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Mutant genes CHEK2 and ATM
I have had two bouts with breast cancer. Because of the mutant genes, I started with preventative testing. After the first Ct scan they found a tumor on my left kidney. It was malignant. The gene testing saved my life. Has anyone had experiences with gene testing ? Did you get one or more of the cancers the genes represent?
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Welcome back!
Great to see WhatNext back online. Social media has been taking over the conversation, but forums like WhatNext far better serve our community, I think. Since I've been gone, I have picked up a 4th cancer (Squamous Cell Carcinoma), but it seems to have been confined to the scalp and between excision and topical…
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Had surgery for squamous cell cancer inside n...
Had surgery for squamous cell cancer inside neck lymph nodes. Tumors had NOT (yay) metastasized. Some stiffness and pain but hooray! They're gone.
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Experiences after Treatment
Was diagnosed with stage IIIC colon cancer last February, had resection surgery and completed 6 months of Folfox at the end of August. I am feeling good and don't have any real side effects to talk about, but I have been more emotional recently than I ever was last year. I would love to know what to expect after Folfox,…
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Did survey but did not reciee compensation?
What are my options?
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Other Care | Waiting for tests and to see other docs
Saw a surgeon, who will head my team and get appointments with oncologist and radiation oncologist, who will then schedule tests, who will then decide my treatment who will then tell me. Seems like a long way around
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Procedure or Surgery | Mastectomy
The emotional part was harder than the surgery
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Is anyone experiencing survivor guilt?
Having a difficult time coping with the loss of a friend who had same diagnosis. She recently passed and I am still here. It's not fair. Has any one else experienced this?
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Rates of Late-Stage Cervical Cancer Increasing
Article written by Jessica Lynn. "In the United States, overall rates of cervical cancer are falling. This sounds like a good thing, right? On one hand, it is good to see – although there is another part of this equation. While overall rates have fallen, rates of late-stage cervical cancer have continued to rise. According…
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Where can I find help for non medical care?
Need someone for housework chores and errands
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Checking In
Hi Everyone, I think it is time for a check-in. We are well into summer and the world has been kind of crazy - not so many road trips since gas has gone out of sight. But, I did have a week with my 13 year old granddaughter and loved discovering what a fine young lady she is becoming! She lives in Austin Texas, so I do not…
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vertigo?
hmmm...two days ago I posted a question about vertigo, or at least I thought I did? I've been wondering why I haven't had a response, because I know this group - there is usually one or more response even if it is simply "I don't know?" So I am trying again. I have noticed a tendency to experience a slight case of…
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Vitamin D levels
Where your Vitamin D levels low at the time of diagnosis? Are they low now? Does your physician check them yearly? My level was 17 at time of diagnosis in 2014. It took nearly 2 years to get them above 30, the bottom level of normal. This was copied from the National Institute of Health-- There is a well-documented…
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BEP chemo didn’t work! Stem cell transplant or TIP chemo
Hello everyone my husband was diagnosed with testicular cancer back in February. He started with a stomach pain and we went to the ER they discovered it was testicular cancer and it was in his lymph nodes and base of lungs so they administered the first round of BEP while he was in the hospital. Then after being…
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coming weeks
Hello, WhatNexters!I am writing for the purpose of starting a new thread, since my *Vertigo* question has become quite lengthy. And we are talking about all kinds of things (as we should), so I thought we might need a new place to talk? . Tomorrow my 11 year old granddaughter (from Texas) is coming to stay with us for a…
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Does anyone have MDS?
Want to know about your treatment
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Decision Point | What to do about husband
He is emotionally and cognitively challenged after 2 strokes
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Oh No | Just Diagnosed
Not shocking as it was expected due to age and relatives with cancer
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Fatigue post treatment
I'm 7 1/2 years post treatment that consisted of chemo for 6 months, modified mastectomy, re-excision to clear margins and 3 months of radiation. I often wonder if I am tired often because I'm 63, have Hashimato's disease (a thyroid condition) and Chronic Ebstein Barr Virus that was diagnosed 40 years ago or if it's due to…
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What next?
Happy to report, last 2 MRIs reveal no tumor, no activity on PT scan yet still advised to continue Keytruda. This is like a miracle but how long do I continue infusions?
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Other Care | Palliative care
Palliative care (supportive care) through hospital
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Loss | Lost loved one
Best friend passed away from cancer
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Revival of WhatNext
I received my first email in months!!! I was also able to reset my password for which I am thankful. Are other folks receiving emails and most importantly, HOW IS EVERYONE? This site helped me through my breast cancer journey that began in October 2014.
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Drug or Chemo Therapy | Chemotherapy
Causes fatigue, nausea, diarrhea, and constipation.
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Oh No | Just Diagnosed
Diagnosed 03/16/22
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Thankful Thursday
Hi, everyone. We're very overdue for a Thankful Thursday question. I'm thankful for all of my wonderful friends - including my WhatNext friends - who are giving me so much support during this difficult time (for those of you who don't know my husband passed from glioblastoma in March). I'm also thankful that the WN…
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Drug or Chemo Therapy | Immunotherapy
Spend my life waiting for other shoe to drop. So far, Keytruda keeping cancer in check.
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Oh No | Cancer is back/Recurred
Blood clot in thigh told me cancer returned
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Oh No | Cancer has spread/Metastasized
By one year, intense pain right side. 3 doctors believed it was scar tissue until MRI revealed side wall recurrence.
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Radiation | Internal radiation
Weirdest experience of my life. First visit, male technician removed device. Female radiologist told me she'd be with me every step!