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SITE ANNOUNCEMENT: New Moderator Introduction
Hello WhatNext community. I wanted to take a moment to introduce myself. My name is Colby and I'm the managing editor at Patient Worthy, a patient-focused news website. In the weeks since Greg's passing, there has been much discussion behind the scenes about the future of WhatNext and how to best ensure that the website…
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Procedure or Surgery | Full lymph node dissection
the lymph node biopsy went well.
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Drug or Chemo Therapy | Immunotherapy
I have only had 1 treatment so far with minimal side effects. I will update post after each treatment which will be monthly.
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Wimped Out
I did something the other day I haven't done in a long time. I was in an exercise class- small group personal training. It was high intensity and I was invited in by a neighbor who goes to my gym. The trainer said it was fine too. So I decided to try it out. I wanted to go all in, full throttle. I just couldn't keep up.…
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Another round of good news
After 9 1/2 years on vemurafenib, I stopped taking it in August 2019. I just had routine follow up scans and blood work and all is still good.
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Vitamin D level
what is the optimum Vitamin D level for someone with Cancer? it is supposed to protect against COVID too. I have had mine measured and its 40 now, the highest its ever been. Opinions??
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Chemo drug Abraxane. Who has/ is taking this drug. Side affects
Chemo drug Abraxane. Who has/ is taking this drug. Side affects
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It's been 7 days since I found out I have cancer....No phone call yet from Oncologist Gynecologist..
It's been 7 days since I found out I have cancer....No phone call yet from Oncologist Gynecologist..
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Posted Wrong PIcture
I posted a picture last night about being thankful for the things that don't go well. I didn't mean to post that. I don't really know where it came from, but I deleted it as the status update and will try to delete from the pinboard as well if it showed up there.
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Procedure or Surgery | Breast Reconstruction (Flap)
At the time of my double mastectomy tissue expanders were inserted in the breast to prepare the breast for reconstruction. I then months later underwent a 12 hour diep flat breast reconstruction surgery. While I thought everything was fine with in 24 hrs one of the flaps had failed. I then found myself back in the…
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Cant go through the treatment again. Will see...
Cant go through the treatment again. Will see if there is different treatment from 7 years ago. But I don't know.
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Drug or Chemo Therapy | Rituxan - & on Imbruvica Daily 420 mg
Minor issues with both. Luckily, handled well & tolerable.
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Oh No | Thought it was pneumonia. NOPE.
Needed 6 blood transfusions as blood levels at 4.1 super low. Secondary cold agglutinins doing the PacMan thing w/my blood cells.
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financial assistance for meds and medicare
financial assistance for meds and medicare
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Change of name
How do you change your name?
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Ways of dealing with chemo induced neuropathy
Good morning all, I recently started chemo and one of the hardest side effects I’ve Ben dealing with is severe neuropathy in my feet. I’m going to ask my oncologist about it when I see him today. But I am wondering if you have dealt with this issue what did you find helps. I’ve lost a lot of good nights sleep because of…
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Lynparza
I have had 4 reoccurrence .along with four successful chemo treatments.
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Question on CT Scans for long term Stave IV survivors
Hi everyone, to any the long term survivors on this site, what is the follow up plan for your CT scan schedule post NED? I thought I was having my last one in November but this new Oncologist believes in doing a full 10 years of follow up of scans from the date of my last occurrence. He says this is reasonable given the…
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Drug or Chemo Therapy | Rituxan (1-IV infusion) & 3 Sub-Q Hycela & Imbruvica 420 mg day capsule
Infusion & sub-q went well. Minor issue with each, but physically handled with no extreme measures. Imbruvica--minor side effects that are manageable.
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Procedure or Surgery | bone marrow biopsy
For formal diagnosis, had bone marrow biopsy. Dr. thankfully set me to radiation for outpatient surgery. Pretty much complete 'active' WM in bone marrow. Just enough for all required tests.
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Drug or Chemo Therapy | Immunotherapy therapy - Rituxan and daily Imbruvica capsule 420 mg
For me: it's been pretty uneventful. Drugs are working and am currently in remission (don't know how far, but apparently pretty good levels per Dr.).
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Decision Point | treatment
Dr. started off with Benda/Rit 4x over 4 months. 2d Opinion and he discussed and decided in end to go Rituxan & Imbruvica.
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Oh No | Just Diagnosed
Had unknown pneumonia. Found out cold agglutinins (secondary) w/WM within month of 6 heated transfusions for low HGB (4.1 at start). Hello 65 yrs! Keep the gift!
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Coping with Lack of Familial Support
I was wondering if anyone is in the same situation, how have you been able to make it through?
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Greg Pierce
Just thought I would let everyone know, our fearless leader Greg Pierce passed away early this morning surrounded by Family. You don’t need me to tell how remarkable he truly was. He and I became friends back in 2012. I don’t look up to many people but I sure looked up to Greg. Love you buddy!!! Rest Easy...
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Are there any long term survivors here? For 5 10 or 15 years?
Just curious about if any long term survivors were still hanging around here?
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Hackers on whatnext
Anyone else seen this? Last 3 replies to post. https://www.whatnext.com/questions/port-removal--13?utm_campaign=Notify&utm_content=FollowedQuestion&utm_source=sendgrid.com&utm_medium=email&utm_campaign=website
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Thankful Thursday for Thanksgiving
Hi, everyone. It seems like an appropriate time to do a Thankful Thursday. What are you thankful for on this Thanksgiving Day?
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has anyone used marinol for loss of appetite?
has anyone used marinol for loss of appetite?
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Metastatic Breast Cancer Symptoms - Fever and severe bloating
My sister, who was diagnosed denovo with Metastatic Breast Cancer in 2012 has run thru most all tiers of treatment, and has now had two rounds of chemo. She has mets to the bone which recently spread to her liver. She developed a fever a couple weeks ago, and severe abdominal bloating, and her onc has stopped chemo until…
