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Does your temperature always run a little low?
Turns out that human beings now have a lower normal temperature than 98.6. Here's the story. https://medivizor.com/blog/2020/01/18/normal-temperature/
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How is everyone doing since I've been on vacation?
What are your biggest issues?
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The Superbowl can be a great diversion from cancer.
Will you watch and who are you pulling for?
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Well, that wasn't as bad as I expected.
I am sitting up in a chair this morning. The surgery went well except for findng some on my thyroid. So that's gone. All in all, not to bad. It's hard to remember that when I open my mouth nothing comes out. More later
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A quick update.
A quick history of my prostate cancer. Aug. 2011, first diagnosed, Gleason score 3+3=6, two cores at 5% Jun. 2016, last of four biopsies, Gleason score 3+3=6, two cores at 5%, decided to adopt program of active surveillance. Jan. 2020, PSA essentially unchanged over past few years, digital exams continue fine, sticking…
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Stage 3 statistics, survivors
Did you have bladder pain throughout and after treatment
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After dealing with cancer for this long I have a hard time relaxing and de-stressing
When I go home and my dog jumps up in my lap all of that seems to melt away. I'm starting to think that there is something to this "therapy dog" thing. Does anyone else find this is true for them? I used to think it was all a crock and just a way for people to get their animals on the plane.
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Somebody asked me when is my anniversary and I really don't know.
Do we use the day of diagnosis, end of treatment, or after a year out? Never really thought about it.
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A question that was emailed to us from the WhatNext Digest, have any of you been told this?
I wanted to ask a question...i have been on levothyroxine 88 since my left thyroid lobe was removed for cancer a few years ago. Now I am told there is a new school and an old school and the new school is not to take the levothyroxine. So the doctor has advised me to stop taking it and I'm into about three weeks of not…
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Had to rejoin
Ooh no.. I updated my postal code and all my experiences background disappeared :-( had to rejoin. Thus happen to anyone before?
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What do you do the night before big time surgery? Apparently you don't sleep much.
Up until midnight or so, awake at 3 AM. No problem, I'll get plenty of sleep today, probably pretty deep sleep. It's that waking up thing that is gonna hurt. However it goes and however much it hurts I'm ready to get this thing out of me and get on the other side heading towards recovery. Thanks for your concerns,…
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We have had several people ask about time under anesthesia, concerned about how long you can safely
Each operation is different, but I take it that the jest of the question is has anyone had any adverse effects directly related to being under general anesthesia for hours and hours? Anyone? Thanks for your input and we will pass along the feedback.
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Who would you say you have gotten the most support from?
A family member or friend? I've had a few friends that have far outdone my family. It's kind of sad really.
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How do you come to grips with the fact that everything you have worked for all of your life could be
We retired, paid off everything, moved to a new state, new house, new dreams, and were getting ready to really enjoy the sunset of our lives. Now this damn diagnosis comes and is going to ruin our lives. I'm so pissed at the world right now. How do you deal?
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How do you get humility and gratitude? This worked for me
Sweetie threw me a surprise dinner party last night with a small group of 60 or 70 family and friends as a "last supper" before heading off to Vandy tomorrow. Read my thoughts about it here>> http://bit.ly/2U4nc41
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Since starting chemo my skin seems to be crusty dry
Does the chemo do this or is it just from normal winter weather? What do you use for the cracks in skin around the mouth?
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I am a year or so out of treatment and I still can't get back to normal sleep.
I used to only sleep 6 or 7 hours a day, but now I seem to need 10 or 11 hours to feel like I've gotten enough. Does Anyone else seem like you're still dragging?
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Get Well Wishes for Greg
Let's all post a get well message for Greg. Wishing Greg a successful surgery and a speedy and comfortable recovery
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Pain medicine, are you getting what you need?
With the opioid epidemic going on I was worried that I wouldn't be able to get the pain meds that I know will be needed when I come home. I remember the last radical neck dissection that I had in 2009, now I'm going to have that on the left side as well as the laryngectomy. Last week I questioned my doctor about this. She…
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Has anyone had a sleep study done?
I am having trouble getting any sleep and I figure it's all the treatment, side effects, etc. But I'm wondering if a study would be a waste of time? Anyone had any luck? Or, how have you gotten sleep short of sleeping pills?
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Copy and paste
I keep getting these FB posts about cancer. They ask you to copy and paste to show that you support someone with cancer. How do you feel about these.? As a cancer survivor and the widow of a cancer victim I don’t do these things. I appreciate the thought behind it but I hate to make anyone feel guilty for they way they…
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I am getting to that point where I can't taste much or what I do tastes terrible.
How long does this last or when will my taste come back?
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I received an estimate on the total cost of my surgery and hospital stay yesterday as a part of my i
This estimate is based on a 3-day stay, I've already been told that I will be there 7 to 10 days, or whatever it takes until I get well. So this estimate is in error to start with, but here is what it is. $232,000.000 Sor we can safely say 250,000 to 500,000. So at this point, I'm just considering all of this to be like we…
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Stage 4 how long will I last?
Stage 4 how long will I last?
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How much is a life worth? How high can medical expenses continue to rise?
I am thinking about this today. My most recent bill of over 28k for an hour or less in OR for a biopsy in my throat. The doctor told me she expected it to be a 10 minute procedure. I think it went longer since they found malignant material, but still, I was in and out an in the recovery in an hour. My next surgery I expect…
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I noticed Taylor Swift has revealed that her mom has a brain tumor.
There is an article about it here. Of course there are many. and this is Another case of it doesn't matter who you are or how much money you have cancer shows no prejudice. https://www.nydailynews.com/snyde/ny-taylor-swift-mom-brain-tumor
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Our January Newsletter is out and you should get it in your inbox of the email address that you used
If you don't get it automatically, your email provider is blocking it as spam. Please check your spam folders and move the email into your inbox, or mark it "Not Spam", or something similar based on your email providers way of sorting.
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Have any of you heard of the drug Someta?
It's supposed to help with strengthening your bones?
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How to know if it’s back ? Would an MRI help?
I already posted my symptoms, and thank you that answered me(I kinda knew I need to see a doctor , but now brings another question? I ... think I should see my oncologist I have had already??? But I am wondering how would I get an MRI on my own first???? Thanks!!’n
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How to get back to eating after surgery?
My husband had surgery 5 months ago and is still not eating. He will only drinks protein drinks and creamed soup. Any advice to get him to start trying would be great! He passed a swallow test and the therapist have tried to encourage him but no luck! I'm getting frustrated with his weight loss. He doesn't have a feeding…
