Have any of you had side effects that your doctor couldn't get a handle on?

GregP_WN
GregP_WN Member Posts: 742
edited November 2020 in General Cancer
iv had a list of simple to severe that some just haven't been figured out yet.

All of us at Whatnext.com are wishing all of you the best!

Comments

  • Bengal
    Bengal Member Posts: 518
    edited November 2020
    My biggest issue is Chronic Fatigue. Some doctors don't even recognize it as a real thing so don't even try to treat it. "You've been through alot". Remember, you're getting older". OR they call it depression (it is NOT) and want to push more drugs on you. BS! Chronic Fatigue is real and it is dibilitating.
  • po18guy
    po18guy Member Posts: 329
    edited September 2020
    The latest issue of CURE magazine addresses fatigue. Subscriptions are free. And, so does the Blood & Marrow Transplant Information Network (www.bmtinfonet.org/). The surprising thing is that exercise is recommended. Right.

    In my case, an enjoyable exercise, i.e. bicycle riding, is what works.
  • Bengal
    Bengal Member Posts: 518
    edited September 2020
    Yes, po, exercise is recommended. It can be difficult to find motivation for exercise when you feel exhausted all the time but it is beneficial.
  • LiveWithCancer
    LiveWithCancer Member Posts: 470
    edited September 2020
    When I first started in the clinical trial, I started packing on pounds. It took me a month or more to convince my oncologist that there was a problem. He did figure it out pretty quickly - broken thyroid. But, it definitely took me a bit to get him to even realize there was a problem.

    Otherwise, the few complaints I have had, he has sent me to some other specialist and the problem has been handled right away.

    I'm sorry you're having issues they can't figure out how to address :(
  • LiveWithCancer
    LiveWithCancer Member Posts: 470
    edited September 2020
    What phase is the clinical trial you are in, Greg? It could be that some of your symptoms are new and a result of the drug(s) you are being given through the trial.
  • bdm0911
    bdm0911 Member Posts: 1
    edited September 2020
    Bengal- I am now 40 years old, diagnosed age 34. I have had chronic fatigue the entire time yet regularly exercise and practice yoga. Although I don't find myself with more energy, I do enjoy the exercise. The fatigue is REAL and evidently if you don't personally experience it, it doesn't exist as far as some doctors are concerned....
  • Molly72
    Molly72 Member Posts: 227
    edited September 2020
    I have really bad, very low back pain since the cancers.
    Have had all the tests, all the therapies, all the pills and out-patient shots & minor nerve abalations or whatever they are called, but still the doctors can't put their finger on it.
    Yoga, and stretching and warm water and ice and CBD products-- nada! Relief for a few minutes can be found by the stinky creams similar to Ben Gay ointment.

    Naturally, the weight has piled on as exercise/walking is not an option.
    It is really getting too expensive to go to the therapist or doctor or whatever in vain.
  • RobinW
    RobinW Member Posts: 20
    My oncologist prescribed Ritalin 10 mg, AM and 10 mg, Noon - it makes an amazing improvement with my severe fatigue. I still get tired early evening but I’m much more alert during the day. I think I started out with 5 mg doses. Good luck. Hopefully you will be able to give it a try!

Categories