What experience have you had with Endocrine Treatment?

IDCIV
IDCIV Member Posts: 1
edited February 2020 in General Cancer
I have metastatic disease in my axial nodes, bone (shoulder), and lungs.

Comments

  • Starrynight
    Starrynight Member Posts: 2
    edited February 2020
    I have been on aromatase inhibitors for 5+ years now for IDC stage 2. Although I liked how I felt much better prior to this therapy, it's doable. What I dislike the most is that it makes me feel tired and achy pretty much all of the time. I stay positive and active, which certainly helps a lot. It also dries my skin out a lot. I have the option of stopping it now or taking it up to 4 1/2 years longer. I opted to stay on it as long as I can. I have a friend who had no side effects, so I hope you have none as well. Stay strong and best of luck to you!
  • Starrynight
    Starrynight Member Posts: 2
    edited February 2020
    Although the aromatase inhibitor therapy makes me feel a bit more tired than I used to feel, I think it may also be due to the Prolia injections I get every six months to keep my bones strong. I truly find that the more physically active I am, the better I feel. Besides having my 2 grand babies a couple of days each week, I'm currently working on a bathroom remodel project (laying tile) and I feel pretty great. It's hard work and I'm pretty wiped out in the evenings when we finish up, but I feel like it keeps this 65-year old nana pretty strong! My motto is keep moving. When I stop is when I feel tired. Haha! Good luck and hugs to you!
  • lynn1950
    lynn1950 Member Posts: 13
    I was on Arimidex for 10 years. The SE's vary in kind and intensity by individual. I experienced weight gain, joint pain, and osteoporosis. I was diagnosed IIIa in 2008. All things considered, it was worth it. Sending you hugs. For a morale boost, check out River Discovery (based in Boise).
  • Booque
    Booque Member Posts: 1
    I have been on letrazole for 3.5 years for stage IV breast cancer. The only real side effect that I notice is achiness in my joints, but it is tolerable. Seems the worst when I first get up in the morning. I find staying active helps a lot.