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Oh No | triple negative breast cancer stage 4
Ok so this was a wake up call
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Drug or Chemo Therapy | Chemotherapy
neuropathy very intense by third session
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Life Planning
I know it's a subject that people don't like to think about. I know some people feel that planning for end of life might hasten the process, or invite trouble. I was always hesitant to plan for eventualities, but after seeing friends and family have to fight legal battles over how to best help their loved ones, I felt it…
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Has anyone had excess gas, bloating, belly pains after/during treatments?
I know it wasn't just something I ate. I had treatment last week and almost immediately, I started having an embarrassing case of gas. Belching, farting, the whole gas issue thing. I don't think I've ever had a case like this before. Is this a chemo induced thing?
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Oh No | Screwed Up My Experiences Timeline on Here
Ugh, I accidently wrote over my original one with things going on today (it's been a long day and apparently I not only have stage IV cancer, but also pneumonia, and COVID? I'll blame that on why I screwed up. I hardly ever write in here, so maybe that's why I royally screwed it up. Will fix later
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Celebration | Breakthrough
I finally got back to cardio training at the gym. My last session at the gym was January 20th before my lumpectomy and then my mastectomy. Then just as I was released to do strength training, COVID-19 closed down the world and my gym was ordered to close. I have been walking and doing a little bit of yoga all along. On…
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Synovial Cell Sarcoma and lung cancer
I am looking for help for a friend who's father has been recently diagnosed with this disease. He is 70 years old, and the doctors removed his leg. The tumor was found in the knee. Now, the doctors say there are tumors in the lungs. The patient wants to know if the traditional treatment of chemo and radiation are the best…
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I see these adds on TV for new drugs for cancer
It makes me feel like my chances are not good for survival unless I am on one of them. Do you ever have that feeling?
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May trigger. How to know when enough it's enough?
I'm giving keytruda and lenvatinib (sp?) a try. I really can't do chemo anymore because my platelets just aren't recovering at all. There are a lot of other considerations, but how do you know when it's time to quit fighting. It's a question I never had the courage to ask my friends who went through it already. Should…
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Do you have the same kinds of side effects with all your rounds of chemo?
I seem to have something different on each one. Sometimes they are opposite from the last time. One time its constipation, the next time its diarrhea. Dizziness one time and air-headed the next.
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Oh No | Cancer has spread/Metastasized
Oh no what can I say. Now the doctors are saying I have a new cancer. This is completely a new cancer. I now have small cell lung cancer that has spread to my liver with stage 4. I was admitted to 10 days in the hospital with aggressive Chemo. My husband took me in with a 7 8 blood pressure and anomia. I am now out and…
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Drug or Chemo Therapy | Chemotherapy
Dad will begin chemo treatments next week
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Procedure or Surgery | Surgery
Leg amputation due to synovial cell sarcoma behind the knee cap
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Have you gotten a 2nd opinion? Have you ever heard of a "virtual" 2nd opinion?
One thing that the Coronavirus outbreak has expedited is the whole world of "telehealth". Doctor's visits by computer. Some are even just doing a phone call. We have talked about these new types of doctor's visits here at WhatNext before, but haven't gotten into the 2nd opinion by computer or phone. Our blog post today…
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Who has used Keytruda? I know Live With Cancer has been on Opdivo, I know I remember some of you pos
Is it an injection, a pill, a drip like chemo that takes hours? Side effects? Harsh, not much, not at all? I will be getting this in Nashville, it's a 3 hour trip back, Sweetie might have to drive home.
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Cravings
Who has had comfort food cravings during the pandemic? I remember cravings for chocolate chip mint ice cream when I was pregnant and I had an absolute obsession for potato salad throughout my chemo treatments. During this time of social distancing and stay at home my husband and I , have demolished five tubs of red…
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Celebration | Received Mastectomy Bra
This was a bittersweet celebration. I am glad to have a bra that makes my chest area look a little more balanced. I am glad I don't have to try to figure out ways to put a zillion things in my bra that get bunched up or fall out. It is a much nicer bra than I anticipated it would be. I thought it was going to be really…
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I am being treated for bone cancer with Doxorubicin (Adriamycin®) Cisplatin. Etoposide
It seems to stir up the pain in my bones. I can tell that it's the chemo making it worse because the pain gets worse for a few days after treatment then it slowly goes away. Do any of you have this bone pain from chemo?
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Did you get our Newletter this morning in your email inbox?
We have just published our May Newsletter, you should get it in your email inbox that you used when you signed up on the WhatNext site. If you haven't been getting notifications and emails from the site please let us know and we will see if your email has been blocked. Our Newsletter can be seen here>>…
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Anyone having difficulty isolating from family?
I'm struggling trying to be the caretaker for my 89 yo mother and 96 yo step-dad. I've been arranging for grocery deliveries and even managed to get some plants delivered since I know how much my mom loves to garden. Yet, all she does is complain that she would not have selected that tomato, or that plant, etc. She got…
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Does anyone here have any experience with agent orange that may be responsible for your cancer?
I was exposed during my days in Vietnam, but I haven't looked into it.
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Getting ready for chemo for the first time? Our blog post today has things you need to know.
New patients will often say that the thought of going through chemo is the scariest part of their diagnosis. Most of the time a lot of the stories about chemo are blown out of proportion. It's tough, don't misunderstand, but it's not as bad as a lot of people make it out to be, and, it beats the alternative to not having…
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Email Digest
Not getting the digest email for a few weeks now.
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Celebration | Remission
It is the third time I hear the words, "Treatment has attained remission." When I first heard it for the first time, I celebrated and thanked God to have made it through. But it returned 9 months later, and I had to undergo an 18-month treatment for Relapse. When I finished that treatment, I heard the words, "Treatment has…
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Procedure or Surgery | Mastectomy
Had positive anterior margins.
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Oh No | Cancer is back/Recurred
I've had 2 recurrences since 2015.
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Summer time is coming! Just a PSA about protecting yourself from the harmful rays of the sun!
I am one of those who spent their youth sunbathing, going to tanning booths in the winter to have that perfect tan before summer, and never giving skin cancer a second thought. Now I live with the consequences. May is skin cancer awareness month. Even if it's not your type of cancer I urge you to post a graphic, link to a…
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Drug or Chemo Therapy | Immunotherapy-Keytruda
Trying 3 rounds of Keytruda via IV, another drug recommended by Dana Farber. This was FDA approved in the fall of 2019 after clinical trials showed promising results in patients with advanced endometrial cancer. Feeling optimistic.
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Procedure or Surgery | CT scan
CT scan repeated following 3 rounds of Avastin. Results showed drug did not help and tumors are continuing to grow. Feeling defeated.
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Drug or Chemo Therapy | Immunotherapy-Avastin
Trying another immunotherapy drug called Avastin via IV. Plan is to do 3 rounds, every 3 weeks followed by CT scan again.
