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I have not purchased the drug yet...still doi...
I have not purchased the drug yet...still doing research.
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Questions
Why is it that when I go to "questions" up top the newest ones are 4 months ago? Did the whole set up change after Greg passed?
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Oh No | Cancer has spread/Metastasized
Some symptoms were diarrhea, loss of appetite. Went for a scan & was told on 11-16-21 that cancer was terminal. With chemo I had 2 years.
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Procedure or Surgery | Double Mastectomy
Surgery scheduled for the beginning of December 2021. Double Mastectomy with Reconstruction
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I don't know yet...
I don't know yet
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I have not taken any drugs yet...Doing lots o...
I have not taken any drugs yet...Doing lots of research don't agree with estrogen blocker pills.
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Procedure or Surgery | PET
Checking to see where else the cancer may have traveled.
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Surveys
After 8 years I'm still getting survey emails. I don't qualify for most of them but it gives me an extra $40 to $100 every couple of months. If you're interested in taking them go to focusgroup.com and fill out some details about yourself so they know which survey's to send your way. I remember when I first joined whatnext…
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Oh No | Cancer is back/Recurred
After 13 years, tumor at site of initial diagnosis. However, stage 1 and grade 2 (first was grade 3), but this time Pr-negative (ER pos, HER2 neg)
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Vaginal bleeding?
Hi, I had breast cancer (stage 3) with all the treatments but have been cancer free for 12 years. Had a total hysterectomy 12 yrs ago. I have recently had pelvic pain and occasional spotting of vaginal blood. Gyn says wait to see if it changes, onco wants me to have elective surgery. But I might go a whole 2 months without…
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Side Effects | Rash
Starting to see some side effects: Fatigue, mouth dryness and sores and skin rashes.
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Drug or Chemo Therapy | Keytruda
I'm two rounds of immunotherapy in. Starting to feel some side effects.
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Procedure or Surgery | Surgery
Removal of right kidney and adrenal gland.
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Side Effects | Chemo brain
Brain frogs. Loopy loopy loopy.
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Side Effects | Depression/Anxiety
I have had two chemo treatments so far. I had a panic attack during both.I had racing heart and trembling all over. They say it's from the taxol but I'm suspicious of the Benadryl.
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Procedure or Surgery | Debulking surgery
I had a giant tumor (35cm)(almost 14 inchs) Creepy! Now I have a giant scar to match. Also creepy.
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Procedure or Surgery | Hysterectomy
I'm 37 and going through menopause. I don't know anything about menopause. I don't have any women in my life I can talk to. Any advice would be greatly appreciated.
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Oh No | Health insurance issue
I didn't have health insurance the day of my diagnosis. I had to jump right on that. Lots of phone calls. It turned out really well though thanks to Medicaid and Affordable Health Care Act. I haven't payed a dime.
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Oh No | Work problems
I got fired from my job the day they found out I'm sick. The HR person called me right before my surgery to let me know. I'm not eligible for family medical leave because I hadn't been with the company a year. I'm a machinist. I've been working as a machinist for 12 years but rarely get to work in the same machine shop for…
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Oh No | Just Diagnosed
I'm calling this the year of the Sudden Catastrophic Illness. I only had a belly ache, didn't want to belly ache about it. Then I got it checked out and there was a giant tumor in there.
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Keytruda
Didn’t know what to expect as far as side effects. Sis in law going through same treatment and is one treatment ahead of me. Starting to have mouth sores. What is best way to prevent or treat?
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Pill Blackmail
So, I missed an appointment with my oncologist (actually with her PA) and now my medical *team* will not refill my prescription for Anastrozole until I re-schedule. I am FURIOUS and considering changing doctors! The missed appointment was actually their doing, but that is a long story. The point is, I am scheduled to see…
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What did you learn?
After you ‘finished treatments(surgery, radiation, chemo, immunotherapy)? Looking back, what did you learn?
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Procedure or Surgery | Surgery
Surgery went well. Removed my left kidney and recovery wasn’t bad at all.
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Celebration | Anniversary
Joined 5 year survivor club at Cancer Center.
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Found 2 digests in Spam folder
Also all the highlighted areas I used to click on to take me to areas of interest to me in the digest don't work. It just highlights them lighter.
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Celebration | Finished treatment
Oct.21,2021 ringing the bell for final treatment!!
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Side Effects | Hair loss (alopecia)
Mouth sores so couldn't eat only mashed potatoes,cottage cheese, soft foods, dehydrated real bad after each treatment of " Red Devil", received fluids for 3 days after treatments!!
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Combo Immunotherapy Side Effects and Long Term Results?
My husband just began an aggressive combo immunotherapy, using ipilimumab (Yervoy) and nivolumab (Opdivo) to treat Stage IV Metastasized Melanoma. If you could please share any common side effects and/or positive responses you may have had, it would be greatly appreciated. It's very unpredictable I am told, but it's always…
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Oh No | Took 2.5 months from time of diagnosis to get an endocrinologist appointment despite pancrea
There should be an endocrinologist on the cancer team.
