Do you have a new side effect every day?

JustGrateful
JustGrateful Member Posts: 72
edited August 2020 in General Cancer
Or, at least find something new every day that you want to blame on the treatment or the cancer? All of them are not really side effects but at least we have something to blame them on. But it seems like every day I find myself saying,"now what"?

Comments

  • GregP_WN
    GregP_WN Member Posts: 742
    edited July 2020
    I really don't, but every morning when I wake up I feel bad and have several things going on. I always think that this is the start of the side effects from the immunotherapy that I've just started. But so far, I don't have any.
  • cllinda
    cllinda Member Posts: 153
    edited July 2020
    It did seem like something new would pop up every day after treatment started. My good buddy said I was the poster child for sure effects (she meant it with love). I remember thinking the same as you, with the "now what" sentiment. But somehow I got through it all, and I'm now a survivor for almost 8 years. Hang in there. Call the doctor if things get too wild. And remember we are here for you!
  • TOUGHERTHANIT
    TOUGHERTHANIT Member Posts: 28
    edited July 2020
    I do seem to have a new issue each day. I can't say it's a side effect to the treatment, but I guess they are all related. If I have a new issue today that I've never had before I just say that it's from the cancer.
  • LiveWithCancer
    LiveWithCancer Member Posts: 470
    edited July 2020
    @GregP_WN, unless you are very unfortunate, you probably won't have many side effects from the immunotherapy. Most common side effects will be something to do with your thyroid (lots of people have their thyroid quit working quite right) or a rash or something like that.

    What the side effects from your clinical trial drug will be, I don't have a clue! Hopefully they will also be minimal (and I guess they are so far???)
  • GregP_WN
    GregP_WN Member Posts: 742
    edited July 2020
    Live, for now, I cannot tell that I'm even having any treatment. The only issues I have were there before I started. Pain in my neck all around it, eliminating from the two tumors. And a little fatigue. That seems to be compounding. So some of that could be attributed to the treatments. I am shocked and happy about the results so far.

    Someone sent me an email yesterday that read my latest article. They said that their cancer journey mirrored mine including going back 30 years to the start and having hodgkin's disease that relapsed. Also, followed that with head and neck cancer that relapsed. They were told no more could be done and sent home to contact hospice. Then, somehow, they were put on Keytruda and within 6 months were NED.

    Now that's a big turn around! Inspiring stories, they keep me going!
  • MyLungCancer
    MyLungCancer Member Posts: 72
    edited July 2020
    I seem to notice something new not every day, but more like once a week I notice how something has changed. It might not be a direct side effect of my treatments but I find things that I'm not able to do any longer. I guess in a way, that's a side effect though.
  • petieagnor
    petieagnor Member Posts: 110
    Funny that I should open this one. Since, I've been on Ibrance 75mg, I've not had a lot of side effects or they were so small, I didn't pay attention. This monthly treatment on 8/5 with my Faslodex & Zometa is terrible. I can barely walk after 4 days, hinny & legs are sore & numb. This is unusual as I'm on nearly full throttle by Saturday.







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