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Waiting for a hurricane?
On top of the virus issues and scheduling my ct scan , now I’m anxiously waiting for this hurricane to decide where it’s going to go. Is anyone one else in the path? I’m on the coast of N.C. where it’s headed. No evacuation is ordered yet but they aren’t planning to open any shelters because of the virus. Guess we’ll…
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I am going to have to have another throat surgery after a recurrence.
My doctor says that after this one, I will have to be on a feeding tube for a few months while my throat heals. Have any of you been on feeding tube formula for that long or longer? I'm kinda nervous about keeping weight up, nutrition, etc.
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Oh No | Cancer is back/Recurred
Uhhh they found tumors in my back. On my spine. Don't know if related to previous cancer or totally different.
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Procedure or Surgery | Surgery
Emergency Appendectomy
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Trach or stoma suction. Have any of you had to do this on a regular basis?
I am having to run a suction tube a few inches down into my stoma, however far it takes to reach a chunk of mucus that is giving me a problem, and suck it out. It was a little unnerving to start with, but I'm getting used to doing it. I am hoping that whatever is causing this overload of mucus will stop with a little time.
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oncotype dx score
I had stage 2, grade 3 breast cancer at age 63. My oncotype dx score was at 99%. Does that mean I am likely to have a reoccurance?
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Strange smells and tastes after surgery.
Each surgery that I've had since Dec. I've noticed a strange smell and different tastes that seem to emanate from within me. It's a strange thing, I can imagine it like a piece of plastic "something" has been placed inside of me and when I breathe, swallow, or move air in/out/around, I can smell it. Have any of you ever…
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Did you get sensitive to smells during treatment?
I just remember that cooking smells would get to me. He could be at the other end of the house making a hamburger and I would be gagging way in the bedroom. So what bothered you during treatment?
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Drug or Chemo Therapy | Chemotherapy
My husband has gone through a study regarding the chemo meds for Hodgkin Lymphoma infusions in 2015 14 day cycle - 12 infusions. His second round with chemo is currently happening now. He is only receiving infusions every 30 days but he is getting ready for a stem cell transplant.
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Has anyone heard from Shelby?
I know she has a relapse and was preparing to get started again.
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An immunotherapy question for anyone that has been on it.
Yesterday I started feeling the first of what I am thinking are my side effects. I have started feeling a lot of pain around the two tumors in my neck. I asked my doctor about this today and they say it's the immunotherapy causing irritation to the tumors because it's starting to work. Did anyone else get this feeling or…
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How many days have you stayed in the hospital before getting the problem fixed?
We got here Sunday night, I've had a few tests done so far. They have figured out what the problem is, I cant swallow because of the swelling in my throat has caused occlusion of esophagus. Now they will do a swallow study to determine if they can safely stretch me. If not, I will go to surgery for a feeding tube.…
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Have any of you tried Zoom for exercise?
I have been exercising religiously for 4 years to help prevent a recurrence. For the last year, I've been going to a gym that offers Silver Sneakers. But with the pandemic, I'm unwilling to go back in person with COVID-19 running rampant in Georgia. The gym is Zooming the Silver Sneakers class Monday - Friday. I tried it,…
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Sorry I've been mia for a few days.
Had a few bad days. This afternoon was better. Hope it continues to improve. I still have a few issues to resolve. Hopefully things will continue to improve. Looks like we'll have a few more days here. I've just today felt well enough to sit up and text.
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August is HPV Awareness Month - Several types of cancer that are associated with the HPV virus can b
This puts this groups of cancer along side other diseases that have previously been prevented and in some cases wiped out. Our blog post today has more information about who needs to be vaccinated and the protection offered against which cancer types. Take a look here>> https://bit.ly/316cpbd
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Stage IV cancer survivor Herman Cain has been hospitalized for Covid 19. Your thoughts
Herman Cain was hospitalized about 10 Days ago. He is reported to be improving. He has stage IV colon cancer with mets to the liver. I first noticed Mr. Cain after I was diagnosed with Stage IV esophageal cancer. I had been given 4-9 months to live. I saw him on one of those morning programs like Good Morning America. At…
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Procedure or Surgery | Lumpectomy
I had a wonderful surgeon that did 7 surgeries on me that starting in Jan for thyroidectomy. Diagnosed 5 months later with triple-positive breast cancer.
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Oh No | Cancer is back/Recurred
had an MRI a month ago of my back which showed a compression fracture and disc problems. My PCP referred me to a pain specialist who wants me to have another MRI this time with contrast dye. This is because they see a soft tissue mass which could be associated with my cancer. I do not want to go back to the pain…
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Radiation | External radiation
i had 30 sessions of radiation and 4 that were internal
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Procedure or Surgery | Surgery
radical hysterectomy and removal of cervix
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Procedure or Surgery | Thyroidectomy
Thyroid was removed and it is hard to keep the meds to where I am not going from hypo to hyper.
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Drug or Chemo Therapy | Taking for over 9 yrs now Letrozole
Lucky I have no side effects
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Radiation | External radiation
Had a great group that when my skin was getting burned they changed and did the whole breast instead and then went back so i did not have bad burn
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Drug or Chemo Therapy | Chemotherapy
Carboplatin I could not finish 2xs because I had a reaction it was the last 2 times.
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Greg - We're all pulling for you!!
It makes me nervous when we don't hear from our fearless leader for a day or two, especially when we know you are in the hospital and having trouble eating and swallowing. I just want you to know that everyone at WhatNext is pulling for you, praying for you, sending positive thoughts, and hoping we'll see you here again…
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Oh No | Just Diagnosed
Discovered inadvertently July 8 during retinal exam for floater in other eye (which turned out to be harmless). Diagnoses confirmed July 15 by ocular oncologist--in the ciliary body (dang). Radiological Oncology telephone consult July 24. In process of ordering materials for and constructing plaque for brachytherapy…
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Oh No | Just Diagnosed
Discovered inadvertently during retinal exam for problem with other eye. Diagnoses confirmed by ocular oncologist--in the ciliary body (dang). In process of ordering materials for and constructing plaque for brachytherapy (internal radiation), tentatively Aug. 14 (implantation)-18 (removal).
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What gives you joy right now?
Between cancer and the pandemic, the future can look pretty bleak. What gives you joy during this rough season of unknowns? Mine is knitting and having Face Time with the grandkids. What's yours?
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Do you have a hematologist?
A friend who went through cancer treatments before me asked what my hematologist has said. I don't have one and haven't heard anyone of my doctors suggest it. Is this a common thing?
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Immune system & COVID-19
Apologies. I don’t know how to delete my previous post. My question is how long is your immune system considered compromised after BC treatment - lumpectomy, chemo and radiation in my case. I am a good 6 years post-diagnosis and treatment. So am I at higher risk for this Coronavirus or is my immune system back to normal?
