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Drug or Chemo Therapy | Chemotherapy
Carboplatin I could not finish 2xs because I had a reaction it was the last 2 times.
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Greg - We're all pulling for you!!
It makes me nervous when we don't hear from our fearless leader for a day or two, especially when we know you are in the hospital and having trouble eating and swallowing. I just want you to know that everyone at WhatNext is pulling for you, praying for you, sending positive thoughts, and hoping we'll see you here again…
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Oh No | Just Diagnosed
Discovered inadvertently July 8 during retinal exam for floater in other eye (which turned out to be harmless). Diagnoses confirmed July 15 by ocular oncologist--in the ciliary body (dang). Radiological Oncology telephone consult July 24. In process of ordering materials for and constructing plaque for brachytherapy…
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Oh No | Just Diagnosed
Discovered inadvertently during retinal exam for problem with other eye. Diagnoses confirmed by ocular oncologist--in the ciliary body (dang). In process of ordering materials for and constructing plaque for brachytherapy (internal radiation), tentatively Aug. 14 (implantation)-18 (removal).
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What gives you joy right now?
Between cancer and the pandemic, the future can look pretty bleak. What gives you joy during this rough season of unknowns? Mine is knitting and having Face Time with the grandkids. What's yours?
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Do you have a hematologist?
A friend who went through cancer treatments before me asked what my hematologist has said. I don't have one and haven't heard anyone of my doctors suggest it. Is this a common thing?
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Immune system & COVID-19
Apologies. I don’t know how to delete my previous post. My question is how long is your immune system considered compromised after BC treatment - lumpectomy, chemo and radiation in my case. I am a good 6 years post-diagnosis and treatment. So am I at higher risk for this Coronavirus or is my immune system back to normal?
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Reconstruction
Inadequate fat for transfer
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Do you have a design on your facemask?
Post a picture of yourself wearing your mask on the pinboard., no matter what kind it is.
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Oh No | Just Diagnosed
I was diagnosed a couple of weeks ago, but it is small (less than 2 cm) and early. It was not a huge shock because two of my mother’s sisters died of breast cancer. I have decided on bilateral mastectomy (not nipple-sparing). If pathology on lymph nodes is positive, I will also have radiation therapy. I am thankful that I…
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I was just browsing through my billing at Vanderbilt and found my bill for my surgery on Jan 28.
My bill was 174,000.00 and my wonderful insurance appears to have paid 22K leaving us 152,000.00 to pay. No problem! Excuse me while I run out to the garden and dig up our coffee can. That's where we keep the "big" money.
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Stage IV now
This has been hard to think, much less say. I found out Friday my cancer has spread, to liver, bones, lymph nodes and possibly pancreas (rare, but possible). I’m waiting for a pancreas biopsy to determine if pancreas is a new primary cancer or another bc secondary. Apparently treatment can’t be determined until they know…
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PAIN TREATMENT
you know if doctors had to experience the side effects that we feel. had all of our bad side effects they would be better in treating us.
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Good news for metastatic breast cancer patients
FDA's Trodelvy Approval a 'Big Win' for Patients with Metastatic Triple-Negative Breast Cancer The Food and Drug Administration’s recent approval of the first antibody-drug conjugate to treat patients with pretreated metastatic triple-negative breast cancer is a major milestone, according to one expert.…
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Side Effects | Hot flashes
Early on in treatment, several years out it is minimal.
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Side Effects | Incontinence (cannot control urine)
With 3rd stem cell transplant (allo), due to certain chemotherapies and other medications. Took a several months to subside.
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Side Effects | Memory changes
Actually changes, there seems to be no rhyme or reason as to when it presents and goes away.
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Side Effects | Mood changes
Comes with the territory.
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Side Effects | Mouth sores
Did not have them until I recently got sick, January 2020. Thought to be a bi-product of a GVHD flare up. Diagnosed with Flu-B, not sure now if it wasn't COVID-19.
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Side Effects | Nausea/Vomiting
Comes and goes with all treatments and with GVHD.
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Side Effects | Weight loss
Nature of the beast, currently monitoring my intake and have had to change what I intake. I am now a vegetarian, as my body refuses red meat. Working my way to vegan, as I feel better eating this way.
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Side Effects | High blood pressure (hypertension)
Being medicated presently, but it fluxuates. My script fluxuates according.
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Side Effects | Fatigue (tiredness)
Neverending, you learn to live with it. However, there are times of extreme fatigue and other times when it is so minimal you think you are finally back to normal.
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Side Effects | Depression/Anxiety
Both come and go, I think it is part of the cancer itself. I have found Xanax (only when needed), deep breathing, Reiki and meditation work wonders.
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Side Effects | Chemo brain
Seeking treatment for this presently, I put it off for far it long. It is real.
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Side Effects | Anemia (low red blood cell counts)
Had to have one or two iron infusions and now take iron supplements.
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Side Effects | Diarrhea
Changes depending on treatment types and the GVHD flare ups.
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Side Effects | Constipation
Changes depending on treatment types and the GVHD flare ups.
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Radiation | External radiation
The actual radiation procedure was rather painless, just tedious. The initial and long term side effects left much to me desired. A year or so out, I have little to no negative effects from the full body radiation.
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Neuropathy in tongue
Has anyone experienced neuropathy in their tongue. I don’t remember this from my first round of chemo, but it seems like I have some now as well as my hands and feet.
