Dropped On Our Heads

legaljen1969
legaljen1969 Member Posts: 763
edited October 2021 in General Cancer
So have we been left to languish again? Or is everyone just enjoying summer and the ability to roam the earth freely again?
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Comments

  • MarcieB
    MarcieB Member Posts: 528
    edited August 2021
    Maybe both things? I was so glad to see the Whats Next Digest appear on my email list in the morning, but it hasn't shown now for a couple days. In the survey I expressed a hope for things to be consistent. Sigh! I am beginning to lose hope on that.

    People are roaming freely again. I, for one, am happy to be able to go to street fairs again! I wonder if the artisans are making good money since it has been so long since people could enjoy the fairs. I know, my husband and I made several purchases, one being a wind chime, and I am happy for that one every day!
  • beachbum5817
    beachbum5817 Member Posts: 238
    edited July 2021
    I, also think that it may be a combination of the two. I never receive the Digest notice 2 days in a row, and it is usually 3 days in between receiving it. It sure doesn't seem like much is being done. When Greg was still with us, I would have this happen every once in awhile. I would let him know, and it was fixed right away. I certainly am not computer savvy, but if one person in the know can do, why not another person?
  • Rustysmom
    Rustysmom Member Posts: 37
    edited August 2021
    I think what we are missing is the questions that Greg would pose and stimulate people to participate and weigh in on an issue. He would reference some current article, cancer related or not, and generate dialog. Our forum hasn't always been just member driven questions. So, maybe that role needs to fall on us? BTW, I do hope we are all able to get out a bit and enjoy a little free roaming this summer, too! :-)
  • Carool
    Carool Member Posts: 787
    edited July 2021
    I got the Digest today.

  • meyati
    meyati Member Posts: 308
    edited July 2021
    This is what I've been complaining about-the notice-digest whatever-- I got one this month-July---I expect to get the next one in January, because I get one about every 6 months. I do get answers to the questions, but since I don't get questions, I don't get answers.

    Tonight I signed in as I'm interested in our book club, and I finished my book so I wanted to make a comment about it. I saw that some people made some remarks, but I didn't get any notice of those either. It's hits or miss- mostly MISS.
  • Bug
    Bug Member Posts: 394
    edited July 2021
    Hi, everyone. I probably won't be responding much for a while as my husband is scheduled for surgery on Friday. I look forward to being back soon. Hugs to all.
  • beachbum5817
    beachbum5817 Member Posts: 238
    edited July 2021
    Bug, I am sorry to hear this. I will be thinking of you and your husband on Friday. I hope all will go smoothly. When you have a chance, let us know how he is doing. Remember to take care of yourself too.
  • MarcieB
    MarcieB Member Posts: 528
    edited July 2021
    Since I cannot seem to get my question posted, I am wondering if it will be allowed to appear as a response? My question went like this: (and I have tried to post it twice, yesterday it showed up on my wall and today it is gone)

    I am not a fan of vulgarities. I don't use that word that rhymes with duck, although it has become so commonplace it doesn't really shock me to hear it anymore. And I know people who pepper it in their everyday speech the way some people used *darn* so that has kind of defused it's power. If this site does not want us to use XXX (H-E- double hockey sticks) or XXX, which is the same as crappy...can we use crappy? (rhymes with sappy). Even though those are sometimes the exact words we need to express how BAD things are...! I sometimes use XXX (that thing beavers build) as an advective if what I am describing is heinous. And I am wondering if it is okay to say "...balls to the wall"? But, we should be permitted to use *XXX* and *vagina* because those are correct, medical terms and better than any slang which all of us know. So we can use the correct version fo female *lady bits,* but any reference to male body parts (even when it is is the correct term) is off limits? I am just trying to get the rules straight.

  • legaljen1969
    legaljen1969 Member Posts: 763
    edited July 2021
    Bug, so sorry to hear about your husband's surgery. I hope it's relatively uneventful and he is on the road to recovery in no time. Our thoughts and prayers will be with you.
  • Molly72
    Molly72 Member Posts: 227
    edited October 2021
    Marcie-- I've used the symbols at the top of the keyboard - i.e. "@&" and so on to express my dismay about something, and actually have had the word "redacted" put in place of the symbols!
    How naughty of me.
    However it does show that perhaps someone is reading our messages, but then again, it could be some sort of a dirty word robot. The mysterious "COLBY" certainly is not around to answer our remarks.
    P.S. I have never gotten the Digest, perhaps I am too naughty.
  • meyati
    meyati Member Posts: 308
    edited July 2021
    ---- a person can't even talk about buying a new driver- thing that turns those things and drives them through wood-to attach something like a coat rack to the wall or attach a hinge to a door and the door jamb. These things have a flat head with either an X or a straight slot I buy them at hardware stores. I seem to have the ability to find every prohibited word in every site.

    Meanwhile, these sites buy or lease software algorithms that can find selected words . It's doubtful that anybody reads anything, unless they get the automatic alert about something, like a death threat to somebody important, or info about a bank robbery
  • JustForToday
    JustForToday Member Posts: 39
    edited July 2021
    LetLifeHappen is offering some great blogs. She posted some yesterday that I really appreciated. They are not appearing on the site blog. One has to go to her page to read the blogs.
  • JustForToday
    JustForToday Member Posts: 39
    edited July 2021
    I submitted a question and asked if the blog posts need to be approved. If so, would the moderator approve them. I submitted that question over an hour ago and the question is not appearing on the site. Seems the only way I can get any information posted is by posting answers to this question.
  • Rustysmom
    Rustysmom Member Posts: 37
    edited July 2021
    Oh, Bug, you and your husband have been in my thoughts a lot since you mentioned that he is going through some serious health issues. He’s lucky to have you by his side. I hope everything goes well tomorrow and that he has an easy recovery. Hugs!
  • MarcieB
    MarcieB Member Posts: 528
    edited July 2021
    Bug, I am sorry I kind of took this comment section down a rabbit hole with my questions about word usage. I, too, hope your husband sails through this time and recovers easily. It is stressful to be dealing with health problems, but it is equally difficult to be the caregiver. I am holding you up in my heart.
  • meyati
    meyati Member Posts: 308
    edited July 2021
    Just 4 we've never had to ask for permission- go to your home page and look at the teal and purple bar in the top middle. It has a share---in the middle ask a question and update on the right.

    click on ASK---you enter your info-and enter your diagnosis. That way-- if you have breast cancer- everyone with BC gets your question. We don't need permission for that. You can enter your data and diagnosis and ask a question about the USN pilots and their experiences with UFOs.

    The problem is when you want to ask a question outside of your diagnosis, so you can connect with people of that concern-- So ask your question-just enter your diagnosis
  • legaljen1969
    legaljen1969 Member Posts: 763
    edited July 2021
    RustysMom, maybe getting some questions about cancer related topics would get people posting. I think after Greg's passing when everything came to a screeching halt, some of us were trying to post ANYTHING that would get people talking. Unfortunately, that all hit around the same time that the world decided to come unglued after the election and it was all "us" against "them" for whatever side people identify with in their daily lives. Sometimes we are "us" and sometimes we are "them." Every question, no matter how mundane it seemed, became a wildfire of controversy and offense. So I think there were a lot of folks who decided to go elsewhere. It's pretty sad that we no longer have a place where we can all communicate like adults.
  • Carool
    Carool Member Posts: 787
    edited July 2021
    Bug, I’m sending him and you all my good wishes and thoughts.
  • Carool
    Carool Member Posts: 787
    edited July 2021
    MarcieB, the censoring of us, all adults, is ridiculous. After all, we or our loved ones, or both, have dealt (or are still dealing) with cancer. We’ve disrobed in front of virtual strangers; been poked and prodded and far worse; vomited (in public, sometimes), etc., etc. How can most “dirty” words bother us?

    BTW, I’m surprised they allowed “beaver”!

    Meyati, I’m going to try screwdriver.
  • Carool
    Carool Member Posts: 787
    edited July 2021
    Okay, they XXXed the dam-building animal you mentioned, Marcie. Phuc this.
  • meyati
    meyati Member Posts: 308
    edited July 2021
    Marcie-- it worked, now can I say--I bought a ratchet screwdriver to make it easier to screw in screws? We'll see how far this freedom goes.
  • meyati
    meyati Member Posts: 308
    edited July 2021
    LOL----look at above---
  • Rustysmom
    Rustysmom Member Posts: 37
    edited July 2021
    Legaljen, I think you're right about the circumstances of the timeframe that we lost Greg, while also feeling so many other losses, family members from a pandemic, trust in our fellow Americans who do not share our values, regardless of which side you identify with. Sometimes there was no place that felt safe, and it was less triggering and better for our mental health to withdraw from the conversation for a time.
  • petieagnor
    petieagnor Member Posts: 110
    edited October 2021
    I'm getting something in my in-box about every couple of days. I was extremely busy cleaning my house for g-son's visit on 7/4. He stayed a week. I'm still not caught up with mail, but getting there. The week after visit, I had CT scan & chemo. Everything is as it should be. I had a water bed tube spring a leak over the weekend & a Dr's appt on Monday. I'm facing a surgery for my severe pro-lapse.
    Now, you all understand why I was wondering if my post was in the right place. I had to get a new cell phone. It's still in my purse turned off, just like the flip phone. I have to put all my contacts from old phone in new phone manually. Some tech things are just beyond me.
  • Molly72
    Molly72 Member Posts: 227
    edited October 2021
    Dear petieagnor, Whata week you have had!
    About a year ago, I came up with the bright idea to try & get a "smart" phone, not smart. Went to Verizon to get one, again a big mistake. (I can hardly use a flip phone!) People at that store are all under 25 & think anyone over 50 is tech challenged & dumb. The punk kid gave me 10 min. of instruction, & sent me home, I could not even turn it on & have no one to help me. I went back 3 times in 3 days, & the kid was no help. Finally, the @ * ^ $ redacted phone started beeping & would repeat all the nastiness I called it. I took it back & got my flippy thang back. I have problem using it, so here I am, one of the few people in the world without a usable cell phone.
  • meyati
    meyati Member Posts: 308
    edited August 2021
    JustforToday-----OK. When a person asks a question that is long, the question does not show. It has the name- then it says---meyati asked a question---The WORD Question is turquoise -- You click on the TURQUOISE colored word QUESTION and the actual question pops up. It doesn't make any sense, and techs think that we are 13--so they fix it for teenagers. We're sick, old, in pain.

    I hope this answers your question.
  • legaljen1969
    legaljen1969 Member Posts: 763
    edited July 2021
    Molly, I am sorry to hear you had such a bad experience with your new cell phone. Perhaps because we have so many "vintage" people in our area- most of the cell phone companies hire people who are very patient and don't mind explaining things. My independent contractor co-worker went and got her new phone at Best Buy. It was still on a contract like with her regular character- but they were super helpful to her. She had to go back a couple of times but she is very tenacious in her quest to make things work. She is of a matured vintage as well. I usually just ask our runner or file clerk to fix my phone when they are sitting around waiting for a new assignment. LOL They are not of mature vintage.
  • meyati
    meyati Member Posts: 308
    edited August 2021
    Talk about new phones--My old smartphone died. A few days after I got it, someone hacked my Google account. they ran with it. no cell phone, no nothing, and it was getting time to pay my bills online. I keep a written record with all phone numbers for everything. phone worked for everything. I got back online with T-Mobile, the credit union, I had it settled in 24 hours. In 6 hours Google contacted me online, and I reset that. I think that T-Mobile was a major factor in that. One side of that is about once a week google sends me a security text that I verify. I'm 79, but I taught IT this century. I still don't like Google, I was taking some pics WED am, and they changed the software program while I was using it. It looked like an Apple commercial editing program. I kept thinking video was recording. Then the sad truth hit me. I had to learn all over again.
  • Molly72
    Molly72 Member Posts: 227
    edited August 2021
    Where does one learn about how to use a "Smart" phone? Verison is useless, & they told me there is no manual when you get a phone.
    I have no close friends or relatives to help, & please, don't even bother with internet help! (That is an oxymoron)
    I need hands on help!
  • legaljen1969
    legaljen1969 Member Posts: 763
    edited August 2021
    Molly, I don't know if you mean you can't use the internet for some reason- but I will say that a person can learn how to do almost anything on Youtube. I learned about a lot of features on my iPhone by watching YouTube videos. The best part is you can stop, back up, watch over and over.
    Give it a shot.