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Procedure or Surgery | CT scan
CT scan repeated following 3 rounds of Avastin. Results showed drug did not help and tumors are continuing to grow. Feeling defeated.
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Drug or Chemo Therapy | Immunotherapy-Avastin
Trying another immunotherapy drug called Avastin via IV. Plan is to do 3 rounds, every 3 weeks followed by CT scan again.
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Oh No | Cancer has spread/Metastasized
After 3 months on the Olaparib, CT Scan taken showed it didn't work with existing tumors growing along with new ones showing up.
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Drug or Chemo Therapy | Immunotherapy -Olaparib
Went on Olaparib for 3 months as my Oncologist recommended and the Dana Farber Oncologist recommended. Had no side effects from it.
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How many of you are thrust into home schooling since the pandemic? The added stress is about to get
First, I have about all the stress I can take dealing with MM, then I have been given the tasks of teaching the kids what they should be doing at school. It just seems like too much for me to handle. Anyone else feeling like a burn out?
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Procedure or Surgery | Implant chemotherapy port
It wasn't as bad as everyone told me and it makes doing my chemotherapy so much easier I wished I would have got my port sooner, I always was an easy stick until chemotherapy it destroyed my veins with my port I don't stress like I did I'm very happy with my decision.
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Drug or Chemo Therapy | Chemotherapy
My chemotherapy treatment is with gemcitabine and cisplatin along with dexamethasone I do have really bad hot flashes when I take the dexamethasone but other than that the nausea I had for years so I'm use to that and my oncologist prescribed zofran and it helps, I had very thick hair it is thin now but I'm not worried…
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After you are finished with treatments, how long are you considered immunocomprimised?
I have at least 6 months to a year more of treatments but I am worried about all of this virus going around and thinking about will I always have to be on guard about everything, flu, colds, etc.? Will I have to walk around with a mask, stay away from people for good?
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When you were diagnosed with cancer, was it the first health condition you have had?
I hear about people with a laundry list of health problems and cancer just seems to be the destination, but when you've never even been to a doctor for a serious problem, cancer seems like a jump over the line.
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I read a quote in an article today that is quite catchy and makes you think.
"We’ll never know if we’ve survived cancer until we die of something else. The trick is to make the time between now and then count." If you think about it, we can be cancer free for years, then here it comes again. I was 18 years out from my second diagnosis when #3 came to visit. So we could be 75 and cancer free for 40…
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Getting your mind off of cancer over the weekend, how?
After dealing with cancer for months and months it has become what seems like a full time job. When the weekend comes I try to act just like I would normally and do things we enjoy. But I can't seem to get cancer out of my mind. How do you do it? Or can you?
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My wife died on Mother's day, May 10th from M...
My wife died on Mother's day, May 10th from MDS, an illness called Pre-leukemia. She was cancer free after chemo treatments but the result of the chemo was fatal. My heart is broken. Our 57th wedding anniversary was today, May18th.
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I am having to start treatment again, have anyone had this combination of drugs in chemo?
5 FU Carboplatin Cetuximab Any feedback on results, side effects, ups, downs, etc. would be appreciated.
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Email Digest
I'm now missing my digest for at least a couple of weeks.Updates do all kinds of screw ups to my browser,etc.
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So something strange is happening with some of my friends.
At first, all of my girlfriends were around almost every day. They would call, text, stop by, bring supper for the family, and do lots of great things for the whole family. But now, it's like the new has worn off of the new toy and they don't want to play anymore. I haven't heard a peep out of a couple, no yet, no calls,…
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Always cold
Are many of you like me? It seems that I am always cold. I have been in remission for over a year now, but I am cold all day. I always have a quilt wrapped around me and even then I am often still very cold. If I say it is cold my daughter says it’s just me. Are any of you experiencing this as well?
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Happy Mother's Day to all the mothers here! We've just had some of our kids visiting.
I'm curious if this is just me or if anyone else feels this way too. And is it from the cancer or what? I love my kids, love to see the grandkids, but after they (or anyone) is here for an hour or two I'm ready for them to go. I don't have the patience I did and I'm wanting to go sit in my chair again. I can't help but…
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Unnecessary chemo?
My friend had lumpectomy 3 weeks ago. NED in lymph nodes, declared stage 1. Doctor recommended chemo 1 X weekly for 1 year! Any explanation, anyone?
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Has anyone here been tested positive for covid?
I have been extra careful to stay home, stay away, limited visitors, wear a mask when a select few have stopped by, and one slip!! My sister stopped by, without a mask, grabs me and hugs me. And she's the type that will run rampant through the fire thinking she won't get burned. Now I'm paranoid.
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You ever notice that the night before surgery sleep is nowhere to be found?
Between the snoring in the room and noise in the city coupled with my mind racing, I should have just stayed up all night. So here we are, cover me I'm going in!
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Anyone want to join me?
I am an early riser. I do some meditation, contemplation, prayer, reflection, or study, upon arising - which is usually around 6:00/6:30 am. I think I mentioned before I am a woman of faith, and so tomorrow morning I am planning to pray for a good outcome for our friend, Greg. I know not everyone shares my beliefs, but I…
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Will side effects from chemo start the first day after treatment?
Or is it delayed? I've talked to a couple of people that said they were getting sick even on the way home from the first treatment. Then others have said they didn't feel anything for a few days. Is it always this much all over the place with side effects?
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Ms. @JaneA has a good article today with some information about brain cancer. It is one of the most
You can see it on the blog page by clicking the word "Blog" in the purple bar at the top of any page, or just click this link>> https://bit.ly/2zCDxEy
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Procedure or Surgery | Surgery
2 lymph nodes removed for biopsy, Bone marrow biopsy
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Thinking about cancer all the time can really get to me. My mind starts racing focusing on the wrong
So I try to do a few things that I dearly love. I love gardening, when I can get outside, I love knitting, so I do that when I can't go outside, and I love to cook new things for the family when I have the energy to do it. Experimenting with new recipes keeps my mind occupied. Do any of you do things like this? What do you…
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Procedure or Surgery | Surgery
I was told the growth was large enough to warrant the total removal of my thyroid and that this was the first step of treatment. I did a lot of reading and watched a lot of videos about the procedure and always ended up crying, feeling bad for myself. All of this happened during my winter break. I had just started graduate…
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Oh No | Health insurance issue
I convinced myself that the bump on my neck was nothing. It didn’t hurt, so it was fine. My boyfriend said it was fine, my younger sister said it was fine, I thought it was fine. I was young, active, healthy, fine. I cancelled care with the clinic enraged by the bill for a visit where I filled out paperwork, and declared I…
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Oh No | Problem with doctor
It was my senior year of college and it dawned on me that I didn’t have a doctor and hadn’t had a basic check up since I was in elementary school. The most I had done was a physical exam to do high school sports. I decided to apply to be a new patient with a clinic in my college town that would accept my mom’s work…
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How do you feel about the whole being a burden thing?
I can't help feeling like I am a burden on family and friends. I apologize for things like needing someone to pick up things for me, or helping me do something around the house that I used to be able to do by myself. I just can't help it. I've never been the type to ask for anything.
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Anyone else have a family member residing in any kind of healthcare or other type of communal living
As I've mentioned before my mom (94) now resides at a senior skilled nursing facility because of a crippling stroke suffered about a year and a half ago. In these times of encouraged self isolation these folks are literally trapped in a communal living situation with staff moving in and out daily. I just found out tonight…
