Second re occurance

Doinggood
Doinggood Member Posts: 2
edited June 2020 in General Cancer
Psa today .7. It had been .01. This is my 2nd re occurance. Had surgery and 39 radiation treatments. Gleason 9. No lympnode involvement at the time of surgery. I am so scared. Can anyone give me some encouragement

Comments

  • LiveWithCancer
    LiveWithCancer Member Posts: 470
    edited June 2020
    Oh, @Doinggood, I wish I knew enough to offer you some great hope. What's your oncologist say?

    I sure hope some of the guys who have battled prostate cancer can give you some encouragement. I'll be praying for you.
  • Teachertina
    Teachertina Member Posts: 205
    edited June 2020
    I’ve had 2 recurring episodes too and know how scared you are. Mine is kidney cancer. I have part of one kidney left, half of one lung removed, and no spleen. 14 years after diagnosis I’m still here, doing great! The guys on here will be a great support for you! Don’t give up! Give your doctors the chance to help find a way to beat it again. They have some new treatments now that weren’t available a few years ago. Let us know when you have more information about what treatment you will have. We wish you well and good luck!
  • GregP_WN
    GregP_WN Member Posts: 742
    edited June 2020
    Sorry that I can't help with this one either. I don't have personal experience with prostate cancer, but my dad did have it and I was caregiver for him for years. We do however, have lots of people here that have experience with it and I'm sure some of those will have some information for you when they see this. We wish you the best.
  • fusilier
    fusilier Member Posts: 22
    edited June 2020
    We ARE here for you.

    fusilier

    James 2:24
  • Carool
    Carool Member Posts: 787
    edited June 2020
    We ARE (here)! And I’m sure we all get the fear. We’ve all felt fear when we were diagnosed. Sending you good wishes. Please let us know how you’re doing.
  • po18guy
    po18guy Member Posts: 329
    edited June 2020
    Sorry to hear of your worry. First, contact doctor and make sure that the test results are from the same lab and using the same protocol. Otherwise, you cannot make a comparison. The 0.01 is not a real number and basically stated that it was beneath detection or was missed in the sample. .7 may or may not be worrisome. Take 5 blood samples the same day and you will get 5 different PSA levels. Doctor will want to watch the "trend" in your PSA and not make any decision based on a single lab result. Secondly, PSA is often associated with PC, but many PC patients have normal PSA and many others with elevated PSA never contract prostate cancer.

    Thirdly, as with any cancer, this seems to be a watch and wait situation - still doctor knows best. In the meantime, do some planning ahead. Look for clinical trials that may offer the best weapon that exists against a relapse (and it may not even be a relapse).

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