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Cancer Awareness-Does it matter? Does it help?
I've been noticing the actor that recently died from colon cancer Chadwick Boseman, who became famous all of a sudden from his roles in Black Panther and several others. I really had no idea who he was, but he was actually quite famous if you follow films. My point here is, he was one who kept his cancer a secret. I didn't…
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Drug or Chemo Therapy | Chemotherapy
Radiation therapy utilizes high-energy particle beams to eradicate cancer cells within a targeted area and prevent them from spreading throughout the body. This has been shown to shrink mesothelioma tumors, relieving associated pressure and pain. Oncologists utilize “targeted” therapy — only exposing specific areas of the…
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What do you you know about wearing head coverings, hats, etc during the hot weather.
It seems to me the added heat wouldn't be good. What do you think?
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Do you have an emergency evacuation plan?
Given the wildfires in the West and hurricanes on the Southeastern coast, do you have an evacuation plan? Have you thought about packing an emergency bag with essential supplies? Do you have an emergency cache of medical supplies? Insulin and needles, ostomy supplies, salves and lotions... This is a good time to think…
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Celebration | Breakthrough
I found out on 08/12/2020 that I have had a complete metabolic response to Carboplatin+Gemzar and now have no evidence of active disease. I have to finish one more round for total of six and then I go into maintenance phase where I will only be on Gemzar.
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All of this staying at home and watching a ton of TV has led to an interesting thing.
I can now tell you all of the new drugs out on the market, who makes them, and the problems they are supposed to fix. Just a strange benefit of being on lockdown.
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New issues every day. It seems like when I wake up I sort of wate a little while to decide how I'm d
Every morning someone will ask, even if it's after I've only been up for a short amount of time, how I'm doing. I can't answer for a couple of hours because it seems like every day there is a new issue, a new side effect, or something to deal with. I told someone that it's sort of like being on a game show and every…
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Oh No | Just Diagnosed
Had EDG for stomach pain ,Diarrhea, expecting stomach issues not esophaguses cancer . I asked it’s ok right , he said we have a lot of work to do .
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How many of you are prostate cancer survivors?
Tell us your story. September is Prostate Cancer Awareness Month - we'd love to hear your diagnosis and treatment.
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Long term NED with only chemo?
I am stage 4 with inoperable lymph node Mets. I just had six rounds of folfiri with avastin and my scan showed that all lymph node Mets have been resolved. My oncologist gave me the option of doing a couple more rounds of chemo or to stop now. We decided to go with the “don’t treat what you don’t see” route and I stopped…
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Trouble swallowing
My friend is having trouble at times with swallowing and food getting caught in throat, but too low for heimlich...what can we do?
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Decision Point | I had to choose surgery 90 % success . Possibly of vocal cord injury. Or chemothera
I did not want to have my granddaughters to be afraid of me being ill
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Procedure or Surgery | Surgery
Removal of esophaguses and made new one out of my stomach. Life changed quickly stomach digestion, food intake, learning ,amounts Bowl changes . Scar tissues, after first year 1/2 I feel great
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I am going to have to have some teeth pulled after radiation has killed them
The oral surgeon is suggesting Hyperbaric Oxygen treatments before and after pulling them. Have you done this? How did it go?
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oxaliplatin cold sensitivity
How long does it take before you feel cold sensitivity? My husband had his first chemo on Wednesday and had no cold sensations. He finally just had to try and see if he had a sensitivity and touched a can of coke in the refrigerator and had no issues, so he took a drink of chocolate commendation nothing. It was my…
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Bone mets
I am 9 yr. beast cancer survivor and am worried about cancer spreading. If it spreads to the bones, what are the first symptoms to watch for? I am not currently seeing my onc because of NED.
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Drug or Chemo Therapy | Pain medicine
Neuropathy pain is part of it. Extremely effecting my life. My work, my ability to play with my grandbaby. I've been put on tamoxifen for harmone fed cancer and the joint pain is unreal too. My pain doc gave me narco 10 for the pain so i can keep working
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I was reading an article about a young man applying for a job, he was questioning one of the cliche`
"Where do you see yourself in 5 years"? While I was reading I started thinking about myself in that same situation. lots of things would have probably prevented me from getting that job. Age, health, my lack of enthusiasm for starting another carrier at my age, etc. But the first and biggest issue that came to mind was…
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Just a survey type question. We are sitting here in the infusion room getting my Keytruda and out at
like a baby shower is going on. Lots if laughing, joking, and carrying on. It sounds like they are having a good day. My question is: Do you think its great that they are all yapping, yapping, yelling and having fun while some people feel crappy and just want to go home Do you not care one way or the other. Do you want to…
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I'm having infusion this morning and this sweet little old lady gets wheeled in to the next booth. S
The tech that is trying to get an iv started was just as calm and easy as he could be. She said when she sat down that it was usually an ordeal to get an idea started. He poked a couple times and couldn't find a vein. She was obviously hurting. My question is simple, why does she not have a port? It's obvious she needs one.
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Drug or Chemo Therapy | Lovenox and oxygen
Extensive blood clots were found in both of my lungs so I was prescribed Lovenox in 10/2019 and I have to give myself shots twice a day. I hate giving myself shots but it must be done. I was placed on oxygen to assist with my difficulty breathing.
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Other Care | Hospitalization
I went into health crisis and was hospitalized for two days in 10/2019 after it was discovered that I had extensive blood clots in both of my lungs and my lungs were shutting down. I was placed on oxygen and Lovenox to address the blood clots and difficulty breathing.
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After progression, I was started on Carboplat...
After progression, I was started on Carboplatin+Gemzar. My hair started growing back on this combo. They gave me nausea medicine before treatment and some to take as needed. I did get some nausea two days later, once ending up in the hospital due to fever, but the nausea medicine helped and I usually only get nausea if I…
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Drug or Chemo Therapy | Chemotherapy
I started Tecentriq+Abraxane in 10/2019. Side effects were minimal. The biggest was the Abraxane took out my hair and my eyebrows.
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I know that my friends and relatives just want to help, and they probably don't know what to say, bu
I appreciate their concern, I am happy to have them stop by and check on me, call, text, and all the other things that they do that actually are a help. But some of the things that people say, suggest, and in some cases are pushy to a point of demanding that I "try this" instead of that poison. Or a couple of them have…
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Have you ran into the nutrition problem/side effect of cancer and treatments yet?
In each of my diagnoses, I've lost at least 25 pounds, this time it's only been 25. But it' hard to keep the weight on right now. I'm on a feeding tube so it's hard to squeeze enough into the feeding tube to keep up. Our blog post today has some good information about this, I'll have to go put some of these to use today.…
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Drug or Chemo Therapy | Chemotherapy
Today was day one of chemo. At the cancer center over 4 1/2 hours. Had labs followed by EKG, then iron infusion before chemo could begin. Not sure what we were expecting, but the nurses were great and the entire experience was so much Bette than we thought it would be. He came home with an infusion pump that he has to wear…
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Body hair, other than on your head.
I'm not complaining about not having to shave a few spots, but I'm just curious about how long this will last before I have to start that back up again?
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Do you think that the people in general have lost all patience, lack of morals and what's right?
It's gotten to the point that I don't even want to go out and be around anyone. Face it, we are getting farther and farther in the hole and if we don't all start turning it around we are going to lose about half of a generation. I want to grab some of these young people by the collar and shake them around a little bit.
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Purging the Past
I feel sure I am NOT the only one that has strong memories related to scents and sights, et cetera. I could be wrong. Last night I purged my counters and closets of objects in my direct or regular sight line, mostly ridding myself of scents and sights that seemed to make me think of my diagnosis and surgery and immediate…
