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financial assistance for meds and medicare
financial assistance for meds and medicare
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Change of name
How do you change your name?
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Ways of dealing with chemo induced neuropathy
Good morning all, I recently started chemo and one of the hardest side effects I’ve Ben dealing with is severe neuropathy in my feet. I’m going to ask my oncologist about it when I see him today. But I am wondering if you have dealt with this issue what did you find helps. I’ve lost a lot of good nights sleep because of…
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Lynparza
I have had 4 reoccurrence .along with four successful chemo treatments.
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Question on CT Scans for long term Stave IV survivors
Hi everyone, to any the long term survivors on this site, what is the follow up plan for your CT scan schedule post NED? I thought I was having my last one in November but this new Oncologist believes in doing a full 10 years of follow up of scans from the date of my last occurrence. He says this is reasonable given the…
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Drug or Chemo Therapy | Rituxan (1-IV infusion) & 3 Sub-Q Hycela & Imbruvica 420 mg day capsule
Infusion & sub-q went well. Minor issue with each, but physically handled with no extreme measures. Imbruvica--minor side effects that are manageable.
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Procedure or Surgery | bone marrow biopsy
For formal diagnosis, had bone marrow biopsy. Dr. thankfully set me to radiation for outpatient surgery. Pretty much complete 'active' WM in bone marrow. Just enough for all required tests.
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Drug or Chemo Therapy | Immunotherapy therapy - Rituxan and daily Imbruvica capsule 420 mg
For me: it's been pretty uneventful. Drugs are working and am currently in remission (don't know how far, but apparently pretty good levels per Dr.).
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Decision Point | treatment
Dr. started off with Benda/Rit 4x over 4 months. 2d Opinion and he discussed and decided in end to go Rituxan & Imbruvica.
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Oh No | Just Diagnosed
Had unknown pneumonia. Found out cold agglutinins (secondary) w/WM within month of 6 heated transfusions for low HGB (4.1 at start). Hello 65 yrs! Keep the gift!
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Coping with Lack of Familial Support
I was wondering if anyone is in the same situation, how have you been able to make it through?
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Greg Pierce
Just thought I would let everyone know, our fearless leader Greg Pierce passed away early this morning surrounded by Family. You don’t need me to tell how remarkable he truly was. He and I became friends back in 2012. I don’t look up to many people but I sure looked up to Greg. Love you buddy!!! Rest Easy...
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Are there any long term survivors here? For 5 10 or 15 years?
Just curious about if any long term survivors were still hanging around here?
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Hackers on whatnext
Anyone else seen this? Last 3 replies to post. https://www.whatnext.com/questions/port-removal--13?utm_campaign=Notify&utm_content=FollowedQuestion&utm_source=sendgrid.com&utm_medium=email&utm_campaign=website
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Thankful Thursday for Thanksgiving
Hi, everyone. It seems like an appropriate time to do a Thankful Thursday. What are you thankful for on this Thanksgiving Day?
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has anyone used marinol for loss of appetite?
has anyone used marinol for loss of appetite?
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Metastatic Breast Cancer Symptoms - Fever and severe bloating
My sister, who was diagnosed denovo with Metastatic Breast Cancer in 2012 has run thru most all tiers of treatment, and has now had two rounds of chemo. She has mets to the bone which recently spread to her liver. She developed a fever a couple weeks ago, and severe abdominal bloating, and her onc has stopped chemo until…
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Thanksgiving anyone? Everyone?
I will begin by assuming all of us might say "surviving cancer* is at least in the top 10 of our thankfulness list. And even the pandemic cannot take that away. We are thankful!! But, the pandemic is taking away a LOT of our joy for this holiday, isn't it? My family is all out of state, I mean REALLY far away so we never…
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Paclitaxel
Ready to start paclitaxel. Looking for feedback on side affects
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Celebration | Remission
I am still in remisssion!
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Anyone have an FIN1AX mutation?
I'm trying to find someone knowledgeable with this mutation which was found in my nodules. Also looking to connect with anyone who has/had this mutation. Thanks!
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What to expect when getting taxol/herceptin infusions ?
Hello. I am getting my chemo port installed today and will be starting taxol/herceptin in a week or so. Would like to hear from others who have been through it. Especially side effects-which they had, when they started and how they relieved them (if they could). Thank you.
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Rituxan maintenance
I’m considering stopping the RM treatment. I have prolonged side effects and treatment time is as slow as they can go with added dose of Benadryl. Anyone experiencing same? I’ve had full chemo, am in remission and on maintenance for 2 years, have completed 3 treatments.
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Decision Point | Type of surgeon?
My wife has been diagnosed with hurthle cell carcinoma. It was discovered during the removal of left node of thyroid. It was performed by ENT. The ENT wants to remove the other half immediately. We dont have an endocrinologist yet. Need advice on whether we should have a specialist surgeon do the rest of the surgery or let…
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The Best of Times/The Worst of Times
This past year has been a strange one for all of us. As we end this year with two holidays known for togetherness, thankfulness and hope- I wanted to focus on the random things that have made this year work. I want to focus on the people and the actions that have drawn us back to sanity in the days when we all seem to be…
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The Only Thing Certain is Change
I have been in a job situation where I feel like I am swimming against the tide. It has been that way for about four years. My supervising attorney is 82 and just does not want to retire or admit he is ready to do so. I think the reality of time is setting in on him. He has been so accommodating during my cancer journey.…
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Oh No | Relationship issues
I just told my siblings I'm having surgery and may have cancer. I haven't heard from 2 siblings for over a year except for family business calls. Now one sibling's spouse texted and wants to chat about how I am. How do I deal with all the hurt feelings? This person has always considered me the black sheep of the family and…
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Things have been quiet lately
How is everyone? Since we lost Greg, there hasn't been much activity on the board. Everyone doing OK?
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Celebration | Anniversary
Three years and still above ground ... There's hope!
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how do you delete a post you made in a hurry and NOT delete your account and have to start over?
I went to WhatNext Home page and came up with no answer on how to delete. Maybe there is no deleting? I guess you have to be sure you won't regret sharing. They were overly long and I did 2 Updates. It was then that right after my updates I saw the picture of Greg P and learned he had passed away. I had recently started…
