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After progression, I was started on Carboplat...
After progression, I was started on Carboplatin+Gemzar. My hair started growing back on this combo. They gave me nausea medicine before treatment and some to take as needed. I did get some nausea two days later, once ending up in the hospital due to fever, but the nausea medicine helped and I usually only get nausea if I…
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Drug or Chemo Therapy | Chemotherapy
I started Tecentriq+Abraxane in 10/2019. Side effects were minimal. The biggest was the Abraxane took out my hair and my eyebrows.
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I know that my friends and relatives just want to help, and they probably don't know what to say, bu
I appreciate their concern, I am happy to have them stop by and check on me, call, text, and all the other things that they do that actually are a help. But some of the things that people say, suggest, and in some cases are pushy to a point of demanding that I "try this" instead of that poison. Or a couple of them have…
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Have you ran into the nutrition problem/side effect of cancer and treatments yet?
In each of my diagnoses, I've lost at least 25 pounds, this time it's only been 25. But it' hard to keep the weight on right now. I'm on a feeding tube so it's hard to squeeze enough into the feeding tube to keep up. Our blog post today has some good information about this, I'll have to go put some of these to use today.…
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Drug or Chemo Therapy | Chemotherapy
Today was day one of chemo. At the cancer center over 4 1/2 hours. Had labs followed by EKG, then iron infusion before chemo could begin. Not sure what we were expecting, but the nurses were great and the entire experience was so much Bette than we thought it would be. He came home with an infusion pump that he has to wear…
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Body hair, other than on your head.
I'm not complaining about not having to shave a few spots, but I'm just curious about how long this will last before I have to start that back up again?
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Do you think that the people in general have lost all patience, lack of morals and what's right?
It's gotten to the point that I don't even want to go out and be around anyone. Face it, we are getting farther and farther in the hole and if we don't all start turning it around we are going to lose about half of a generation. I want to grab some of these young people by the collar and shake them around a little bit.
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Purging the Past
I feel sure I am NOT the only one that has strong memories related to scents and sights, et cetera. I could be wrong. Last night I purged my counters and closets of objects in my direct or regular sight line, mostly ridding myself of scents and sights that seemed to make me think of my diagnosis and surgery and immediate…
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Scanxiety time. Tomorrow Sweetie and I will head to Vanderbilt for scans head to toe
Tuesday is full schedule from 7am until 5 Pm. Let's have nothing but positive thoughts tomorrow! Thank you
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We have a temporary glitch on the site that makes it appear that your questions are not posting to t
They are there, but the glitch makes it not be visible to you. We should have this corrected Monday or Tuesday at the latest. In the meantime, to not miss anything, just go to your home page and scroll through your feed. Sorry for the inconvenience and we appreciate your patience. So, what do you all have going on over the…
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Online mammogram?
I just received a reminder for my upcoming mammogram appointment, but it says *online.* Online? A mammogram? (because that's NOT happening). Has anyone heard of this? I am to have a followup exam, immediately following the mammogram by my PA and it does not say online. My last doctor exam was done on the phone, which is…
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Needing advice and support
Needing advice and support
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Bone marrow biopsy
How painful are they? I'm trying to figure out if I can work the afternoon I get one (nothing physically strenuous)
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Side Effects | Allergic reaction
Painful mouth sores, very weak.
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One of my issues is still with me with no improvement, the fluid on or behind my left ear.
The ENT clinic where I get the clinical trial drug injection looked at it again this week and suggested that if it hasn't cleared by the next visit in 2 weeks he will poke a hole in my eardrum for it to drain. I'm sure that sounds worse than it really is. But has anyone had this done? Is this the same thing that kids…
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How is everyone doing with the pandemic?
I live in Georgia, and our state now has the highest rate of infection of any state (according to the Washington Post and reported today in the Atlanta Journal). So I'm erring on the side of caution and continue to order groceries for pick-up only. How is everyone managing?
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Procedure or Surgery | Colon surgery (colectomy or hemicolectomy)
ER Dr. Screwed up and ordered another CT with contrast that caused a perforated bowel, so not only did he end up with a colostomy on the left side and removal of a section of colon on the right side.
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Oh No | Cancer has spread/Metastasized
I was diagnosed in 2014 of Metastatic Breast cancer. Took Arimidex for 6 years. It quit working and my cancer is back. Starting chemo again.Fulvestrant shots. Oral chemo, Ibrance. Zometa.
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Oh No | Other health issues at home
My wife had a stroke the week before I was diagnosed
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Have you been faced with deciding to go to the ER or to go to a local Urgent Care?
The Urgent Care Facilities have made a big splash in the health care scene in the last 10 years or less. Each has situations that are perfect for them, our blog post today will help you with that. Take a look here>> https://bit.ly/3h9lG9d
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Drug or Chemo Therapy | Chemotherapy
Have severe neuropathy side effect
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Ibrance
Has any one been on Ibrance ?
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None yet 1st treatment...
None yet 1st treatment
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Radiation | External radiation
Had my 1st radiation treatment August 18, 2020
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Have you had the opportunity to sit down and talk about your cancer diagnosis with your oncologist?
Did you use that opportunity to ask pertinent questions about your specific case? Our blog post today has some information on things you might want to ask about. Take a look here>> https://bit.ly/3krCL0p
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Any idea what can help blurry vision while going thru chemo? Are there eye drops?
Any idea what can help blurry vision while going thru chemo? Are there eye drops?
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Procedure or Surgery | Liver transplant
I realize a lot has been left out of our journey. After my last post our daughter had 3+ mostly healthy years. She did try Nexavar/Sorafenib two more times at lower dosages and could not tolerate it, lost all her hair (tolerable), but the rashes and skin issues were not tolerable. Eventually her bile ducts no longer worked…
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Y90
Has anyone had the Y90 procedure? If so, what was the end results?
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Radiation experience
I’ve just been told that my lung cancer has metastasized to two spots in my brain and I will need radiation. So I feel a little blindsided right now. I’m looking to learn what others might have experienced. Thanks for any input.
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Needing advice and support
Needing advice and support
