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Since you started dealing with cancer, how many times have you had to make an ER visit because you c
It seems like I can never have anything go wrong during the day so I can call my oncologist and go to the clinic to see them. It's always after hours and the usual response from the after hours phone number is to go to the nearest ER. I've had to make 4 trips in the last two years. Anyone else having this issue?
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After you have been treated for a while have you noticed that those around you start to change.
I see them starting to think that because they have gotten over my diagnosis that they think I should too and that I should get back to acting like I used to. They seemed to have forgotten that I'm still in the middle of this and fighting for my life.
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How much weight did you lose or have you lost during treatments?
I am down by 24 pounds so far and seem to still be losing. I thought I would stabilize and start gaining, but nothing yet. Still losing in spite of me drinking nutrition drinks and eating when I can.
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Sunblock for radiation?
I’m not sure mtpy previous attempt to post this got through. Anyway.....is true that sunblock helps prevent reddening and burns from radiation? If so, any particular recommendations for sunblock brands and strength?
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How many years/months past finishing treatment are you, if you have finished treatments?
I am already stressing over a recurrence and I'm not even done with my treatments yet. I can't seem to stop worrying about it coming back after I'm done.
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Chemotherapy due to recurrence
I've had a recurrence of cancer in the same breast where I had a mastectomy over six years ago. I had a tumor and the implant removed earlier this month and just saw my Medical Oncologist today. Because of the aggressive nature on my cancer, he is recommending chemotherapy - dose-dense AC/T. The first time, I had Cytoxan…
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Did you lose your hair during chemo or from radiation?
Our blog post today has some helpful information to help you understand why and when you might lose your hair. Click here for the article http://bit.ly/2TdvKTY
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How long have you had a feeding tube in? The PEG type in the belly?
I have asked to have mine out a couple of times but the doctors don't want me to have it out yet because I keep having issues with my mouth/throat with not being able to swallow. I'm so ready to get it out. I keep bumping up against things with it, it's aggravating while sleeping, or any time really. Does anyone have one…
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Has anyone been through ABVD and MOPP in different diagnoses then had your Hodgkin's come back?
I have had two dx's and for some reason, I keep looking around corners waiting for the next one to come calling. I'm just wondering what the next treatment protocol is.
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How common is it to have to get anti-depressants?
I have talked to my doctor about the mood swings and what seems like depression over this diagnosis but I haven't agreed to take them yet. I don't want to start another problem because of this problem. Does anyone have any experience with them?
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diagnosis
its been 8 years since I found the lump in my breast. An out of this world experience. I have had coworkers to pass away from cancer,or their family member to pass away from cancer. pancreatic and liver cancer. new diagnosis of breast cancer for their loved ones. than they come back and say "I didn't realize what you were…
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Question re back pain, rib pain after treatment
Hi, I used to frequent this site when I was under tx in 2015-16, but forgot my username and password etc. Anyways, wanted to ask others that may have gone into mestatic cancer after their breast cancer treatment. I thought the back pain and now rib pain and pelvic pain, might of been due to my night cleaning job that I…
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Microwave therapy
Is anyone here having microwave therapy. A lady in my cancer support group is taking microwave therapy with chemotherapy and a kind of directed radiation. It seems this is a very new treatment
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What do you have going on this week? Treatments, scans, surgery, check-up? Nothing?
I have a surgery follow up with my ENT Oncologist/surgeon to see how my stoma is healing, and I can get rid of this feeding tube that's hanging out of my belly. I've started eating on my own and I'm able to swallow so far with no issues so it's time to get that sucker out. It's aggravating having to watch out for it all…
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Evening primrose oil
I have had three surgeries since June of 2017. The initial lumpectomy, then in 2018 removal of a benign cyst and last spring a surgical biopsy that turned into a rather extensive lumpectomy to clean up a large seroma and scar tissue, also benign. As a result of all this messing around I have constant low grade pain in my…
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Anyone have experience with SIRT Y90?
Going to ask the DR about this, we are looking for options at this point. If anyone has ever had it performed, I would be interested in hearing about it
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Stoma Damange
I am having problems with my stoma every since my surgery. It keeps getting worse. I am going to a wound care center for this, but it seems not to be clearing up. I hurt so bad and don't know if I will ever get this healed. I now go 2 times a week, I feel I need to change my flange every day and do a good cleaning of my…
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Does the worrying and anxiety ever stop?
As more and more time goes by since my diagnosis and the treatments get more and more distant I should be feeling proud of how far I've come. But with that comes the worry and anxiety building more and more too.
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Our February Newsletter is Available
This month we have a recap of our most popular blog posts that are full of valuable information to help us navigate through the cancerland that is our lives these days. Click here to read it>> https://conta.cc/2PjBkmI
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Scar Tissue or Lesions on rib
Was diagnosed with Stage 3 111B colon cancer 3/18. Removed part of colon on 5/18. Began chemo on 8/18. My scan on 8/19 showed a lesion on my 5th left rib. Did radiation for 10 days in August. Oncologist switched me to Opdivo. However, nobody took a sample to see if its cancer on my rib, or scar tissue? My oncologist keeps…
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What do you do about people wanting to hug you?
While in treatment I am paranoid about everyone snorting, sneezing, coughing, etc. Then you add that to someone who wants to run up and hug you. I don't want hugs! How do you fend them off without just yelling at them?
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My doctor wants me to have a PET scan but my insurance is saying they won't pay for one now.
They say a PET is not needed now, wants them to do a ct scan first. This makes no sense to me at all. Why spend the money on a CT then when it won't show what they need they then pay for a PET. This is what's wrong with healthcare in our country these days. Anyone else having trouble getting a PET paid?
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A friend of mine saw me yesterday and as we chatted I told her I hadn't been out as much in the last
She dropped her mouth and said, well you don't look like you have cancer! Almost in a way that suggested she didn't think I really did. I didn't know how to take that. Should I be happy that I don't look bad, or angry because she thought I might be lying about having cancer?
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Opdivo Side Effects
I would appreciate hearing from anyone in the group who has, or is, experiencing problems with your platelets or blood while taking Opdivo. I have experienced other side effects, however low platelets have been the biggest concern. Thanking you in advance for any feedback.
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Game changing test to check for esophageal cancer.
I don't know about you, but there's no way I could swallow a capsule with a string attached to it without gagging and hurling. If you can tolerate it this sounds like a promising way of testing for that type of cancer. Here is an article I was reading about it. Anyone from babies to seniors can suffer from Gastroesophageal…
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Extreme fatigue, sleepy, and parts of body from waist up including arms tingle or need to be popped?
Sent enough for now. No energy.
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After I was diagnosed some of my friends were here to support and help me, but several acted like th
Has this happened to anyone else? I mean that they act like they don't want to talk about cancer or talk to me. I have needed a couple of them a couple of times and they disappeared. I just can't believe this after all I have done for them over the years.
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Omentum mets
Omentum mets
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Has anyone started taking antidepressants after you were diagnosed?
I've never had to have anything like that before because I've never been depressed. Not even close, but now I seem to mope around all the time and I can't get rid of this whoa is me feeling. I told my doctor about it and he just said I "might" need to take them. I really don't want to take another drug and I'm afraid of…
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Tips to avoid germs when you have cancer
I came across this article on webmd.com. https://www.webmd.com/cancer/immunotherapy-approach-19/treat/slideshow-cancer-germs?ecd=wnl_can_021820&ctr=wnl-can-021820_nsl-Bodymodule_Position1&mb=0LSdc4FLHCzJCnSh7@e4@OHnVev1imbCZim95PoeTt8=. Even though it is rather basic. It gave me some points to ponder. What are your…
