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Anyone brave enough to try??
This is what Dave Waz sends to new people. Has anyone clicked on the link he put in there? Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer…
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Please delete this account
Please delete this account
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Prolina shot due to arimidex
Anyone have a problem with prolina? I'm 1 month out from my first shot and have lots of leg/hip/ankle pain (seeing dr. this week).
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What is up?
So, is WhatNext dead? I am all in favor of "letting life happen" but it seems that is ALL that is on this site anymore. Feel really bad for newly diagnosed looking for answers or support. They will not find either here.
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Update on my Husband
Hi, everyone. I'm writing to let you know that my sweet, brilliant and silly husband passed on March 22. I'm heartbroken. I don't know if anyone is even going to see this post because of the way the site is running these days but I wanted to say something because so many of you have been so kind and supportive. Thank you,…
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MODERATOR
Mod (whomever you are): PLEASE REMOVE SPAMMERS. We’re getting bombarded with http://www.whatnext.com/questions/missing-greg-s-posts-and-praying-he-s-okay?utm_campaign=Notify&utm_content=FollowedQuestion. Is anyone ducking paying attention to this site? Muthaducking irritating.
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Fatigue
Any suggestions for overcoming constant bacterial bladder infections? I am very aware of clean-dry-taking meds properly…maybe diet/vitamins in addition to?
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What's up with the spam and ads?
Who is a moderator on WN? Colby or Dave can you have this stopped? I was helping when my brother in law Greg Pierce was living. I've tried to get to the comments as moderator to report them but it doesn't show them. Each of them shows in my email and is junking it up. Looks like the site is pretty much running itself…
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Uh-oh
Oh dear. I trust I am not the only person to open her email and discover TWENTY SIX What Next notices? All of them appearing to be some sort of drug scam posted under a thread that is over a year old (about Greg, no less!) Obviously, we are not being monitored? I am so disappointed.
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Side Effects changes?
I know most of us get some (or many) side effects from drugs we need to take, but I am wondering if anyone has experienced their side effects changing or going away? I have been taking anastrozole for over two years now and at first I didn't notice any problems. Then I began to awake with some stiffness in my joints, but…
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Touch Base Tuesday
I hope everyone is doing okay. We are finally starting to get some warmer weather around here in coastal South Carolina. I know that our "cold" weather is nothing compared to what many of you have gotten this year. Things are moving along here. Just wanted to say hello and wish you all well.
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TNBC chemo
My doctor recommends I start on Trodelvy; need to have port put back in...questioning if I can handle it. Does anyone have experience with this chemo?
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Support System
I think those of us who have been around for awhile, whether actively or not, would say we have found support here. Most, if not all, of us who were here before Greg earned his wings would agree that this was a very supportive and active site. I would say it was a very proactive site- always with tips, hints,…
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What book(s) are you reading?
MarcieB suggested we resume sharing what we’re reading. I’ll start, below.
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Friendships and Life Circumstances
A lot of us have gotten to know each other pretty well and we do share about other experiences other than our cancer treatment. I think our "whole" lives often affect our cancer treatments and healing and recovery. I recently saw a comment from someone who said this is "STRICTLY" for posting experiences and advice…
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Arm Update
Okay, so my disclaimer first- this is not cancer related so if you are going to be bent out of shape by reading something non-cancer related- bail out now or you must accept full responsibility for any offense you incur by reading further. I finally got my referral authorization to see the ortho doctor. My next appointment…
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Friendly Friday
Not a question about diagnosis or treatment. Just a check in with everyone here to see how you are doing. I find that just checking in from time to time reminds us all that we are not alone and someone still "sees" us in the times we think we have talked ourselves blue in the face to our family, doctors, et cetera. No…
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One more time - To Pill? Or not to Pill?
In Dec, my doctor advised changing my anastrozole to Tamoxifen because I cannot handle the bone meds one has to take with aromatase inhibitors. She said, I had a *complete response* to my chemo so I would be a good candidate to take this drug. I decided to switch, but first I took a pill vacation for over a month. I can't…
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Who has had recurrence after successful surgery?
I had Stage 2 and successful partial radical vulvectomy and am curious who had recurrence?
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squamous cell cancer
I am 3 yrs in remission from double hit Lymphoma. Just got diagnosis of 'unspecified origin' Squamous cell cancer in lymph nodes in neck. CT and PET scans ordered. Very discouraged. Anyone have experience with this? Love to hear. Thanks all
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Encouragers
I used to do something on my Facebook page that I called "earth angels." It was a way of speaking kindness into someone's day and recognizing them for something positive. Sometimes it was just telling them I loved their laugh. Sometimes it was a thank you for something specific they had done. We all feel a little…
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The Final Curtain
It is time to bid all farewell. I am so thankful for the respite and safe haven this site and all of you provided in the early days of my journey. I realize my journey is far from over as we all have to live with the aftermath of our diagnosis for years to come, whether it be recurrence, metastasis, worry and anxiety, or…
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Promising research on mRNA vaccines
Hi! Haven’t been here for awhile. I just read this and think it’ll be of interest: https://www.cancerhealth.com/blog/can-mRNA-vaccines-help-treat-cancer I hope to check in more often.
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Thankful Thursday
It's Wednesday evening in my time zone but I'll put this out there anyway for Thursday. Let's do a Thankful Thursday. What are you thankful for today, uh, tomorrow, uh, on Thursday? You know what I mean.
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Continue to have serious sinus and throat problems after only one treatment of Cisplatin on November
All types of blood work has been done even for autoimmune disease and rheumatoid arthritis. Nothing. Dexamethasone steroids at times, has been the only drug that helps. I have a difficult time getting them to relieve the serious sinus and throat blockage. Allergy testing and three different ENT doctors no help either.…
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Health Dichotomy
As we begin 2022, we start yet another year with yet another strain of COVID. It seems to be the chronic problem that will never exit our lives. Perhaps the fear of COVID is the chronic problem that will never exit our lives. I want to be sunshine and rainbows, but feel like Eeyore and black clouds. With the exception of…
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Medical marijuana
My fiance has been having chemo since Aug 2020. A year on oxaliplatin and now on irinotecan. He has also been taking capecitabine the whole time. His stomach cramping on the irinotecan has been debilitating and he has no appetite. We are thinking of marijuana to help. Anyone else here try marijuana to help with side…
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Neuropathy. Is there anything I can do or take to help this condition?
Neuropathy. Is there anything I can do or take to help this condition?
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New Year New Thoughts
I hope 2022 has come in well for all of you. Happy New Year. I wish all of you the very best this year- whether that comes in the form of remission, slowed progress of disease, new family members, grand celebrations. If this year is looking a little less grand than I hope, then I wish you peace and support to get through…
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Happy New Year Wishes!
I am just writing to say I hope everyone on this site has a good year ahead. I know we are all struggling with various things - I, for one am trying to make a decision whether or not to switch to tamoxifen(instead of anastrozole) because of my bones...more on that another time. And I am sad to learn of a childhood friend I…
