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Side Effects | Incontinence (cannot control urine)
With 3rd stem cell transplant (allo), due to certain chemotherapies and other medications. Took a several months to subside.
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Side Effects | Memory changes
Actually changes, there seems to be no rhyme or reason as to when it presents and goes away.
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Side Effects | Mood changes
Comes with the territory.
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Side Effects | Mouth sores
Did not have them until I recently got sick, January 2020. Thought to be a bi-product of a GVHD flare up. Diagnosed with Flu-B, not sure now if it wasn't COVID-19.
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Side Effects | Nausea/Vomiting
Comes and goes with all treatments and with GVHD.
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Side Effects | Weight loss
Nature of the beast, currently monitoring my intake and have had to change what I intake. I am now a vegetarian, as my body refuses red meat. Working my way to vegan, as I feel better eating this way.
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Side Effects | High blood pressure (hypertension)
Being medicated presently, but it fluxuates. My script fluxuates according.
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Side Effects | Fatigue (tiredness)
Neverending, you learn to live with it. However, there are times of extreme fatigue and other times when it is so minimal you think you are finally back to normal.
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Side Effects | Depression/Anxiety
Both come and go, I think it is part of the cancer itself. I have found Xanax (only when needed), deep breathing, Reiki and meditation work wonders.
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Side Effects | Chemo brain
Seeking treatment for this presently, I put it off for far it long. It is real.
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Side Effects | Anemia (low red blood cell counts)
Had to have one or two iron infusions and now take iron supplements.
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Side Effects | Diarrhea
Changes depending on treatment types and the GVHD flare ups.
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Side Effects | Constipation
Changes depending on treatment types and the GVHD flare ups.
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Radiation | External radiation
The actual radiation procedure was rather painless, just tedious. The initial and long term side effects left much to me desired. A year or so out, I have little to no negative effects from the full body radiation.
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Neuropathy in tongue
Has anyone experienced neuropathy in their tongue. I don’t remember this from my first round of chemo, but it seems like I have some now as well as my hands and feet.
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Face Masks - Since it appears that they will be a part of our lives, have you found a good source?
There are all sorts of places popping up online that are selling different looking facemasks, I've also seen that a good number of them are scams. Several friends have ordered some with certain graphics on them that are of interest to my friends to never get them. These places advertise on Facebook a lot. You can sometimes…
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Side Effects | Fatigue (tiredness)
Was receiving chemo and radiation at the same time,now just receiving chemo. When I was receiving both I was exhausted ! Now that I'm only receiving chemo, I'm so tired. I've been on chemo (Ibrance) since 10/2019.
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Our guest blog post today is from our own @Omalayce, she shares her experiences with 4 types of canc
including her most recent with breast cancer. Take a look at her post here>> https://www.whatnext.com/blog/posts/tips-learned-during-a-3-year-journey-with-breast-cancer
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Loss | Lost loved one
My father passed of BRCA2 related prostate cancer.
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Decision Point | Stop oral chemo or continue
I chose to continue with the oral chemotherapy, Xeloda.
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Characteristics of Cancer Patients/Survivors
Do you know that we all have characteristics and that when you survey thousands of cancer patients they come to the top? Our blog post today highlights 13 Characteristics Worth Developing When Dealing With Cancer. Take a look and see how many of these characteristics you have, and list some that you might have that aren't…
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Since the corona virus is ramping up again, have you missed any doctor's appointments?
I am considering canceling anything that is not mandatory, treatment, or follow up, etc. I'm not going just for "check-ups" anymore.
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I'm losing weight and started drinking these nutrition shakes, they're not to tasty, are they?
Which variety/brand/etc have you found to be actually good tasting? It's a shame that something that we need can't be actually good to drink. I think I'll try blending one with some ice cream and see if that helps.
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Counseling for teenagers whose father has lung cancer
The boys are 11 and 13. Their dad was diagnosed about 2 months ago. The prognosis is not good. How do we find counseling and support for the boys? Already tried SO MANY sites - all the national cancer organizations I could find, local organizations, the hospital where he's being treated. Obviously, I'm missing something!…
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Need to Chill
A few months ago I had an echogram which showed some heart issues. Been through several tests and my aortic valve needs to be replaced. I've been told it's possible that radiation caused it. The surgeon should be calling tomorrow to tell me whether I need to have open heart surgery or a less invasive procedure called TAVR…
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Being Positive
My last question/post had to do with testing my positivity. As I expressed in that post, it just seemed like the day was testing me a lot. I am over it. I just needed to vent a bit. Sometimes things get the best of us. I am happy that some of you remain positive all the time, or constantly seek the positive. We all do what…
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Do any of you get dizzy when they draw several viles of blood?
This is the 3rd time I've nearly passed out.
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anyone have endocrine therapy (Letrozole/Femara) for maintenance for ER positive OC
anyone have endocrine therapy (Letrozole/Femara) for maintenance for ER positive OC
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anyone have endocrine therapy (Letrozole/Femara) for maintenance for ER positive OC
anyone have endocrine therapy (Letrozole/Femara) for maintenance for ER positive OC
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Testing my Positivity
Over the past couple of days, lots of posts about maintaining a positive frame of mind. I have been trying to do so, but today is testing my patience. When we bought our house in 2004, it was a couple of years old. All of the appliances (builder grade stuff) are reaching the end of their life. In the past week we have had…
