Tonight You Won't Be Able To Speak-What Will You Say Today?

GregP_WN
GregP_WN Member Posts: 742
edited February 2020 in General Cancer
This is something I was thinking about up to my surgery. Even the last minute before they rolled me to the operating room we were in the little cubicle holding area. The last thing I said with my old voice was I love you to my Sweetie. After the surgery and I woke up, I tried to talk just out of habit/reaction, nothing came out. Then I remembered why I was there. It's been 11 days today and every now and then I just open my mouth and try to speak out of habit. It's sad when nothing comes out. So I grab my Electric larnyx and talk, or just write it on a dry erase board. This post is on my thoughts after coming home and trying to adjust to life without a voice. Read it here >> http://bit.ly/3bpMyzh or just go to the blog page.

Comments

  • meyati
    meyati Member Posts: 308
    edited February 2020
    If you and Sweetie text, that is a good way to talk to each other. I did this with my family for about 6 months. I needed assistance to get to the bathroom. I text that I needed the toilet or a bath, and Tom or Levi helped me get there. They drew my bath then walked me there-I was so weak from the Whooping Cough. They turned their backs to me, while I did my business. I let them know when I needed water-whatever I needed. Then for me I had record of what I said or what they said---I'd wake up and it helped me remember if I had talked about something we texted a lot in waiting rooms

    I shook my head yes or no- but many things weren't yes or no.
  • cllinda
    cllinda Member Posts: 153
    edited February 2020
    Testing is a good idea. When I was so weak and needed something, I would text my son or husband and they would help me. It kind of was strange to text in a house, but it worked.
  • Jayne
    Jayne Member Posts: 134
    edited February 2020
    I can't even fathom what my last words would be - I might make a recording of me saying something profound or telling my family how much I love them.
  • Dkatsmeow
    Dkatsmeow Member Posts: 37
    edited February 2020
    Fortunately I have a recording of my voice before. Now most people can't understand a work I say.
    Hubby included. It gets annoying after while. Especially since I cannot use a phone at all.
  • Lynne-I-Am
    Lynne-I-Am Member Posts: 89
    edited February 2020
    Greg, I would have said the same thing as you to my hubby. The thing I would miss most though is my ability to sing. I sing all the time. I sing st the kitchen sink, while on a walk, or in the car. There are so many ways to communicate with words , yes, I would miss my singing most of all.
  • Carool
    Carool Member Posts: 787
    edited February 2020
    Greg, I can imagine how frustrating, saddening, and tough it is for you and your Sweetie and your other loved ones. I hope that as you learn more about how to use the Electric larynx, your ability to talk improves and gets more natural.

    I bet that if I lost my voice now my last words in my voice would be a few expletives about our current political situation. KIDDING! No, I’d probably tell my partner how much I love him (but only *after* I’d said those expletives).

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