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What did you learn?
After you ‘finished treatments(surgery, radiation, chemo, immunotherapy)? Looking back, what did you learn?
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Procedure or Surgery | Surgery
Surgery went well. Removed my left kidney and recovery wasn’t bad at all.
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Celebration | Anniversary
Joined 5 year survivor club at Cancer Center.
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Found 2 digests in Spam folder
Also all the highlighted areas I used to click on to take me to areas of interest to me in the digest don't work. It just highlights them lighter.
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Celebration | Finished treatment
Oct.21,2021 ringing the bell for final treatment!!
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Side Effects | Hair loss (alopecia)
Mouth sores so couldn't eat only mashed potatoes,cottage cheese, soft foods, dehydrated real bad after each treatment of " Red Devil", received fluids for 3 days after treatments!!
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Combo Immunotherapy Side Effects and Long Term Results?
My husband just began an aggressive combo immunotherapy, using ipilimumab (Yervoy) and nivolumab (Opdivo) to treat Stage IV Metastasized Melanoma. If you could please share any common side effects and/or positive responses you may have had, it would be greatly appreciated. It's very unpredictable I am told, but it's always…
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Oh No | Took 2.5 months from time of diagnosis to get an endocrinologist appointment despite pancrea
There should be an endocrinologist on the cancer team.
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Acinar cell pancreatic cancer
Does anyone have acinar cell pancreatic cancer? That’s me a rare type of pancreatic cancer. Looking for similar diagnosis
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Drug or Chemo Therapy | Chemotherapy
About someone I know who has cancer, Chemo is still challenging despite meds given for usual side effects but does not cover other symptoms that could be managed with OTC meds.
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Elavated liver enzymes
Minimal side affects after the first 2 immunotherapy treatments and zero after the 3rd. I go for my 4th tomorrow. I have noticed that my liver enzyme levels (ALT & AST) have been gradually rising and are considered elevated. My Oncologist does blood work before each treatment and has not raised this to me. I saw my Family…
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Natural/Alternative Treatment
If I switch to Natural and Alternative treatments what are my chances of survival for at least 2 years?
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Drug or Chemo Therapy | Chemotherapy
Tafinlar/Mekinist difficult schedule with moderate side effects and so much monitoring for damage to other systems
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Side Effects | Need for Oral Surgery & extreme neuropathy-like hand pain. Then Blood Clots
I initially had a bilateral mastectomy because this was a recurrence on the right side. I started with Exemestane and Zometa but had to stop it due to a need for oral surgery and due to extreme neuropathy-like pain in hands. Switched to Tamoxifen which after only 1 month caused blood clots.
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Drug or Chemo Therapy | Immunotherapy
After his first round of combo immunotherapy (Opdivo & Yervoy), my husband developed Grade 3 drug induced pneumonitis. This resolved with steroid treatment, but meant he could no longer take the combo treatment. The one treatment alone, however, has stimulated his immune system enough to have shrunken the tumour in his…
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October book question
Hi! Anyone have any books to recommend as we head into early darkness and reading by the fire? LOL (I, for one, have only my inner fire!)? I’m reading a compilation of ghost stories by M.R. James, titled “Curious Warnings.” For those unfamiliar with his writing and him, he was an English Victorian scholar and a writer of…
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Thankful Thursday
Hi, everyone! Its been a long time. How about a Thankful Thursday post?
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Oh No | Had to stop the trial.
My wife had a 3mm tumor show up in her bladder-----probably coming in thru the bladder wall from the peritoneum. (she has peritoneal cancer technically but is same as ovarian). This new tumor meant we had to stop the trial, but we are staying on the 2 same drugs, just not On-Trial. Our doc has another trial in mind,…
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Bone meds?
I am curious about how many of you are currently taking medication to improve your bone density? And how is that working for you?
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Other Care | radiation and chemo surgery chemo now immunotherapy
on immunotherapy after 2 years of treatment
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Symptom Management | Physical therapy
Very helpful. Gave me techniques to manage my severe fatigue.
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Drug or Chemo Therapy | Chemotherapy
This was my second round of TC chemo, after a recurrence 13 years post initial diagnosis. I actually think it was easier this time, and attribute that to exercise and knowing what to expect
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Procedure or Surgery | Breast Reconstruction (Implant)
It took the full six weeks recovery and longer to feel truly comfortable.
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Procedure or Surgery | Surgery
Nipple sparing mastectomy, pre-mastectomy & reconstruction. This was essentially a mastectomy before the "real" mastectomy.
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Radiation | External radiation
It was easy and painless.
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Drug or Chemo Therapy | Chemotherapy
It was definitely a life-altering experience.
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Procedure or Surgery | Lumpectomy
I was still numb and outside myself and not really getting what was happening to me.
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Decision Point | To remove all or part of breast.
I was unsure of whats to come.
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Oh No | Just Diagnosed
I was Numb.
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Leiyomysarcoma
Hello everyone! Anyone here have stage 4b uterine leiyomysarcoma? I'm almost six years in, metastasized to my lungs and most recently my liver, no new treatment available. Just wondering how you are handling everything. In February my oncologist basically sent me home, with no hope, kinda like, "nice knowing you but…
