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Oh No | Just Diagnosed
I’m still gathering information from multiple sources in order to choose a treatment plan and provider.
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Oh No | Just Diagnosed
VA healthcare system isn’t consistent with what they say and I have to do their administrative duties for them or I’d be stuck in the system for as long as it takes for each department to realize I’m even there. Non-VA providers can’t do their jobs because of this, and some of them simply tell me what I mostly already…
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Side Effects | Bleeding
I passed kidney stones at the same time, which led to my diagnosis. I also have a possible tumor of unexplained and unexplored type in my opposite side lung, and a stent in the effected ureter.
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Oh No | Cancer has spread/Metastasized
Was finished with treatment, 5yrs. Tamoxifen. 3 years, no cancer. Thought I was having stomach problems, hiccups, pain radiating to shoulder then shortness of breath. Went to ER. 2 ltrs of liquid removed from around left lung. Cancer has metastasized to lungs
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Community Survey
There is still a link to the community survey if you go under the blog drop down. It might help to retake and see if anything new happens.
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Nutritional Information
What works for you diet wise? I want to eat healthier.
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Anyone brave enough to try??
This is what Dave Waz sends to new people. Has anyone clicked on the link he put in there? Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer…
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I used Banana boat sunburn lotion and used my...
I used Banana boat sunburn lotion and used my aloe plant from the garden. At the end not much helps. Like a really bad sunburn. I had 34 rounds.
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Clinical Trial | VS6766
Started end of January. https://www.clinicaltrials.gov/ct2/show/NCT04620330 Used for NSCLC and Low-grade Ovarian. She has had a hard time with this vs6766---fatigue and abdominal pain. She does not have the addition of Defactinib.
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Please delete this account
Please delete this account
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Prolina shot due to arimidex
Anyone have a problem with prolina? I'm 1 month out from my first shot and have lots of leg/hip/ankle pain (seeing dr. this week).
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Oh No | Just Diagnosed
I really really just thought it was swelling from the COVID vaccine. You can’t feel it during a regular self exam or on mammogram, but if you turn slightly you can feel it and it’s huge! How could I have missed that
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Side Effects | Depression/Anxiety
There were good times and bad. Trying to hold it all together was very difficult for my family. I didn't want my children to know I was afraid, sad, hurting and angry.
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Side Effects | Mood changes
Feeling guilty that i was a roller coaster of emotions and didn't have anyone to relate with me. Putting my family through all the ups and downs and feeling so bad but knowing I couldn't control it.
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Loss | Job
couldn't keep up anymore. Lost my dream job after 6 years working with cancer patients and their families, It gave me hope and a desire to fight along side those that were also in the battle for their lives. I lost a lot of wonderful friends.
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Side Effects | Pain
The bone pain is to much to bare sometimes. I have made it through so much now have to deal with what chemo, scans have done to my heart, bones and god only knows the rest of my body. Now I live in excruciating pain. Alls I want is a break from this pain and play on the floor with my grandchildren, take a walk in the park,…
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Celebration | Remission
Today is 4-26-22 I have been cancer free since my mastectomy in Dec of 2013. I will be 9 years free of cancer by Dec of 2022 I am currently on Aromasin I also have to have Prolia shot to prevent further bone loss. My first Prolia shot was in Jan of 2022 I am doing pretty and I am very thankful for being healthy and well
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TNBC (triple negative breast cancer) dx 11/15...
TNBC (triple negative breast cancer) dx 11/15/10 stage 2A grade 3 (T2 NO MO) Tumor - 3.6 cm grade 3, ER/PR Negative, HER2/neu Negative, nuclear grade of 8/9
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Celebration | Finished treatment
Finished treatment only to start again 5 1/2 years later from 1st diagnosis. Been through it 4 times. I don't celebrate the mile markers anymore I celebrate each day.
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Side Effects | Sexual side effects
Sex life slowly dwindled to nothing. Feel unattractive, no desire, scarred, fat, and lost the glow of living.
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Side Effects | Hair loss (alopecia)
Very emotional! This was the turning point for me that I really had cancer. I didn't know what to do what those roller coaster emotions.
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Side Effects | Fatigue (tiredness)
The worst! Laying in another room so tired to participate in everyday life as you hear your family in the other room living life without you.
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Side Effects | Chemo brain
Horrible! People didn't understand. Very difficult to perform work duties and to learn new work tasks
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Drug or Chemo Therapy | Chemotherapy
Emotionally, physically, and psychological the biggest battle
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Very tired...
Very tired
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I’m here to celebrate 10 years of survival wi...
I’m here to celebrate 10 years of survival with Inflammatory Breast Cancer! My journey has been amazing. I have never felt this good and did not expect to be retired and living in my cabin on a lake in northern Wisconsin enjoying every single day as a gift from God. I am 65 years old and loving my life. I had to endure the…
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Had a double mastectomy dx bilateral breast c...
Had a double mastectomy dx bilateral breast cancer. A,so a died flat reconstruction. Wow. The first two weeks were rough but now at 8 weeks out I am good!! Listen if they say it will be hard, cause it will be...but not for long. Still unsure of my post treatment as they are doing the oncotype exam test... praying for no…
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Procedure or Surgery | Double Mastectomy
Took a few weeks to get back to almost normal.. going to PT as I had node removal and trying to get back full motion of right arm
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Drug or Chemo Therapy | Chemotherapy
I have had severe nausea, vomiting and colon cramping, which is a hindrance to intake nutritional value from food. The arm "PATCH", along with nausea pills that dissolve on my tongue, have been the only thing keeping me out of the hospital. Have gone through severe dehydration. My experience is that I have to keep drinking…
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Drug or Chemo Therapy | Chemotherapy
Paclitaxol plus Carboplatin plus Neulasta. Pains everywhere plus incontinence and inability to sleep more than 3 hours at a time.
