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I am developing white stripes across the ends of my fingernails
Is this a normal reaction to chemo?
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In remission and working
What are your thoughts on working and this virus? I am in remission from AML and stem cell transplant. I returned to work as a Registered Nurse a few years ago. I had 4 years of photophoresis and am really nervous. What would you do? Take off work? Stay and work?
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Several hospitals in our area are cancelling surgery except for emergency. .
Has this happened to any of you yet? I have a surgery scheduled for the 31st to put in a TEP device in my throat that is supposed to help me speak. I haven't heard from the hospital that anything has changed, but I'm sort of expecting it.
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Our glitch on the site has been fixed, sorry for the inconvenience and delay in getting it fixed.
The questions that were asked during this time were not populating on the questions page, they were just going to the home page feed of whoever asked them. The Pinboard had a similar problem. Both are fixed and are working fine now. Please repost any questions you may have posted in the last two days so they will show on…
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Another part of my new reality of living life as a laryngectomee
I have this little tube that goes in my stoma, it's called a "larytube". Its purpose is to hold my stoma open so it doesn't heal shut, or at least shrink. But its main purpose is to hold a little filter device called a Heat and Moisture Exchanger (HME) The idea is that with your nasal cavity your air comes in and out of it…
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I noticed the Red Cross is asking for blood donations on the news.
Apparently the virus is causing a drop in blood drives and it's hurting those who needs it. I have donated before I had cancer, I was wondering if we can donate being cancer patients? I haven't called them yet. Thought someone here would know.
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Not Cancer Related - A Place for Good News
Hi, everyone. I've been looking for some good news lately and remembered a site called Good News Network. It has very short stories about people doing kind things for others. You might want to check it out if you could use some good news. The web site address is: goodnewsnetwork.org
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Our March Newsletter is out!
Click below for some of our most popular blog posts and topics over the last month. https://conta.cc/2vHtE7d
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I just saw that today is "Common Courtesy Day". We have to have a recognized day for that?
Shouldn't that be every day?
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While you are in the middle of treatments have you felt like you have lost control of your life?
Does it seem like you are just along for the ride? And for those that are done with treatment and trying to move on, do you think that you have tried to overcompensate for not having control while in treatment, now you're trying to do every little thing that needs to be done? I think my mind is playing tricks on me.
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How has Covid-19 afftected your treatment facility?
Are treatments still being given? Are you having to sit in your car until called in to have your treatment? Only 10 people at a time allowed inside? I've seen a lot of this happening around us. I made some calls yesterday and was told a variety of these. My facility will only let you come in when it's your time. Until then…
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Are there any cancer types that are more susceptible to the virus than any other?
I've heard it said that anyone with compromised immune systems, on chemo, or radiation. I'm guessing any of us with a cancer diagnosis are in that category.
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In times of sinking sands, turn to your pets
In times of sinking sands, turn to your pets
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In times of sinking sands, turn to your pets
Here is a is one of the newsletters I get from Dr. Marty Becker : In times of sinking sands , turn to your pets Unless you went through the Spanish Flu of 1918 and the Great Depression of 1929, you wouldn’t really know what we’re going through now as a community, county, country, continent, and world facing the COVID-19…
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I completed therapy in September. My hair is growing back so slowly. I'm wondering if any of the h
I've seen several products like special lights, etc. Any one have any positive experiences.
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It's a new month! March is here, supposedly the best time of the year. Spring has sprung!
What do you hope to get out of March? For me, I want this feeding tube out of me, hopefully Tuesday that will happen, but I have doubts no that my oncologist said that she doubted it would happen because it takes longer than this for it to heal. While I'm not sure what is going to heal when it is sticking through me.…
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This might be a stupid question but does antibacterial soap work as well as plain soap?
I went to fill my hand soap bottle and I noticed that it said "antibacterial" The coronavirus is a virus not a bacteria. So should I use hand sanitizer after I wash to kill the virus?
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The statement The statement "God only gives us what we can handle"
I have had a couple of people say this to me. I am not anti-religion, I occasionally go to church. I just don't know how this is supposed to make a person who is possibly dying from cancer feel better. I'm torn over this. I honestly don't want to hear it. What do you think about it?
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The gift that keeps on giving. Now it's ulceration of the stomach lining
I just came from my gastroenterologist. I'd been having considerable stomach pain for a while and finally decided to have it checked out. I have significant ulceration with some detectable bleeding (although I've had no noticeable blood in stool). I had horrible stomach pain during chemo, especially the weeks I was given…
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Should I be overly worried?
I had a total thyroidectomy in August - follicular carcinoma in left lobe and small papillary carcinoma in right lobe. I had RAI in September followed by a full body scan which showed uptake only in area where thyroid was. I had an ultrasound at endocrinologist and a small nodule with vascularity was found. My doctor…
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Has anyone had a personal experience related to coronarvirus yet?
I know we hear about coronarvirus endlessly and some are sick of the seemingly never ending news stream but has it touched anyone personally? As of today I am banned from my mother's skilled nursing facility. I have bronchitis. I have a cough, the sniffles and fatigue mostly from lack of sleep. I have seen my doctor, am on…
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Can you believe this? Oregon police department asks public not to call 911 if they run out of toilet
This article was shared on FaceBook . It’s hard to believe that we even have to post this. Do not call 9-1-1 just because you ran out of toilet paper. You will survive without our assistance. In fact, history offers many other options for you in your time of need if you cannot find a roll of your favorite soft, ultra plush…
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After finishing chemo I've started radiation. I thought the chemo was bad.
I didn't think I would make it through that, now I've started radiation. Yesterday, for the first time, I felt really hopeless. The food has no taste, I’m nauseous, and my throat is killing me. I also realize it’s going to get much worse before it gets better. Has anyone else felt this wave of depression?
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Are you getting "Cabin Fever"? With the Wintertime humdrums and now the coronavirus scare many are s
Today's blog post has a few tips and reminders of some things you can do to fight off the "cabin fever". We don't need anything else that will give us a fever these days anyway. Click here for the article>> http://bit.ly/2vrDZ78
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nasogastric tube feeding
appreciate any comments about this procedure
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Ringing the Bell
I am on a patient board at the hospital where I get my cancer treatments. I learned today that one of the topics at the next meeting is how patients celebrate their final treatment - for instance, with ringing a bell. There's been some research that suggests it is not necessarily a great idea, even for the person doing the…
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What has your experience been with gabapentin?
I was given a prescription for it because of tingling in my feet. A friend of mine who went through cancer a few years ago said Oh no, you don't want to take that, the side effects are worse than the tingling. I've known her to blow things out of proportion before. So, what about it, have you daken it without terrible side…
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It's been 6 weeks since my laryngectomy and bilateral neck dissection.
Here is an update about adjusting to a new life living as a laryngectomee. As we hear often cancer patients have a "new normal". This thing has nothing "normal" about it, but it is mine. So I'm learning the unique quirks to being a "neck breather". Here is my latest article>>http://bit.ly/3cZtadd
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I went to the pharmacy to get a new prescription filled for cholesterol that doctor gave me
It's 427.00 compared to 24.00 for the old prescription. Do these doctors not even know what this stuff costs? EVeryone just assumes that we are money loaded and nothing is a problem. Medical bankruptcy is the number one reason people file bankruptcy in the US, this is out of hand!
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Has there been any of this coronavirus flu been reported near you?
As we cancer patients are all in a weakened condition, I hope none of it comes close.
