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Has anyone on ACT (Adriamycin, cyclophosphamide, Taxol) chemo regimen used the cold cap to prevent h
I'm starting chemo toward the end of next week and I'm trying to decide whether or not to use the cold cap to prevent hair loss. From some research, it looks like it doesn't work very well when Adriamycin (or doxirubicin) is one of the chemo drugs. If the cold cap doesn't work with Adriamycin, then I won't go through the…
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Covid-19 testing, have you been tested?
There is a reference to "those with underlying health conditions", which refers to people like us and others with similar serious health conditions. It seems to me that we should be some of the first ones tested. Nobody has suggested that I get tested, my treatment facility does a temp check but that's it, no mention of a…
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I went to my doctor today for a normal checkup. I was wondering if there would even gbe a doctor the
Doc was there, nurses and a few patients, but that was pretty slim. They said because all elective surgery was canceled they had far less to do. I see them talking about how much money the hospitals are losing because of no elective surgery. It must be a real money maker.
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Have you had weight gain or loss issues during your cancer treatments?
Some of us lose weight while others gain. Our blog post today has some information about how to maintain a healthy weight. Read the article here>> http://bit.ly/2SVYTmm
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If you want a pet scan done just to ease your mind but your doctor says "you don't need one" What ne
I don't think you can even just walk in and order one even if you pay cash. If the doctor doesn't order it then it can't be done, right?
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It's National Sense of Smell Day!
Does that mean I will get mine back today?
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Oh No | Cancer is back/Recurred
Completed 3.5 yrs of chemo, but 4 mos after completed, leukemia came back full force.
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Side Effects | Depression/Anxiety
Was prescribed Celexa. But I think it was due to being on steroids so young!
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Drug or Chemo Therapy | Chemotherapy
Rough from day 1! Mentally, physically, emotionally! ...
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covid-19
the whole world is in crises mode, now saying we have no control. I feel like welcome to my world Cancer diagnosis showed us that we were not in control of anything or any aspect of our lives. we try hard to follow the rules, to stay afloat. we all know that the world keeps revolving. That life is forever changing. we know…
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life
do you feel like giving up? there are days and moments that I feel like giving up, whats the use? what is the purpose of my life.? why did God put me here? Why all the pain and suffering? My grand children keeps me going.. my heart aches for them like the mahalia Jackson lyrics"the troubles of this world' And no I don't…
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With all that we have going on in trying to get our treatments, office, calls, surgery, etc
and now trying to keep from getting this stupid virus, do you feel like you can still be thankful for anything? Is there anything that gives you joy still? It seems like things keep piling up on us. What do you have to be thankful for at this point in your life?
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Chemotherapy pills.
The drug "LETROZOLE" information sheet states it for making it easy to get pregnant. What was it approved for, & how does it work for bc?
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Drug or Chemo Therapy | Bone strengthening drugs
Usually I have two days where I feel out of sorts and really tired. Luckily as days pass, the bone infusions get easier and I'm feeling less symptons
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Celebration | Anniversary
On January 29th, 2020 I celebrated my 1year battle with stage IV metastatic breast cancer.
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Are you making use of takeout/home delivery restaurant services?
Greg mentioned maybe getting takeout from Cracker Barrel on their way home from Vanderbilt. Great idea to treat yourselves. I have been hesitant to do takeout because not sure how safe it would be. I finally caved yesterday and got a sub at our locally owned quick stop. It is one way we can help support local business. Not…
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Our Guest Blog Post today is from @Gumpus61. He was his wife's caregiver for several years. Today, h
If you have read any of his other posts about life as a caregiver for your wife, you know he has shared the honest truth about life on the inside. Most of us know about one side or the other, patient or caregiver, he shares some of both. Today is a piece looking back at the years of fighting, after having a year to…
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Our April Newsletter is also out this morning.
You should get it in your email inbox that you signed up at WhatNext with. If you don't see it please check your spam folder and check the email as "not spam" or whatever your provider lets you mark your emails safe with. You can also click on this link to get it>> https://conta.cc/2VKqAQs
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Procedure or Surgery | Surgery
After 24 years, the renal cell cancer metastasized to my right lung which presented as heart attack like symptoms. Lower lobe of the lung was removed. That's a surgery like no other!
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Procedure or Surgery | Surgery
11 months after the first metastasis, it metastasized into my thyroid gland. Removed the gland and now on thyroid hormone meds for the balance of my life. Very rare metastasis, but as both my surgeons said, this shouldn't be happening after this length of time.
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Chyle leak?
Hi! It’s been a while. I have been sort of offline for a while. Helping in some other areas. I am currently in the hospital. Went in for a C5 C6 repair. Sort of related to my radiation and prior cancer surgeries. Well I sprung a Chyle (lymph) leak. Apparently it is very rare in head and neck surgery but does happen. So I…
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Have you heard of a doctor telling a newly diagnosed patient that they had "the good kind" of cancer
I have breast cancer, nothing good about it, but my friend was just diagnosed with thyroid cancer. Her doctor told her to not worry too much about it because thyroid cancer was the "good kind". I don't believe there is a "good kind". I started looking around to see what he was talking about and I came across this article…
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Radiation | Gamma Knife
I received Gamma Knife surgery to brain after having tumor removed. They removed the remaining tissues and zapped addl lesions.
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Drug or Chemo Therapy | Chemotherapy
I remained at worked during chemo
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Procedure or Surgery | Pneumonectomy
I went to work a few weeks after surgery.
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Does anyone have any experience with fasting before chemo?
Does fasting before chemo make it more effective?
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Supplies
I have a lot of Ostomy supplies I can’t use. Paste, those ring things, stoma powder, etc. is there an organization I can donate them to rather than throwing away?
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Anesthesia
In my last three surgeries, I have woken up in my hospital room, not remembering the recovery room at all. Has this happened to anyone else?
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Just Finished a Webinar where they said Stress is Really Hard on Immunity
Some of you know I took aromatherapy certification classes awhile back - I've kind of gotten away from it all for the last year or so, but today the place I took the certification class had a Webinar on COVID19 and essential oils. One of the presenters covered the biology of cells, specifically the virus cells. Her…
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Have you ever heard these two phrases "it takes a village to fight cancer"
or "when one person in the family gets cancer, the whole family gets cancer"? That's usually the way it goes. I wrote an article describing my family's cancer experiences through my diagnosis. Even though they aren't the ones that are taking the treatments, our family and friends are feeling the effects of our cancer. Take…
