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MD Anderson Hospital in Texas
I am getting frustrated with my current care. I feel like they do not have a sense of urgency on my case. They will decide we need to do a test/procedure/whatever and schedule it, 3 weeks later the procedure/test is done. One week later I get the results. Then, it didn't tell them what they wanted, so another is scheduled,…
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Are there that many people that are afraid of going through cancer treatments/
As I browse around researching my cancer I see post after post where people are always asking if anyone has survived without treatment, or did you have chemo and no radiation or vice/versa, or what "natural Methods" did you use to beat cancer? It seems to me that these people are more afraid of the treatment than the…
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Friendships/Camaraderie
I was thinking last night about how much I enjoy chatting with all of you. It's strange that what we have in common is our "disease," but it's really a very positive place here. Sharing ideas, sharing opinions. It's been interesting for me to see how people process their treatments, their waiting news, and everything else.…
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Have you reached the end of your "first line treatments"? Is your doctor looking for what's next for
Our blog post has helpful information about how they work and how you find one that you will qualify for. Take a look here>> http://bit.ly/2p5ZRyB
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This has probably been asked before but I couldn't find it here. Does CBD oil work for pain?
I mean really work, not just "I think it might", or "I'm not sure if it's working". If it won't cut pain like taking a pain pill I'm not interested. Does anyone have real life experience taking it? How much do you have to take? I know nothing about it other than some facebook claims I read about how good it works, and we…
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A common question we receive is about long term side effects
Several people have asked about the long term side effects of treatment. Usually followed by the statement that they are considering not having treatment at all because of them. So to alleviate these fears, what would you say are "long term" side effects, if you have had any at all? And knowing now what they are and their…
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Who has had the duo of carboplatin and taxol? How was it for you? Side effects?
If I don't have the PD-L1 receptor in my tumor I will have this combo in addition to Keytruda. Just wondering how it was for you. It's been 30 years since I had chemo, things have changed a great deal since then.
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Other Care | Reconstructive surgeries
total of 6 after the mastectomy and a complete revision 10 years later in 2019
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Drug or Chemo Therapy | Chemotherapy
I was very tired and good tasted like nothing low energy
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Have you participated in the Covid 19 life effects survey yet? You should have received an email abo
Briefly: We would like to understand this impact and what characteristics help people to be more resilient during these challenging times. We would greatly appreciate if you would participate in this web-based study. We will collect data five times over the two years: at study entry, in two months, in six months, and in 12…
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Other Care | Told.My Primary doctor and increased my.sertraline
It took awhile before I felt any better
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Other Care | Palliative care
I was so depressed they assign me to a counselor for.a few week's
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Side Effects | Diarrhea
It was severe but Imodium checked
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Clinical Trial | Shots in the belly . Revlimid.Valtrex,Dex. Steroids
Severe Diarrieh. Imodium checked it. Deli so weak and drained
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Aniexty and Depression...
Aniexty and Depression
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I may have already asked this question, but couldn't find it in my page, if I did.
How many CT scans and PET scans have you had? In researching what's in store for me with this clinical trial, they list 25 CT scans, 3 PET scans, and other "tests" as needed. The information says that if a person completes the trial and has all of the scans they will receive 10X the amount of radiation that a radiation…
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Decision Point | Lung Damage
Chong can no longer walk more than a few paces without losing her breathe, heart racing, and getting completely exhausted. Medicine is not helping, so we decided to go on hospice care. The drugs alow her to sleep but at what a cost -- she is high all the time on them.
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Oh No | Lung Damage
Palliative chemo was no longer relieving the breathing problems so we attempted to get the left side pleural effusion drained. However, there was very little fluid build up on the left side. The lung function has been affected by cancer (although there is no sign of cancer in the lungs) or from the chemo. Full time oxygen…
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Side Effects | Shortness of breath
Chong had pleural effusions in both lungs, the fluid contained cancer. They put a drain on the right side but none on the left. Palliative chemo prevented fluid build up on the right side, but it was difficult to tell what was going on on the left. The chemo no longer was working to help with the breathing,
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Drug or Chemo Therapy | Chemotherapy
After realizing that Chong's cancer had metastasized, they switched to palliative chemo to help her breathe. It worked perhaps the first time, but by the second round her breathing was not much better.
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Oh No | Cancer has spread/Metastasized
While determining if Chong was ready for surgery to remove the tumor, she developed a pleural effusion first in the right lung and then the left. The fluid contained cancer cells. They inserted a drain to the right side allowing us to drain the fluid from home.
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Drug or Chemo Therapy | Chemotherapy
Chong was diagnosed with stage 2 stomach cancer. The plan was 6 rounds of FolFox, one month to recover, surgery to remove the tumor, and then six more rounds to complete treatment. Chong completed the first six rounds of chemo.
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Procedure or Surgery | A needle biopsy to see how the initial base is for the tumor after the first
I've had three needle biopsies throughout this 32 years of fighting cancer. The first two were painful but tolerable, this one was basically the same. The only difference was this doctor gave me a few injections of lidocaine first to numb the tumor before sticking the large hollow core needle into it to get the tissue…
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Procedure or Surgery | Implant chemotherapy port
This was the third port I've had put in throughout the 32 years of dealing with cancer. The first one quit working after about 6 months and it had to be replaced. I kept that port for 18 years after treatment was finished because I didn't want to give it up. Finally, after I gave in and let them take it out, I was…
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Do you remember the night before your first chemo session?
I don't remember the night before my first one 32 years ago, but I remember vividly the day of, in fact the seconds that it took for the chemo cocktail to run from the bag down to my veins. I watched that red color come down and was scared to death about what would happen when it hit me. I remember it being cold and…
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Clinical Trial | I started a clinical trial with Keytruda Combined with ADU-S100 to see how the adde
This is the trial that I am on: https://www.cancer.gov/about-cancer/treatment/clinical-trials/search/v?id=NCI-2019-04759
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Drug or Chemo Therapy | Immunotherapy - Clinical Trial
I started Keytruda immunotherapy today, and a clinical trial with a drug called ADU-S100 combination. The keytruda went in without any problems, and the ADU-S100 injection was a little painful to have a needle stuck into the tumor in my neck. Overall, not too bad. As of this writing, at 830 PM I have no significant side…
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Oh No | Cancer is back/Recurred
Well ... maybe the cancer is back ... maybe it is not. For the first time since I was diagnosed in 2012, there is a new spot in my right lung. It is still small - 3 mm, lower right node. My oncologist says that spots sometimes show up in that area of the lungs that are not malignant. I could just be fighting an infection…
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Side Effects | Chemo brain
Was still bad even 8 weeks after radiation and 4 months after chemo. I started playing xbox Golf with my son and my chemo brain started to improve within 2 weeks...and felt real good after 3 months. It seems that all the hand coordination, timing, processing for game playing really help sharpen my thinking. Who knew!
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Side Effects | Insomnia and trouble regulating body temperature
This is a result of the hormone blocker Anastrozole. After trying motrim pm, melatonin (20mg), some Rx...I have settled in tylenol pm. I am still awaken several time a night with slight neuropathy, but at least I get some sleep.
