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August is HPV Awareness Month - Several types of cancer that are associated with the HPV virus can b
This puts this groups of cancer along side other diseases that have previously been prevented and in some cases wiped out. Our blog post today has more information about who needs to be vaccinated and the protection offered against which cancer types. Take a look here>> https://bit.ly/316cpbd
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Stage IV cancer survivor Herman Cain has been hospitalized for Covid 19. Your thoughts
Herman Cain was hospitalized about 10 Days ago. He is reported to be improving. He has stage IV colon cancer with mets to the liver. I first noticed Mr. Cain after I was diagnosed with Stage IV esophageal cancer. I had been given 4-9 months to live. I saw him on one of those morning programs like Good Morning America. At…
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Procedure or Surgery | Lumpectomy
I had a wonderful surgeon that did 7 surgeries on me that starting in Jan for thyroidectomy. Diagnosed 5 months later with triple-positive breast cancer.
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Oh No | Cancer is back/Recurred
had an MRI a month ago of my back which showed a compression fracture and disc problems. My PCP referred me to a pain specialist who wants me to have another MRI this time with contrast dye. This is because they see a soft tissue mass which could be associated with my cancer. I do not want to go back to the pain…
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Radiation | External radiation
i had 30 sessions of radiation and 4 that were internal
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Procedure or Surgery | Surgery
radical hysterectomy and removal of cervix
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Procedure or Surgery | Thyroidectomy
Thyroid was removed and it is hard to keep the meds to where I am not going from hypo to hyper.
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Drug or Chemo Therapy | Taking for over 9 yrs now Letrozole
Lucky I have no side effects
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Radiation | External radiation
Had a great group that when my skin was getting burned they changed and did the whole breast instead and then went back so i did not have bad burn
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Drug or Chemo Therapy | Chemotherapy
Carboplatin I could not finish 2xs because I had a reaction it was the last 2 times.
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Greg - We're all pulling for you!!
It makes me nervous when we don't hear from our fearless leader for a day or two, especially when we know you are in the hospital and having trouble eating and swallowing. I just want you to know that everyone at WhatNext is pulling for you, praying for you, sending positive thoughts, and hoping we'll see you here again…
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Oh No | Just Diagnosed
Discovered inadvertently July 8 during retinal exam for floater in other eye (which turned out to be harmless). Diagnoses confirmed July 15 by ocular oncologist--in the ciliary body (dang). Radiological Oncology telephone consult July 24. In process of ordering materials for and constructing plaque for brachytherapy…
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Oh No | Just Diagnosed
Discovered inadvertently during retinal exam for problem with other eye. Diagnoses confirmed by ocular oncologist--in the ciliary body (dang). In process of ordering materials for and constructing plaque for brachytherapy (internal radiation), tentatively Aug. 14 (implantation)-18 (removal).
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What gives you joy right now?
Between cancer and the pandemic, the future can look pretty bleak. What gives you joy during this rough season of unknowns? Mine is knitting and having Face Time with the grandkids. What's yours?
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Do you have a hematologist?
A friend who went through cancer treatments before me asked what my hematologist has said. I don't have one and haven't heard anyone of my doctors suggest it. Is this a common thing?
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Immune system & COVID-19
Apologies. I don’t know how to delete my previous post. My question is how long is your immune system considered compromised after BC treatment - lumpectomy, chemo and radiation in my case. I am a good 6 years post-diagnosis and treatment. So am I at higher risk for this Coronavirus or is my immune system back to normal?
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Reconstruction
Inadequate fat for transfer
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Do you have a design on your facemask?
Post a picture of yourself wearing your mask on the pinboard., no matter what kind it is.
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Oh No | Just Diagnosed
I was diagnosed a couple of weeks ago, but it is small (less than 2 cm) and early. It was not a huge shock because two of my mother’s sisters died of breast cancer. I have decided on bilateral mastectomy (not nipple-sparing). If pathology on lymph nodes is positive, I will also have radiation therapy. I am thankful that I…
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I was just browsing through my billing at Vanderbilt and found my bill for my surgery on Jan 28.
My bill was 174,000.00 and my wonderful insurance appears to have paid 22K leaving us 152,000.00 to pay. No problem! Excuse me while I run out to the garden and dig up our coffee can. That's where we keep the "big" money.
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Stage IV now
This has been hard to think, much less say. I found out Friday my cancer has spread, to liver, bones, lymph nodes and possibly pancreas (rare, but possible). I’m waiting for a pancreas biopsy to determine if pancreas is a new primary cancer or another bc secondary. Apparently treatment can’t be determined until they know…
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PAIN TREATMENT
you know if doctors had to experience the side effects that we feel. had all of our bad side effects they would be better in treating us.
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Good news for metastatic breast cancer patients
FDA's Trodelvy Approval a 'Big Win' for Patients with Metastatic Triple-Negative Breast Cancer The Food and Drug Administration’s recent approval of the first antibody-drug conjugate to treat patients with pretreated metastatic triple-negative breast cancer is a major milestone, according to one expert.…
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Side Effects | Hot flashes
Early on in treatment, several years out it is minimal.
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Side Effects | Incontinence (cannot control urine)
With 3rd stem cell transplant (allo), due to certain chemotherapies and other medications. Took a several months to subside.
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Side Effects | Memory changes
Actually changes, there seems to be no rhyme or reason as to when it presents and goes away.
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Side Effects | Mood changes
Comes with the territory.
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Side Effects | Mouth sores
Did not have them until I recently got sick, January 2020. Thought to be a bi-product of a GVHD flare up. Diagnosed with Flu-B, not sure now if it wasn't COVID-19.
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Side Effects | Nausea/Vomiting
Comes and goes with all treatments and with GVHD.
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Side Effects | Weight loss
Nature of the beast, currently monitoring my intake and have had to change what I intake. I am now a vegetarian, as my body refuses red meat. Working my way to vegan, as I feel better eating this way.
