Oh No | Just Diagnosed

jhenicke
jhenicke Member Posts: 7
edited June 2020 in General Discussion
I was diagnosed with uterine cancer from a d and c biopsy procedure. I will be seeing an oncologist for the first time next week and am scared.

Comments

  • Berk80
    Berk80 Member Posts: 7
    edited June 2020
    I’m sorry to hear this. I’ve also within the last month gotten a diagnosis and it is a life change and there is a lot of uncertainty with it. I hope you can find ways to get a good support system in place to help you navigate this, which is what I’ve been trying to do. Best wishes for you!
  • jhenicke
    jhenicke Member Posts: 7
    edited June 2020
    Thank you Berk80! I, also, wish you well on your journey and will be glad to support you through your journey as well! Thank you for your comforting words!
  • sugar
    sugar Member Posts: 8
    edited June 2020
    Hi jhenicke,
    I haven't been on this website in so long. But, welcome and I'm sorry to hear what your dealing with. What have they told you thus far about what is going on with you? I remember when I went to a routine Pap smear back in 2014 and then got a phone call two days later from the GYN doctor who said I had cancer....that changed my life for a while. I ended up seeing an GYN oncologist so I could get officially Dxd. I was Dxd with endometriod adenocarcinoma (uterine cancer) stage 1B. I had a radical hysterectomy and did not need chemo or radiation. I get checks at least once a year now and all has been fine. We are here for you! YOU ARE NOT ALONE. This is a wonderful website as well as the cancer support website through the American Cancer Society, the link is csn.cancer.org. Let us know how things are going with you ok? And come back and chat more if you just need to talk about it....I am here
  • jhenicke
    jhenicke Member Posts: 7
    Thank you SO much sugar, and our stories are EXACTLY the same for the most part!!!!!!!!!!!!! I had a d and c because my pap smear was abnormal and he couldn't get enough tissue to biopsy due to the fibroid tumor thingy. The biopsy showed endometrial adenocarcinoma....my gyn thinks it looks like stage 1 and I see a gyn/onc this Thursday. Your words mean so, so , so much to me. You have no idea! Thank you for reaching out. YOU made me feel better for the first time this entire day!
  • sugar
    sugar Member Posts: 8
    edited June 2020
    awwww! I am so glad my words could help in some way. There are truly wonderful people on this website. There for a while all I did in my spare time was search on websites about endometrial & cervical cancer. I will be waiting to hear how your doing when your able to get back. ❤️
  • sugar
    sugar Member Posts: 8
    edited June 2020
    jhenicke,
    one more thing, I spent a lot of time on this website and on the can.cancer.org support website researching under the uterine cancer and cervical cancer areas. You will be able to join discussions and learn so much!!
  • sugar
    sugar Member Posts: 8
    edited June 2020
    corrections: csn.cancer.org - I misspelled it above.
  • jhenicke
    jhenicke Member Posts: 7
    Thank you so much sugar! I will check it out!!!!!!
  • sugar
    sugar Member Posts: 8
    btw, my name on csn.cancer.org is judemo
  • Jane1212
    Jane1212 Member Posts: 4
    4.5 years ago I had the same thing- adenocarcinoma. It was on a fibroid only but of course you don't know that until after the surgery. I had a complete hysterectomy/ovarectomy (spelling, sorry) and no further treatment. I went with a robotic surgery which my doctor recommended. You will want to go with what the surgeon is most comfortable and practiced with. After surgery was the last time I saw the oncologist and I now go to my regular GYN once a year. The surgery recovery wasn't awesome, to be honest, but it wasn't horrible. I got a lot of great tips from a web site called HysterSisters. Sign up prior to surgery and read recovery tips etc. All in all it wasn't nearly as bad an experience as I was afraid it would be. If you have to have cancer, this seems to be one of the better ones to get. Feel free to ask me anything you want. I'll even tell you to make sure you don't get constipated after surgery. ;)
  • sugar
    sugar Member Posts: 8
    edited June 2020
    Hi Jane1212 and jhenicke!

    Yes, I had the robotic radical hysterectomy as well. I didn't like recovery for about two weeks but then it got better. I also had joined hystersisters! I forgot to mention them too! So, thanks for mentioning HysterSisters. They are also a great resource and I have done much discussion on their board as well. And, as far as constipation goes, I completely agree. My DR made sure I took over the counter stuff for that as well and that really helped. It did help to get up soon after surgery and walk - not a lot, but to get up and move around the house. Congrats on being cancer free. I also had heard that adenocarcinoma was easier to treat. I used to worry about a recurrence and would search online over and over about the percentage of recurrence with our type of cancer. Well, now I don't even bother looking online anymore.
  • jhenicke
    jhenicke Member Posts: 7
    Jane1212 Thank you for that inspiring message! I hope I'm that lucky, and I definitely need to check out the Hyster Sisters...I want a t shirt for that!
  • jhenicke
    jhenicke Member Posts: 7
    sugar Thank you for the tips!
  • sugar
    sugar Member Posts: 8
    No problem!! I am here for you.

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