxel in addition to the ADT I just started. His other option was abiraterone/prednisone. He…
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Have you ever been told that acid reflux medicines might be causing some of what we call "chemobrain
There is an article in Cure Today that says research shows that it is likely. Here is the article>> https://www.curetoday.com/publications/heal/2020/spring-2020/memory-issues-acid-reflux-drugs-could-be-to-blame
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Not Cancer Related - I Want to Laugh
So to follow up on MarcieB's post about a good laugh... What TV show or movie do you watch when you want a good laugh? I think we can all use some suggestions right about now. I can't think of anything that really cracks me up but Frasier does make me laugh.
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If you have been a member of WhatNext for very long, you have probably received an invitation to par
These are sent to you from our partner Rare Patient Voices. We have been partnering in offering our members opportunities to get paid for answering questions about your cancer experiences for over 5 years and our members have earned over 1 million dollars for doing so! Please be sure you have filled in your diagnosis type…
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Loss | Body part/function
Kidney removal 12/2018.
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Procedure or Surgery | Surgery
Had kidney removed in December 2018. Spent a week in the hospital and 2 weeks in rehab. Had to have 2 blood transfusions due to excessive bleeding.
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Drug or Chemo Therapy | BCG
After 6 BCG treatments, scans revealed that patient had bladder cancer with metastasis to the lung. BCG treatment was stopped in November 2019. BCG caused moderate pain and fatigue.
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Side Effects | Eye Inflammation
Patient suffers from inflammation in both eyes.
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Side Effects | Taste change/loss
Patient says foods don’t taste good.
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Side Effects | Fatigue (tiredness)
Patient takes frequent naps and sleeps about 12 hours per night.
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Drug or Chemo Therapy | Other
Treatment has caused overactive thyroid, eye inflammation, back and body pain, and fatigue.
