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Procedure or Surgery | Surgery
Removed a lymph node to get diagnosis
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Side Affects
Well hope some one can help me. I went through Ileostomy in Jan. started taking Chemo pills in March for 4 months to finish cancer treatment. My problem is the side affects I am having now taking these pills then when I was taking them for radiation. I get really dizzy and can't walk far without it over coming me and I…
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How has your week been and what do you have coming up this week?
Scans, tests, surgery, covid tests, a new treatment plan? Do we have anyone that is finishing treatment and ready to get on with life? Let's hear what's happening.
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I don't know how to describe what I've heard more than once or twice from some people.
I've had a strange response from a few when I told them about my cancer diagnosis. It is "oh my God, are you going to die"? Or, "how much time did they give you"? Why do people automatically assume that we're all going to die? As one of the popular songs says, "Everybody wants to go to heaven, but nobody wants to go now".
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Happy Mother's Day to all of the Moms here at WhatNext
Thank you for all you do for your families, all of us wouldn't be here without you and we appreciate everything you do for us, take the day off and relax!!
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Frequently Asked Questions
There is always a list of F.A.Q.'s on most websites. I am putting one together for the basic questions we often hear/see. What question would you put on that list, and what's the answer?
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Side Effects | Nerve damage (peripheral neuropathy)
When touch cold, feels like knives going into my fingertips
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I am contemplating having the DIEP procedure ...
I am contemplating having the DIEP procedure done and I am interested in hearing from women who've gone through the experience.
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I'm having trouble staying focused on the positive things in my life
and off of the negative. How do you keep from dwelling on death, or what your family's life would be like without you?
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We have a guest blog post on the blog page today from Ms Norma
She is a stage IIIA breast cancer survivor, take a look at her story here>> https://bit.ly/2L7yvTb then let me know if you would like to share your own story.
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Today, May 6th, 2020, is National Nurses Day. The first day of National Nurses Week. Thank a nurse t
HISTORY OF NATIONAL NURSES DAY National Nurses Day is the first day of National Nursing Week, which concludes on May 12, Florence Nightingale’s birthday. Yet the week was first observed in the US in October 1954 to mark the 100th anniversary of Nightingale’s pioneering work in Crimea. In 1953, Dorothy Sutherland of the…
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I'm waiting for a scan report and call from the doctor.
I feel like I'm sitting on the railroad tracks watching a train coming towards me and I know I'm going to just sit here. Anybody else get that feeling?
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Medical needs and back up generators
This round of storms we had on Saturday afternoon stirred some thoughts about "what if". I have a suction machine for the mucus that I build up, in case my airway gets plugged it could be life saving. Other people need oxygen machines running, some have IV pumps, etc. There are a lot that depend on electricity. Do any of…
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Is your area, City, Town, County, State opening back up now?
There is a lot of controversy about this. Our area is slowly trying to wake up. I hope it doesn't explode again!
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Celebration | Day one of Stem Cell Transplant
I’m now 6 months Post Stem Cell still weekly blood tests and doctors appointment
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Side Effects | Diarrhea
Chemo brain, cramps in legs, fatigue,
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Drug or Chemo Therapy | Chemotherapy
Chemo drugs-chop/ice/beam and Melphalan
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Have you started wearing a mask everywhere?
Now that I think about it, as we are immunocompromised it's probably a good idea for all of us. Are you wearing one?
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Looks like immunotherapy might be in my future. Who has had Opdivo or Keytruda?
Opdivo is used a lot for H & N as well as lung. I now @LiveWithCancer was or is still on it. Anyone else? Side effects? It's been a long time since I took any type of treatment. (chemo wise)
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Procedure or Surgery | stent to ureter
Pat had a lower left abd tumor start to grow in Jan 2020. Well, it actually was growing before that for 2 months, but Jan is when we had to quit the clinical trial due to this growth. Eventually (March) it partially obstruct her left ureter, causing UTI-like complaints. It was decided by oncologist and urologist that a…
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Drug or Chemo Therapy | Hormone therapy
My wife Pat started on Megace and tamoxifen after having to quit a clinical trial. (see previous experience). The regimen is complicated, esp when added to other med schedules: she takes tamoxifen for 3 weeks, then Megace for three weeks, and again until we can get into a trial. Her doctor has a trial, but it is not open…
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Drug or Chemo Therapy | Chemotherapy
my 1st chemo is May 14,2020
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Procedure or Surgery | Implant chemotherapy port
This takes some getting used to.
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my 1st chemo will be May 14,2020. As of now ...
my 1st chemo will be May 14,2020. As of now I am cancer free. Had a radical hysterectomy in the beginning of March. But because of the type of cancer, Serious.I will be getting Chemo and radiation because it is a rare and highly aggressive form and it has a good chance of spreading.
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Since you were diagnosed, do you find yourself looking at other people envious?
I will see people, anywhere, doing anything, and sometimes my mind snaps to thinking that I will never be able to do that. Or, why do they get to have a long and happy life and I won't. I'm not terminal that I know of, haven't been told that I am, but still, that's where my mind goes.
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Life just keeps throwing curve balls at us, and the occasional knuckle ball
We have to deal with cancer, then the stupid virus, and now last night a line of storms came through our area taking down trees all along the way. Our lights were out from 4 yesterday afternoon until 130 this morning. We were fortunate to not have any storm damage though. All around us people had damage. Trees down…
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Food
Food
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Has anyone had genetic testing done on their tumors to see if they were a fit for immunotherapy?
I have been told that we might do immunotherapy, and testing would be done. No further instructions or descriptions were given at the time. It was just a possible lane at the time but now it might be where we go. I'm just curious about what's involved, how they test, etc. Is it a biopsy on the tumor again?
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So we had 4 members of the family over today to check on me and drop off some supplies
Since I've been sick we haven't been out of the house much so our family has been very helpful. One of them looked at me and says, so.....when this is all over, what's going to happen to all of your tools? (I have an extensive workshop) I'm still trying to decide what to respond with. I just stared at him in disgust and…
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Since your diagnosis, do you find that you have a new affinity for others with health problems now?
I never used to give it a second thought when I would see someone on oxygen, in a wheelchair, using a walker, or some other obvious health issue. Now I find I look and instantly think if there's any way I can help them right now. Get in their car, get something off the grocery shelf for them, etc. Just me or is this…
