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Other Care | lifetime caregiver required
Mom did it dad worked, dad has heart attacks- no more work, mom passes away, older sister takes over caregiving (room and board with husband) of dad too.
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Celebration | Return home after 4 months
quiet at home
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Procedure or Surgery | Surgery
GBM confirmed...4 surgeries....80% right brain removed
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Oh No | Just Diagnosed
collapsed at school 7yrs old..... mom took home......temp dropping..calls dr....no worry......calls dad at work....dad say go to er.......brain hemorrhage....airlifted to Oakland childrens hospital.....the nightmare has begun...
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Radiation | External radiation
the side effects still showing up 17 years later
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Are you making future plans for after treatment or waiting until it's over?
I have found myself getting ready to mark something on the calendar or start making plans for something that might be for next year, but then I stop and think to myself that I better wait and make sure I make it through this before I start planning things for the future. Anybody else do this?
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Someone recently posted that they needed help with things through their cancer treatments.
While they didn't say what they needed, I understand that most of us do wind up needing help with something. This link is for our resources page that has links to hundreds of places that will offer help to those who qualify. Click link to look https://www.whatnext.com/cc/Resources_For_Cancer_Patients_Survivors_And_Family
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I haven't done the research on ports lately, but Vandy tells me that the Bard Powerport is supposed
For those that have had a port and looked up the info, what's the difference between a power port and a "regular" port like I'm sure I had before? I know the old one I had was probably twice as big as this one. It had a lot more metal on it too. Do you know any of the differences?
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Myelin Sheath damage
Has anyone suffered from myelin sheath damage from 5-fu chemo protocol? If so, what was treatment options?
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Oh No | Money
I paid 10000$ for prgeta treatment
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Side Effects | Fatigue (tiredness)
Rush pain
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Have you or would you have your son or daughter vaccinated against the HPV?
Head and neck cancer affects men 3 times as often as women, but it can be prevented. If you’re the parent of a preteen son (or daughter), have him vaccinated against HPV. It can prevent multiple types of cancer in men, including head and neck, penile, and anal cancers! #MensHealthWeek #MensHealthMonth
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Procedure or Surgery | Surgery
TRAM flap 5/2020
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Celebration | Anniversary
One year after treatment was celebrated on May 24, 2020. Getting my first haircut next week. Slight neuropathy remains on right foot, and side effects from hormone blocker are all that remain. Doing very good!
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We received an email from a member talking about the topic of whining about what's bothering us, whe
and if it should be done here. He goes on to explain that whining about our problems is a good thing letting us vent, letting us help and support each other, and helping to educate others about some of the things that might pop up in their own cancer experience later on. So, let's whine! What's bothering you this week?
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metastatic to brain
Immunotherapy?
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Do you find that these holiday weekends that provide an opportunity to get together with your family
Since my diagnosis I enjoy these opportunities to get together with family and friends. We will have a good size group of people at our house tomorrow and I so look forward to these days. This one will be a little strange, everyone will be required to have a mask on and no hugging me. We are trying to be cautious. But I…
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How many radiation treatments did you have?
My plan now has 45 to be done, this number has changed twice. Did your number change during your treatments? Added some or took some away?
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Sleep issues, what works besides full on sleeping pills?
I'm sure it's just my head running full speed ahead, but what, if anything, have you found that helps to put you asleep and keep you there? I either can't go to sleep or when I do, I wake up every hour. Any tips?
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Naturopathic Medicine
Curious on people’s thoughts/experiences with naturopathic and integrative oncology. I’m wondering what has worked for people and what has not so much. Herbs vs. acupuncture, hyperbaric oxygen, or any others. I have not decided to do chemo yet, but I know based on my diagnosis I will at some point. Looking for input with…
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HOw long did your side effects from radiation hang on after your treatments were over?
I still have a lack of taste, low saliva output, my sense of smell is minimal, and a basket full of other side effects around my head and neck. My side effects are primarily from radiation to the head and neck, but side effects from other types of cancer are similar. What side effects do you have that are still having…
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The medicine for PR+ breast cancer
Having ER+/PR+ breast cancer I have been using Anastrozole for 5 years. I am wondering if there is anybody taking any pill to block progesterone?
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Someone asked me about going to start chemo treatments and what they should take with them.
This is a good time to refresh our "What to Take to Chemo" article. So let us have your "must haves" while at chemo. What would you suggest?
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Drug or Chemo Therapy | Pomalyst
Also taking Dex.
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I am still waking up with a swollen bottom lip and neck. I was told it's probably lymphedema, I've n
I know that if it's in your arms or legs there are compression sleeves or stockings to wear, but have any of you had this in your head/neck, etc. like this? I don't know what could be done for it. For now, it's not a big bother, I just can't feel my bottom lip and sometimes spill a little coffee when trying to drink it in…
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So, how many sticks does it take you for them to finally find a vein?
I always tell them ahead of time that I'm a hard stick, I've had chemo, bad veins, blah, blah, blah. Usually they will look at my arms and get a concerned look on their face, then start digging. When I go to Vandy, 99% of the time it's one stick, usually painless. The last time it was three times. Today, it was 2 times…
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Oh No | stress over being a caregiver
I am currently taking care of my mothers picc line and indwelling pleural catheter. I feel guilty for feeling stress about this, as i would just like to really just be her daughter and enjoy what time she does have left. feel like she is not giving us the full scope of her diagnosis as she had a spot in her lung and it was…
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Oh No | stress
i am finding myself extremely stressed about my mothers cancer. She was so outgoing and active at 81 and now she is down, sad, and fatiqued
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Anyone taking vitamin supplements?
Anyone taking Vitamin D3 (Cholecalciferol) as supplement for their Lymphoma (Hodgkin and Non-Hodgkin). I have read a lot of sample clinical research/trials that show's good effects of Vitamin D3 to Lymphoma patients. I wonder if any of you guys are taking it.
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Celebration | Remission
After Stem cell transplant in 2019. Last PETSCAN & BYISOPY in June 2020. No cancer found.
