Recent Discussions

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Discussion List

• Procedure or Surgery | Thyroidectomy

  Thyroid was removed and it is hard to keep the meds to where I am not going from hypo to hyper.

  1 views

  0 point

  Started by Cindylounfl

  Jul 30, 2020

  New to WHATNEXT?
• Drug or Chemo Therapy | Taking for over 9 yrs now Letrozole

  Lucky I have no side effects

  1 views

  0 point

  Started by Cindylounfl

  Jul 30, 2020

  New to WHATNEXT?
• Radiation | External radiation

  Had a great group that when my skin was getting burned they changed and did the whole breast instead and then went back so i did not have bad burn

  1 views

  0 point

  Started by Cindylounfl

  Jul 30, 2020

  New to WHATNEXT?
• Drug or Chemo Therapy | Chemotherapy

  Carboplatin I could not finish 2xs because I had a reaction it was the last 2 times.

  1 views

  0 point

  Started by Cindylounfl

  Jul 30, 2020

  New to WHATNEXT?
• Greg - We're all pulling for you!!

  It makes me nervous when we don't hear from our fearless leader for a day or two, especially when we know you are in the hospital and having trouble eating and swallowing. I just want you to know that…

  60 views

  35 comments

  0 point

  Started by LiveWithCancer

  Most recent by 2943

  Jul 29, 2020

  Weekly Discussions
• Oh No | Just Diagnosed

  Discovered inadvertently July 8 during retinal exam for floater in other eye (which turned out to be harmless). Diagnoses confirmed July 15 by ocular oncologist--in the ciliary body (dang). Radiologic…

  1 views

  0 point

  Started by ChicagoSandy

  Jul 28, 2020

  New to WHATNEXT?
• Oh No | Just Diagnosed

  Discovered inadvertently during retinal exam for problem with other eye. Diagnoses confirmed by ocular oncologist--in the ciliary body (dang). In process of ordering materials for and constructing pla…

  1 views

  0 point

  Started by ChicagoSandy

  Jul 28, 2020

  New to WHATNEXT?
• What gives you joy right now?

  Between cancer and the pandemic, the future can look pretty bleak. What gives you joy during this rough season of unknowns? Mine is knitting and having Face Time with the grandkids. What's yours?

  10 views

  13 comments

  0 point

  Started by cllinda

  Most recent by petieagnor

  Jul 28, 2020

  Weekly Discussions
• Do you have a hematologist?

  A friend who went through cancer treatments before me asked what my hematologist has said. I don't have one and haven't heard anyone of my doctors suggest it. Is this a common thing?

  14 comments

  0 point

  Started by JustGrateful

  Most recent by petieagnor

  Jul 28, 2020

  Weekly Discussions
• Immune system & COVID-19

  Apologies. I don’t know how to delete my previous post. My question is how long is your immune system considered compromised after BC treatment - lumpectomy, chemo and radiation in my case. I am a goo…

  5 comments

  0 point

  Started by jad

  Most recent by alivenwell

  Jul 28, 2020

  Weekly Discussions
• Reconstruction

  Inadequate fat for transfer

  1 views

  5 comments

  0 point

  Started by MaryHath

  Most recent by Ashera

  Jul 27, 2020

  Breast Cancer
• Do you have a design on your facemask?

  Post a picture of yourself wearing your mask on the pinboard., no matter what kind it is.

  1 comments

  0 point

  Started by GregP_WN

  Most recent by alivenwell

  Jul 27, 2020

  Weekly Discussions
• Oh No | Just Diagnosed

  I was diagnosed a couple of weeks ago, but it is small (less than 2 cm) and early. It was not a huge shock because two of my mother’s sisters died of breast cancer. I have decided on bilateral mastect…

  11 views

  5 comments

  0 point

  Started by MaryHath

  Most recent by hikerchick

  Jul 27, 2020

  New to WHATNEXT?
• I was just browsing through my billing at Vanderbilt and found my bill for my surgery on Jan 28.

  My bill was 174,000.00 and my wonderful insurance appears to have paid 22K leaving us 152,000.00 to pay. No problem! Excuse me while I run out to the garden and dig up our coffee can. That's where we …

  20 comments

  0 point

  Started by GregP_WN

  Most recent by Russ

  Jul 27, 2020

  Weekly Discussions
• Stage IV now

  This has been hard to think, much less say. I found out Friday my cancer has spread, to liver, bones, lymph nodes and possibly pancreas (rare, but possible). I’m waiting for a pancreas biopsy to deter…

  3 views

  22 comments

  0 point

  Started by lujos

  Most recent by petieagnor

  Jul 27, 2020

  Liver Cancer
• PAIN TREATMENT

  you know if doctors had to experience the side effects that we feel. had all of our bad side effects they would be better in treating us.

  7 comments

  0 point

  Started by CASSIEME1

  Most recent by Bengal

  Jul 27, 2020

  Weekly Discussions
• Good news for metastatic breast cancer patients

  FDA's Trodelvy Approval a 'Big Win' for Patients with Metastatic Triple-Negative Breast Cancer The Food and Drug Administration’s recent approval of the first antibody-drug conjugate to treat patients…

  3 views

  4 comments

  0 point

  Started by JustGrateful

  Most recent by petieagnor

  Jul 25, 2020

  Breast Cancer
• Side Effects | Hot flashes

  Early on in treatment, several years out it is minimal.

  1 views

  0 point

  Started by tmmosley

  Jul 25, 2020

  New to WHATNEXT?
• Side Effects | Incontinence (cannot control urine)

  With 3rd stem cell transplant (allo), due to certain chemotherapies and other medications. Took a several months to subside.

  1 views

  0 point

  Started by tmmosley

  Jul 25, 2020

  New to WHATNEXT?
• Side Effects | Memory changes

  Actually changes, there seems to be no rhyme or reason as to when it presents and goes away.

  2 views

  0 point

  Started by tmmosley

  Jul 25, 2020

  New to WHATNEXT?
• Side Effects | Mood changes

  Comes with the territory.

  1 views

  0 point

  Started by tmmosley

  Jul 25, 2020

  New to WHATNEXT?
• Side Effects | Mouth sores

  Did not have them until I recently got sick, January 2020. Thought to be a bi-product of a GVHD flare up. Diagnosed with Flu-B, not sure now if it wasn't COVID-19.

  0 point

  Started by tmmosley

  Jul 25, 2020

  New to WHATNEXT?
• Side Effects | Nausea/Vomiting

  Comes and goes with all treatments and with GVHD.

  1 views

  0 point

  Started by tmmosley

  Jul 25, 2020

  New to WHATNEXT?
• Side Effects | Weight loss

  Nature of the beast, currently monitoring my intake and have had to change what I intake. I am now a vegetarian, as my body refuses red meat. Working my way to vegan, as I feel better eating this way.

  1 views

  0 point

  Started by tmmosley

  Jul 25, 2020

  New to WHATNEXT?
• Side Effects | High blood pressure (hypertension)

  Being medicated presently, but it fluxuates. My script fluxuates according.

  1 views

  0 point

  Started by tmmosley

  Jul 25, 2020

  New to WHATNEXT?
• Side Effects | Fatigue (tiredness)

  Neverending, you learn to live with it. However, there are times of extreme fatigue and other times when it is so minimal you think you are finally back to normal.

  1 views

  0 point

  Started by tmmosley

  Jul 25, 2020

  New to WHATNEXT?
• Side Effects | Depression/Anxiety

  Both come and go, I think it is part of the cancer itself. I have found Xanax (only when needed), deep breathing, Reiki and meditation work wonders.

  1 views

  0 point

  Started by tmmosley

  Jul 25, 2020

  New to WHATNEXT?
• Side Effects | Chemo brain

  Seeking treatment for this presently, I put it off for far it long. It is real.

  1 views

  0 point

  Started by tmmosley

  Jul 25, 2020

  New to WHATNEXT?
• Side Effects | Anemia (low red blood cell counts)

  Had to have one or two iron infusions and now take iron supplements.

  1 views

  0 point

  Started by tmmosley

  Jul 25, 2020

  New to WHATNEXT?
• Side Effects | Diarrhea

  Changes depending on treatment types and the GVHD flare ups.

  1 views

  0 point

  Started by tmmosley

  Jul 25, 2020

  New to WHATNEXT?

 

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