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Thanksgiving anyone? Everyone?
I will begin by assuming all of us might say "surviving cancer* is at least in the top 10 of our thankfulness list. And even the pandemic cannot take that away. We are thankful!! But, the pandemic is taking away a LOT of our joy for this holiday, isn't it? My family is all out of state, I mean REALLY far away so we never…
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Paclitaxel
Ready to start paclitaxel. Looking for feedback on side affects
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Celebration | Remission
I am still in remisssion!
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Anyone have an FIN1AX mutation?
I'm trying to find someone knowledgeable with this mutation which was found in my nodules. Also looking to connect with anyone who has/had this mutation. Thanks!
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What to expect when getting taxol/herceptin infusions ?
Hello. I am getting my chemo port installed today and will be starting taxol/herceptin in a week or so. Would like to hear from others who have been through it. Especially side effects-which they had, when they started and how they relieved them (if they could). Thank you.
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Rituxan maintenance
I’m considering stopping the RM treatment. I have prolonged side effects and treatment time is as slow as they can go with added dose of Benadryl. Anyone experiencing same? I’ve had full chemo, am in remission and on maintenance for 2 years, have completed 3 treatments.
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Decision Point | Type of surgeon?
My wife has been diagnosed with hurthle cell carcinoma. It was discovered during the removal of left node of thyroid. It was performed by ENT. The ENT wants to remove the other half immediately. We dont have an endocrinologist yet. Need advice on whether we should have a specialist surgeon do the rest of the surgery or let…
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The Best of Times/The Worst of Times
This past year has been a strange one for all of us. As we end this year with two holidays known for togetherness, thankfulness and hope- I wanted to focus on the random things that have made this year work. I want to focus on the people and the actions that have drawn us back to sanity in the days when we all seem to be…
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The Only Thing Certain is Change
I have been in a job situation where I feel like I am swimming against the tide. It has been that way for about four years. My supervising attorney is 82 and just does not want to retire or admit he is ready to do so. I think the reality of time is setting in on him. He has been so accommodating during my cancer journey.…
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Oh No | Relationship issues
I just told my siblings I'm having surgery and may have cancer. I haven't heard from 2 siblings for over a year except for family business calls. Now one sibling's spouse texted and wants to chat about how I am. How do I deal with all the hurt feelings? This person has always considered me the black sheep of the family and…
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Things have been quiet lately
How is everyone? Since we lost Greg, there hasn't been much activity on the board. Everyone doing OK?
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Celebration | Anniversary
Three years and still above ground ... There's hope!
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how do you delete a post you made in a hurry and NOT delete your account and have to start over?
I went to WhatNext Home page and came up with no answer on how to delete. Maybe there is no deleting? I guess you have to be sure you won't regret sharing. They were overly long and I did 2 Updates. It was then that right after my updates I saw the picture of Greg P and learned he had passed away. I had recently started…
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Rheumatoid Arthritis
Has anyone gotten RA? I know Tamoxifen may have caused my arthritis. Still on it for 2.5 years of 10. What did they suggest?
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Decision Point | treatment
Treat this 1st or breast cancer
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Decision Point | Other
Well, my mom just got diagnosed with stage 4 lung cancer. Radiation treatment is the treatment plan everyday for 2 weeks. S please send advice how to love her well? .
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Decision Point | I have had progression on my current TKI
After 4 years on the oral targeted therapy drug I am on I developed olioprogression and had to undergo radiation treatment. I am waiting for my next set of scans to determine if the radiation worked and I can remain on my current medication.
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Loss | Ability to perform certain task
Due to extreme shortness of breath especially on exertion it is very difficult to walk up stairs or any incline and causes limitations that were not there before I got cancer.
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Celebration | Cancer is shrinking
I am five years post diagnosis for stage 4 NSCLC and have had no progression at this point while on oral targeted therapy. Hooray!!!
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Side Effects | Diarrhea
I had severe diarrhea caused by the targeted therapy drugs, Xalkori and Alecensa. A probiotic recommended by my oncologist has worked very well for me.
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Other Care | organic diet
I decided to try natural alternative measures.
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Greg ?
Last I heard he was in hospital. How's his recovery?
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Celebration | Anniversary
3 years cancer free but I worry constantly about it coming back somewhere else and that we don't find it until it's too late. Iwas told that they'd be checking me every three months but it has only been every 6 months and that makes me nervous. I am getting an infusion of Zometa at each appointment to keep it from going…
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Triple Negative recurrance
Are there any signs to look for if the cancer is coming back somewhere else? And where does it usually happen?
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Side Effects | Nerve damage (peripheral neuropathy)
9 years out lost lots hair, not bald. No cancer though.
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Side Effects | Near death experience
Right hemicolonectomy. Followed by Folfox. Only side effect was neuropathy which persists. Reoccurrence in liver with surgery and resection of right lobe plus more. Surgeon did not leave enough liver to regenerate.. Reoccurrence of cancer in remaining liver. Lesions removed with SBRT at UF. No side effects. Have a liver…
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Loss | Job
Musician. Can't work during a pandemic
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Procedure or Surgery | Removal of bladder tor
I have a recurring internal bladder tumor that had.to be removed. It 2as outpatient and although the area still lights up.in pet scans it seems to be under control with chemotherapy.
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Other Care | Hospitalization
Hospitalized numerous times due to acites.
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Celebration | Remission
Remission but surgeon killed my liver.
