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Do you ever get tired of hearing people tell you how strong you are and how proud they are of you fo
I mean, what choice do we have? It's either take it, fight it, and try to get through it, or lay down and die. I appreciate the support of my friends and family, but telling me "I'm so strong" doesn't really help. I guess I'm just being too sensitive?
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How are you doing with keeping hope alive throughout your cancer diagnosis?
Our blog post today has some tips about how to keep hope alive and in the front of mind, and why it's so important to have it. Take a look at the article here>> https://bit.ly/3hSCnqr and then, please share!! We ALL need more HOPE!
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I have a doctor who will dance around the bad news and find a way to spill it by sprinkling roses ov
Do you have a doctor like this or does yours lay it all out there good, bad, and ugly? It's annoying that he won't just get to the point, but on the other hand I'm not sure how I would take the blunt truth. What do you think is the best way?
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Daiichi Sankyo Phase 1 Study of DS-1062a
My wife is about to start treatments in this study for her Stage 4 Adenocarcinoma lung cancer. Anyone else in the study who can contribute experiences / comments?
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Drug or Chemo Therapy | Chemotherapy
Had my first and second chemotherapy, 5/13 & 5/27, with Taxol. Bone and muscle pain which did not respond to OTC medication. Was prescribed Norco which caused extreme itchiness during the second round of Taxol. Have stopped chemotherapy temporarily so that I can have cracked teeth extracted and take care of itchiness of…
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Faslodex injections side effects
I’m getting faslodex injections as a hormone blocker. Recently I’ve been getting itchy spots all over my body that start with small bumps or nothing at all. It’s driving me crazy. Has anyone experienced this as a side effect and if so what did you do about it.
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My doctor has kind of shyed away from telling me exactly what my stage is
He has asked me to not concentrate on a number and said it really doesn't make any difference what it is anyway, they are going to treat me with the most aggressive, the best combination of drugs and procedures that are available. So, I bought into that thinking, but still, there's this little mouse nibbling on me telling…
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You Can't Put a Price On A Life - This Just In.....Yes You Can
In my case, the costs are approaching 500k since the first of the year, 2020 up to June 2020. And the costs continue to rise. My blog post today is about the continuing rising costs of healthcare. Take a look at the article here>> https://bit.ly/2YC9uG3
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Has your doctor suggested any "non-pharmacological" methods of pain control?
Like acupuncture, meditation, or exercise? Since the opioid crisis hit, some cancer patients are having trouble getting the pain relief they need. Here is an article about one method of pain relief without pain meds. Jun J. Mao, MD, MSCE, on the Need for Non-Pharmacological Pain Management in Cancer Survivors June 19, 2020…
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Decision Point | to treat or not to
we were given the choice...."prolong the inevitable , quality of life, maybe new treatments in 5 years...if she lasts that long
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keytruda
how long before it takes effect? I was given my first dose a week ago and am wondering if I am too far gone. Any info would be helpful
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Someone asked me if it was worth it to go through a surgery to have a port put in.
I'm sure there will be lots of others that will agree. But my answer is a GIANT YES!! Yesterday's surgery was as simple as they get. The worst part of the whole deal was getting up early to drive 3 hours to the facility and have it done. The pre-op was simple. The worst part of that? Getting stuck in the arm one LAST time…
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how to deal with stress, anger and guilt as a caregiver
I feel angry about being a caregiver and that causes stress and quilt in me. i feel guilty as my mother has always been my rock, my safe port, and has always been there for me. I am so worried that somehow i will miss up the picc line with flushing, or cause an infection in her pleural catheter site, with the drains i do,…
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pain
good morning all, I am a 8 years cancer survivor dealing with pain. this pain doctor / clinic is just another money making scheme. for those of us that need the medicine we have to jump through hoops. yet I see all the time people are hospitalized from overdosing on fentanyl and heroin or meth. so they categorize Percocet…
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angry out bursts
I have found myself over reacting to really small things. I used to just let things roll off my back, now i find myself, having angry outbursts, and at times not realizing what i just said. it is as my ability to screen my thoughts has gone amuck,
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Other Care | lifetime caregiver required
Mom did it dad worked, dad has heart attacks- no more work, mom passes away, older sister takes over caregiving (room and board with husband) of dad too.
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Celebration | Return home after 4 months
quiet at home
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Procedure or Surgery | Surgery
GBM confirmed...4 surgeries....80% right brain removed
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Oh No | Just Diagnosed
collapsed at school 7yrs old..... mom took home......temp dropping..calls dr....no worry......calls dad at work....dad say go to er.......brain hemorrhage....airlifted to Oakland childrens hospital.....the nightmare has begun...
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Radiation | External radiation
the side effects still showing up 17 years later
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Are you making future plans for after treatment or waiting until it's over?
I have found myself getting ready to mark something on the calendar or start making plans for something that might be for next year, but then I stop and think to myself that I better wait and make sure I make it through this before I start planning things for the future. Anybody else do this?
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Someone recently posted that they needed help with things through their cancer treatments.
While they didn't say what they needed, I understand that most of us do wind up needing help with something. This link is for our resources page that has links to hundreds of places that will offer help to those who qualify. Click link to look https://www.whatnext.com/cc/Resources_For_Cancer_Patients_Survivors_And_Family
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I haven't done the research on ports lately, but Vandy tells me that the Bard Powerport is supposed
For those that have had a port and looked up the info, what's the difference between a power port and a "regular" port like I'm sure I had before? I know the old one I had was probably twice as big as this one. It had a lot more metal on it too. Do you know any of the differences?
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Myelin Sheath damage
Has anyone suffered from myelin sheath damage from 5-fu chemo protocol? If so, what was treatment options?
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Oh No | Money
I paid 10000$ for prgeta treatment
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Side Effects | Fatigue (tiredness)
Rush pain
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Have you or would you have your son or daughter vaccinated against the HPV?
Head and neck cancer affects men 3 times as often as women, but it can be prevented. If you’re the parent of a preteen son (or daughter), have him vaccinated against HPV. It can prevent multiple types of cancer in men, including head and neck, penile, and anal cancers! #MensHealthWeek #MensHealthMonth
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Procedure or Surgery | Surgery
TRAM flap 5/2020
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Celebration | Anniversary
One year after treatment was celebrated on May 24, 2020. Getting my first haircut next week. Slight neuropathy remains on right foot, and side effects from hormone blocker are all that remain. Doing very good!
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We received an email from a member talking about the topic of whining about what's bothering us, whe
and if it should be done here. He goes on to explain that whining about our problems is a good thing letting us vent, letting us help and support each other, and helping to educate others about some of the things that might pop up in their own cancer experience later on. So, let's whine! What's bothering you this week?
