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5 Facts About Bile Duct Cancer
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Decision Point | To continue treatment
Poor prognosis, increased chance if participating in treatment but lots of side effects and unsure about outcome
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The Wrong One
I am in a season of life right now where I have many friends going through really hard times. I always seem to say the wrong thing. There are always well meaning people who want to try to cheer you up or keep you positive when you first get that cancer diagnosis, or when you are getting to a point where they think you are…
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SHARE YOUR QUOTES!
SHARE YOUR QUOTES! WhatNext is looking for inspiring and motivating quotes to share with our community. Are you living with cancer or caring for someone who is? Your words could empower others! Comment below with your diagnosis and a quote that has inspired you along your journey. By commenting below, you are giving…
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Hello from WHATNEXT!
Hello WHATNEXT community! We are Nicole & Nia Maya, Advocacy & Recruitment Specialists here at WHATNEXT. We wanted to pop in to introduce ourselves and give a quick update regarding our revamp. We've been working hard behind the scenes to build back a vibrant, supportive, and inclusive community! Please take a minute to…
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Hello from WHATNEXT!
Hello WHATNEXT community! We are Nicole & Nia Maya, Advocacy & Recruitment Specialists here at WHATNEXT. We wanted to pop in to introduce ourselves and give a quick update regarding our revamp. We've been working hard behind the scenes to build back a vibrant, supportive, and inclusive community! Please take a minute to…
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Hello from WHATNEXT!
Hello WHATNEXT community! We are Nicole & Nia Maya, Advocacy & Recruitment Specialists here at WHATNEXT. We wanted to pop in to introduce ourselves and give a quick update regarding our revamp. We've been working hard behind the scenes to build back a vibrant, supportive, and inclusive community! Please take a minute to…
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Hello from WHATNEXT!
Hello WHATNEXT community! We are Nicole & Nia Maya, Advocacy & Recruitment Specialists here at WHATNEXT. We wanted to pop in to introduce ourselves and give a quick update regarding our revamp. We've been working hard behind the scenes to build back a vibrant, supportive, and inclusive community! Please take a minute to…
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Hello from WHATNEXT!
Hello WHATNEXT community! We are Nia Maya & Nicole, Advocacy & Recruitment Specialists here at WHATNEXT. We wanted to pop in to introduce ourselves and give a quick update regarding our revamp. We've been working hard behind the scenes to build back a vibrant, supportive, and inclusive community! Please take a minute to…
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Hello from WHATNEXT!
Hello WHATNEXT community! We are Nicole & Nia Maya, Advocacy & Recruitment Specialists here at WHATNEXT. We wanted to pop in to introduce ourselves and give a quick update regarding our revamp. We've been working hard behind the scenes to build back a vibrant, supportive, and inclusive community! Please take a minute to…
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Hello from WHATNEXT!
Hello WHATNEXT community! We are Nicole & Nia Maya, Advocacy & Recruitment Specialists here at WHATNEXT. We wanted to pop in to introduce ourselves and give a quick update regarding our revamp. We've been working hard behind the scenes to build back a vibrant, supportive, and inclusive community! Please take a minute to…
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Whatnext sure has changed!
I am so grateful to say I am still in remission as of December 2023. That marked 5 years since my last chemo in 2018. I know so many teal sisters are still fighting constant battles and my heart is with you all. My original diagnosis of 3c was in 2014, so if my remission continues, it will be 10 years from diagnosis this…
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Recurrence of Synovial Sarcomas
I lost my lower left leg and foot to synovial sarcoma then had four more recurrences in the first of seven years. It's been 13 years, six since I went through treatment for the fifth time. I was told it is when not if it will return and I'm being watched to make sure my lungs are clear and my liver is clear. My rad doc…
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Guiding Lights/Shining Stars
I posted recently to ask people to come back and share a memory of Greg- our former fearless and powerful leader. Greg was certainly not the only person I admired on this site. Though we can certainly keep his memory alive and remember the great influence he had, I am hoping that we establish a rebirth of this site with…
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Changes
What have you learned about yourself since your cancer diagnosis? Are you more resilient? More positive? More apprehensive? Do you find yourself wanting to research everything? Do you trust what your doctors say and go with the flow or do you want to find alternative treatments? Or research studies? Do you have adequate…
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A Look Back
In a short few weeks, it will be the 4th anniversary of the ONLY time I have been called back to have follow-up imaging done after a mammogram. It will be the 4 year anniversary of the day the word "cancer" became a part of my life and my body. I don't know a woman alive who has been called back for imaging, or asked to…
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Henrietta Lacks
If you have not already taken time to read the article that you can access on the homepage, you MUST do so. What a fascinating bit of history. It really does bring up some interesting questions and thoughts about medical research and privacy. Once some others read it, please come back and post with some thoughts. I would…
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Sea Monsters (C-Monsters)
I am going to really age myself with this post, but I remember a show called Sigmund and the Sea Monsters. It was about some boys who found this sea monster named Sigmund who was kicked out of his family for refusing to frighten people. That's sort of how I felt when I first encountered this group. It was the place that…
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Anyone out there?
Anyone Out There? I was hoping with the rebirth of WhatNext that we would get some conversation going. My only personal experience is with breast cancer. My grandmother had Lymphoma in her mid-90's but she went through a short course of treatment and went into remission so I don't have much experience with that. What I do…
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The 29th is Rare Cancer Day
What cancers are considered to be "rare"?
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Seasons of Life
Well, as many of us are experiencing the dog days of summer, I am wondering about many of you. It has been quite hot, beyond hot, here in coastal South Carolina. So, using "seasons" as a theme, I am hoping some of you will share with us about the current "season" of your life. What do you love about the current season and…
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Survivor Guilt
It's probably one of the most "useless emotions" ever, but I think it does plague many of us. For those with Stage 0 and Stage 1 cancers that were "easily treatable" our journey may be a lumpectomy with a short period of radiation, a single mastectomy and then nothing more- no radiation or chemotherapy. We feel so…
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Loss | My mind/Sense of Humor
Although everyone dies, and I am not afraid, I am afraid of pain and stress
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Great to see the group back!!
I was happy to receive the email today that this group is back. I hope others will find it and it will help with their journey dealing with cancer.. Greg was such a great support and always upbeat he definitely will be missed..
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Symptom Management | osteoporosis
Almost 3 years with hormone blocker and decided to take a 2 week break from anastrozole to see if bone/joint pain makes any difference. Osteoporosis is the biggest problem as it has advanced some in just a year. Update, after 2 weeks, there was no significant change in side effects (seems I have most of them under…
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Side Effects | Fatigue (tiredness)
Again, from the beginning of my diagnosis, fatigue is an ongoing problem that I work hard at managing on a regular basis.
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Our Little Angel of Adrenal Cortical Cancer
As "life goes on" please take a moment to read this message. Riley's mother has a birthday coming up and her older sister does as well. Perhaps if you could send a card to either, as requested by Riley's Mimi- it might bring a smile on a day of very tearful "firsts" after the passing of Riley. Team Riley Faith Olivia is…
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Sharing my experience & Seeking Your Stories About Clinical Trials
Hey everyone, my name is Andrew. Last March, my mother passed away from breast cancer. During the time she was in the hospital my family sought out clinical trails, hoping there was any chance at survival. Unfortunately, we could not find anything. Doctors turned down every hopeful study we had, and online resources were…
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Where is everyone?
Is anyone here? How is summer going for everyone? It is quite hot here on the South Carolina coast. I have no particular news to share about myself. I would love to generate a little discussion here and get people talking. Do you have any special plans as summer starts to wind down? I mean, it's still right in the middle…
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Breast Cancer Support
Welcome to the discussions regarding breast cancer. This forum "WhatNext" was created years ago and then sort of fell into a "deep sleep" for almost a year. This forum can offer a lot of support and community as you navigate your journey with breast cancer. All of us have different paths, and I am here to tell you that…
